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@chronically-cai
Quick intro post ♡
I'm Cai-Marie, 27, she/her, from the UK. Call me Cai (pronounced kay) or Creacher ♡
This is where I blog about my experiences with disability! I have moderate-severe CFS/ME, clinical depression, suspected autism and a rare bowel disorder called slow transit colon (similar to Hirschprung's Disease). I'm always up to chat with other folks with similar conditions! ♡
🖤❤️💛🤍🩵💚🖤
i can handle one (1) Event™ per day. whether it be a phone call, an appointment, trip to the grocery store, play date with a friend, etc. only one, that's it. any more than that and i am Stressed
Idk what person with chronic illness needs to hear this, but you can do things to make your responsibilities nicer for yourself. You can get an ice cream after a blood draw. You can sit down for tv time after an injection. You can pick out the bandaids that have cartoon characters on them instead of the plain ones. Being an adult doesn’t stop you from benefiting from encouragement. Go for whatever fits with your routine/abilities/budget and makes life a little better. A spoonful of sugar helps the medicine go down etc etc
There is a kind of grief that comes with constantly having to decide whether something is worth the energy it will cost you.
I think a lot of disabled people carry that grief quietly.
I have a disease called I want to text you so much but I have no idea what I would even write
i have a similar one called i want more contact but I'm afraid I'm being overbearing so I'll just wait for you to start
I have autism
you don't have to be scared of your suicidal friends. you don't have to be scared of your psychotic or delusional friends. you don't have to call the police every time someone says they feel like they want to die. you can say things like, "that sounds really hard" and "I'm going to bring you some food and you can tell me more about it"
Important addition thank you! You can absolutely have boundaries about substance use but your friends who use substances know themselves and their needs better than you, and they do not need policing or threats of incarceration. If you want to help your friends who deal with addiction, be patient and demonstrate that you're a safe person to talk to.
dear fellow autistic people: if you consistently come out of doctor’s appointments feeling emotionally (and sometimes physically) hurt, but you feel bad for feeling hurt because “the doctors were being nice”, the doctors were not being nice.
this is something I had to learn the hard way. doctors often dress up their words all pretty so you can’t sue them. I, for a long time, mistook this as genuine kindness. It’s not. It’s just being professional. even if they didn’t call you a slur or anything that doesn’t mean they weren’t ignoring your needs.
trust what your body and emotions tell you. if you are feeling hurt, there is a reason, and you need to listen to it. please listen to it.
tbh man a frustration of antipsychiatry is that people who do not know what a p-value is are going to call you "anti science" for basically demanding research actually have merit before affecting legal policy.
Realizing the depression is not seasonal is like: Wow! What a beautiful flower! The birds are singing! I sure do love spring! I think I am fundamentally unlovable as a person.
Hey if you’re schizophrenic/psychotic I just want you to know that you’re a wonderful person and that you deserve so much better than the demonization, marginalization and stigmatization you face in this society.
Please consider reblogging this/other positivity posts for schizophrenic/psychotic people every once in a while. If you have more than 100 followers, odds are that a couple of them experiences psychosis and that they rarely see positivity posts for people with their symptoms.
the minute someone is noticeably psychotic people's social skills fly out the window because they don't see psychotic people as people
"what do I do if I shouldn't call 911?"
well "I'm sorry I'm in a rush" is a pretty good option or "I can't talk right now, sorry" and then move on.
psychotic people, ultimately, are people. they are just as human as you are and the vast vast vast majority of the time they're not interested in hurting you.
when you're approached by a psychotic person ranting about delusions or hallucinations (and possibly speaking with disorganized speech) they are just looking for human connection, that's all. they might not have many people around to talk to and it gets lonely. when someone talks to you about a secret society of mind readers out to kill them they are just trying to connect with people and sometimes process the fear they're experiencing (because a secret society of mind readers out to kill you is rather scary!)
things like mania can also make you very talkative and very social.
someone coming up to you to talk about being the second coming of Jesus isn't trying to hurt you. they just want to talk. if you have time then have a conversation, most of the time you don't even need to say much. you can politely nod and go "wow that's crazy" and "that's so scary" and it might be one of the kindest things someone does for them that day. if you don't have time just say you're in a rush and leave.
it's that simple
it's ironic that ableds love using disabled people for inspiration porn but hate actually giving the vast majority of disabled people the tools and accommodation to facilitate disabled people doing more with their time. it's almost like the point of it isn't to inspire but to create a false narrative that disability can be overcome with strength of will because look at these people who did it! now stop asking for help
Defend disabled people who aren't only making the healthiest possible choices forever. We need to stop holding the people with the least resources to the highest standards of health. We need to stop pointing fingers at disabled people who aren't even doing anything your average abled person isn't also doing.
Is it a universal medication-taker experience to swallow your pills and then five minutes later completely blank and wonder if you’ve actually taken them or if you took the wrong ones
@unofficial-autism-post
