Chronically Overwhelmed

Shelby | 28 Pseudotumor Cerebri/IIH | PCOS | Chronic Pain | && more still in the diagnostics phase. Chronic Complainer. Looking for Spoonie mutuals/friends! Side blog.

[afewregretsmaybe]

Going to the doctor with a bunch of new symptoms and knowing exactly what’s gonna happen:

[chr0niciconic]

[bpdsnek]

my mitochondria clearly aren’t working because this bitch has NO FUCKING ENERGY

[spacelesbians-archive-deactivat]

Mitochondria machine broke

[kamuis]

actually the funny thing is that this post is basically describing what researchers now think is the underlying cause in chronic fatigue syndrome (as in there is notable dysfunction in mitochondria that means less ATP is produced, especially under stresses)

[caramel-ramamel-blog]

THIS BITCH EMPTY

[hxavensxnt-blog]

Y E E T

[kingjaffejoffer]

“im getting old” starter pack

“this is way too sweet”

“they’re remaking that movie already????”

“my back hurts”

“wait, people get mad about that now?”

“I can’t eat that, its gone fuck my stomach up”

“hold on let me check my calendar first”

**turns on the radio** [groans]

[thuggums]

How dare you EXPOSE me at 5:18 am on this good Monday

[zerofucksclub]

[theesunshinestoner-blog]

^ lmfao but my back really be giving me unnecessary problems

[chronically-overwhelmed]

I made a few Spoonie versions of the Same Hat!! meme.

[bekindbegoodbebrave]

Raise your hand if the Spoonie Community has helped you feel less alone 

[chronicillnessmemes]

One of the Biggest Myths About Chronic Fatigue Syndrome Just Got Debunked

Chronic fatigue syndrome (CFS) or Myalgic Encephalomyelitis (ME) is one of the most perplexing conditions out there. It affects up to 1 million Americans and as much as 2.6 percent of the global population , often triggering exhaustion so severe...

If I’m reading this right, it looks like they might finally be able to develop a test and prove that exercise is harmful to patients with CFS/ME.

[strangerdarkerbetter]

I, myself, am but a collection of symptoms and coping skills.

[spoonie-humour]

my chronic illness, probably:

[spoonie-humour]

Being chronically ill and concerned about your weight is wild like… oh u wanna exercise? U can’t. Faint. Pain. Oh so eat healthy then? Nope. Need to eat one hundred salts. Meal replacements? Not enough water.

Like listen body I’m tryna LOOK AFTER U?

[chronicallyrebellious]

Tinnitus: because every day deserves to sound like that moment when something dramatic happens in a movie and all your here is ringing.

[nyctaeus]

Anish Kapoor now banned from the world’s glitteriest glitter

Stuart Semple, the creator of the ‘pinkest pink’ paint, has shared his latest invention

[gimme10dollas]

@africanaquarian

[africanaquarian]

I feel like he’s just gonna keep making shit and Anish is gonna get hold of it somehow like them lil cartoon villains

[talesofthestarshipregeneration]

aint these folk got art to do?

[einsteinbrosofficial]

this is performance art

[oneman-wolfpackk]

healthy people: what are your goals? what are your plans for the future? my chronically ill self: staying alive and hopefully still being alive

[kelssiel]

cool concept: demons and monsters being defeated by disabilities

-a demon waits to scare a woman as she opens her eyes she doesn’t notice because she’s blind

-the boogeyman grabs the child’s ankle as they climb put of bed, it’s prosthetic the child doesn’t notice

-sirens fail to lure the deaf sailor for obvious reasons

-the schizophrenic doesn’t pay any attention to the demons telling them to do things because it’s the same shit as always

-the demon screams in frustration as the guy with ADHD he’s possessed keeps forgetting that he came into the kitchen to kill his family not wash the dishes

-the devil tries to create an unholy union to give birth to the anti-christ he is thwarted by the man’s severe anxiety disorder

-demons try to torture a person with chronic pain who just thinks they’re having a bad pain day

[mars-mary-bernadette]

Do you ever just wanna … #chronicillness #spoonieproblems #dysautonomia #potsie #spoonie

[secureandprotected-deactivated2]

I need more spoonie friends. Please like and reblog this if you are one! In particular, I have:

- Spastic hemiplegia - Dysautonomia - Major Depressive Disorder - Panic Disorder w/ Agoraphobia - CPTSD - CFS/ME - Maladaptive daydreaming disorder - Disassociation - Past anorexia nervosa/body dysmorphic disorder - Some random inflammatory disease

[trufemale420]

The medical community on literally every female specific health issue ever: “very common condition” “no known cause” “no known cure” :))))))

[newtonssidedick]

What the fuck is tumblr? Like honestly what is this? Do you guys pull shit out of the inner most depths of your rectum and then just throw it on your keyboard and have it turn into a post???? This site is something else what the fuck is wrong with you people????!?!?

[trufemale420]

Endemetriosis

Vaginal Thrush

Menorrhagia

Polycystic Ovary Syndrome

Fibroids

Very common conditions, causes are unknown or only speculated, long term cures have not been found. Most can cause chronic pain or discomfort, all can seriously impact your quality of life.

[witwitch-deactivated20160508]

Men are so damn privileged they can’t even imagine female bodies have different healthcare needs than theirs and that our healthcare needs are important even if they can’t be affected by one of these conditions.

[hyggehaven-deactivated20200904]

Endometriosis causes excruciating pain and is a leading cause of infertility. Thrush is extremely uncomfortable, and expensive to treat repeatedly; over-the-counter preparations rarely completely eradicate it. Menorrhagia, which I have, makes you anæmic. PCOS causes hormonal symptoms that are socially difficult (facial hair, acne, hair loss, weight gain). Fibroids are so common, and are often treated with a hysterectomy.

Add in fibromylgia, which affects 8x as many women as men, as well as lupus (and almost any other autoimmune condition), systemic exertion intolerance disorder (SEID), iron deficiency anæmia (all of which affect more women than men), and you have well over 25% of childbearing-age women globally living with chronic pain and tiredness.

Chronic pain is overwhelmingly experienced by women, and women are less likely to be taken seriously or given treatment by medical professionals. I went through two years of diagnostics to finally find out I had occipital neuralgia; I felt doubted when I described my pain at every step of the way, but was lucky to have a partner who was persistent in helping me get treatment.

Basically, this is a huge problem, and also one of the reasons I have been considering medical school.

[feminerds]

Don’t forget that most pharmaceuticals go to market without ever having been tested on people with a uterus, lest someone get pregnant… seriously that is the whole rationale behind not testing >50% of the population. This has been legislated against in some countries, but still persists in the of majority drug development because of other regulations, and traditions and laziness. The use of a drug is of course monitored in the population after release, but the people “trying” it in this capacity get none of the insurance, close and regular medical examination or monetary benefit of essentially being in a late stage drug trial. Drugs that are pulled from market after release are sometimes done so on the basis that the dosage is just too high for females/afab people and this is, of course, after they’ve experienced the adverse affects. 

This is why if you get pregnant your doctor will take you off basically any and all medication you’re taking (including mental health medication, can’t imagine any implications/dire consequences there), not because they know it will have an adverse affect on the foetus but because they have no idea. How wonderfully kind of them to prioritise the health and life of an unborn foetus over that of a living person, let’s just hope they don’t become ill whilst pregnant. How charmingly logical it is that they wouldn’t even bother to test drugs in people with a uterus because it’s all too difficult and gosh, darn what an ethical conundrum we’ve been faced with, let’s just not! Which is so in the spirit of capital S, Science!  

Sources: Nature, Nature, Medscape, Biomedcentral.

[prokopetz]

Indeed, the issue is so severe that, in many cases, folks with uteruses are routinely told that their diseases and disorders are not, in fact, disorders at all, and are just a normal part of having a uterus.

Take menstrual cramps, for example. Everybody knows that cramps are a normal part of menstruation, and that virtually all people who menstruate experience them throughout their lives, right?

Except that’s not right at all.

Yes, it’s true that about two-thirds of individuals who menstruate begin to experience menstrual pain during adolescence, but it’s basically a side effect of puberty, and normally subsides by your late teens. Only about 20-40% of menstruating adults experience menstrual pain on a regular basis - and according to some estimates, as much as 80% of that figure is due to undiagnosed endometriosis or some other underlying medical condition.

Yeah, roll those numbers around in your head: if you’re an adult who experiences menstrual cramps, it’s overwhelmingly likely that your pain is a symptom of some potentially serious medical condition.

And yet we tell folks it’s just a normal thing that everybody has to deal with.

[dottewa-deactivated20200728]

Bonus round: Look up PCOS and gender identity.

Then look up PCOS and diabetes.

[thepageofhopes]

Ok, to show how incredibly important this post fucking is, I just looked up endometriosis and I match just about every sympton, and it would explain not just my incredibly painful periods but many other things as well. I had no idea this existed. Please, read this post and reblog this so others can learn.

[lynati]

Tumblr is the fucking education we weren’t given anywhere else. It’s people, talking to people, about anything and everything, and it’s been far more helpful to people than it has been hurtful to them - especially for women, people with health problems, and people with questions about their sexuality or gender identity. And then there’s the handful of people belittling it because not every post conforms to *their* view of what life looks like.

[disabilityuserboxes]

this user has chronic fatigue syndrome