Chronic Illness Blog

[chronically-cj]

Hi friends does anyone have any tips for attending a (standing the whole time) concert for someone with POTS and a bit of EDS related knee/ankle issues? The concert is on Sunday and I am getting nervous! I have been especially dizzy/unsteady lately and fear it will not get better before the concert lol.

Side note- I have a pair of forearm crutches that I used to use full time but I also now have some pretty bendy shoulders with pain possibly because of them. Should I use them for stability? Anything else?

Please if you have advice or past experiences I would love to hear about it! Thanks!!

[identitty-dickruption]

hello disabled person who is dithering about whether or not to ask for a certain accommodation because you could "technically survive without it". that is the devil talking. you are allowed to demand more than "technically surviving". the world is a shitty ableist place, but if you have the chance to have your needs met in any tiny way you are allowed to take it. and yes, it's still a need even if you can kind of almost technically mostly survive without it

[rthritis]

[asexual-amanita]

Friendly reminder that it’s ok to be sad about your disability. It’s ok to grieve what you once had. It’s ok to wish for things you never had. Society tells us we have to be these constantly positive, inspiring individuals, but we’re just normal humans. While I don’t suggest wallowing in misery 24/7, it’s ok to give yourself space to feel those tough emotions, rather than suppressing them and pushing them down,

[fibro-memes]

[chronicillnesshumor-deactivated]

I've come to a point in my life where I appreciate a good pill organizer

[talkethtothehandeth]

A reminder that if you didn’t need a mobility aid you wouldn’t be day dreaming and fantasizing about how they would help you navigate the world and that no matter how much internalized ableism you hold it won’t change your reality about your conditions and you SHOULD do what is best for you because no one will punish you more than yourself if you keep ignoring your needs

[disabilityaidpositivity]

Friendly reminder to check the tips/feet of your canes and crutches; do they need to be replaced soon?

[youngchronicpain]

Remember that every time you use your mobility aid in public, there is very likely another person there who is too apprehensive to use their own mobility aid and feels braver from seeing you use yours.

[chronically-cj]

It's okay to miss someone. I'm missing someone today. Emotions are wild.

[snoopyoftheday]

snoopy of the day

[chronically-cj]

This is how I'm feeling today

[chronically-cj]

Is it just me or is the *clang* of a mobility aid falling on the floor the loudest sound in the universe

[chronically-cj]

Recently started biking to classes instead of walking and it reminded me that mobility aids don't always have to be labeled as "mobility aids". If it helps you, then it is an aid. And if it helps you, you should use it.

[griddleharkbrainrot]

When the mobility aid for your disability starts injuring you because of your other disability

[i-am-a-fish]

lmao.

*tucks you in*

*gives you a glass of water*

lmfao.

*turns down the lights to your preferred level of dimmness*

*turns on your fan to keep the room cool and give you some gentle white noise*

goodnight.

[friendlycursedspaceotter]

Pro tip for my disabled and chronically ill friends in college: if you have to put a work order in and it is related any bit at all to your disability, write, very clearly in the "describe what needs to get done" section, "This issue is a health hazard," followed by a description of how the issue relates to your disability/chronic illness.

They are required to put it as a high-priority issue and fix it ASAP. Required BY LAW. Yes, I said it. They are legally required to fix these things, both under OSHA regulations and the ADA.

Play the disability card. I'm begging you. DISABLED IS NOT A BAD WORD. But don't abuse it. This is a fine line here.

Example: I'm heat and noise sensitive. My HVAC unit started breaking down and rattling loudly. That would be an example of a health hazard. A broken light could be a health hazard to someone with vision issues. I can only speak for myself here. But y'all have the right to speak up and advocate to yourself.

Neurodivergent people, this applies to you too. You're one of us (one of us! one of us! one of us!). Don't let the exclusionists gatekeep this information from you.

[mothforfairylightss]

casually having a low symptom day the day of a doctors appointment