Chronically Pawsome

Blogging about my battles with chronic illness, service dog handling, and schoolwork. DX: Dysautonomia, chronic migraine, chronic pain, hypoglycemia

[infernallesbian-deactivated2019]

SMASH that reblog button if you have no idea how you’re going to get through your life in this much pain

[a-zebra-called-addison]

That Feeling When

Your wrist hurts after pouring the kettle….

[fixedyourmeme]

[letmebegaytodd]

Every time i start a new vido game:

OH FUCK WHERE ARE THE SUBTITLES

[birdycrow]

[jinxy93]

The worst part of a chronic illness is having the desire to be productive, but your body simply won’t. do. the. thing. 

[undiagnosedautismfeels]

tuafw you realize all those times your parents called you easily entertained when you watched the fan was actually stimming

[spoonie-humour]

The world is my seat

- Spoonie Proverb

[spoonie-humour]

Me: *gets in pool*

Me: OOOoooOOO so much movement

Me: so little pain!

Me: such independence!

Me: *gets out of pool*

Me: *faints*

[spooniestrong]

T R U T H

[thegaymerist]

“how’s your summer?”

[sherlock2g]

So damn accurate.

[magnumpicactus-deactivated20230]

I’m pretty sure this is when Norman Reedus put glitter in Andrew Lincoln’s cars A/C and Andrew was absolutely miserable because it was a hot day and instead of cold air he got hit in the face with hot glitterized air

[scrimblobimblobadimbo-deactivat]

oh my god

[spooniestrong]

[spooniestrong]

<strong>Invisible Disabilities are REAL.

Enlighten yourselves, educate others.

[chronicallypawsome]

[chronicallypawsome]

[kuroii98]

[interstellar-space-cadet]

I’m every one in this

[closecaptionvevo]

MAN 1 (in a high pitched, whiny voice) Look what you’ve done to my peonies!

WOMAN (angrily) They’re marigolds!

MAN 2 God! I think she’s right! They are marigolds!

MAN 1 I may not know my flowers, but I know a (yells in her direction) bitch when I see one!

[kosciuszkovevo-deactivated20200]

It’s back!

[beeth0ven]

abled bodied people getting injured is so wild tbh. all the other ableds go balls to the wall. like today my sister dislocated her shoulder and she went to the er and my mom left work to meet her there, somebody from her class got her flowers, everybody is all worried. meanwhile im like “hey fam can u help me reduce my hip real quick” every other day, in the hospital for the 3rd time this month and nobody even blinks, doctor asked me if i was faking my arrhythmia, told to try harder,

[chronically-illustrated]

This is so real. My mom hurt her foot kicking my stuff recently and it was this huge deal with an ER trip and my dad babying her for days and she can’t drive etc etc, but when I’m struggling to stand up without passing out, my dad tells me “Just use mind over matter” and then, when I tell him it doesn’t work that way, he gets mad and leaves the room without even trying to help me up.

[servicedoodle]

Yep. My roomie sprained her wrist. Went to ER got time off work… I dislocate a few ribs and everyone’s like meh that’s just you.

[chronicallypawsome]

29 January 2018

Hello everyone!

I’m not dead, however I’ve been busy and in all honesty forgot I had this blog :/

But I’m back! And with good news, too. I received a phone call yesterday from the UC Davis Medical Center, who have agreed to take on my case and find some answers finally!

I chose to transfer my care to a research hospital for a few reasons. Because this is an institution for education, they are likely to be quite familiar with rare or newly discovered conditions, and they have likely studied the more rare cases at length. My last PCP suspected I may have POTS, but did not have the resources to confirm the diagnosis. POTS is considered to be rare, but it is likely because it is both difficult to diagnose and lacks awareness. I do not have my heart (badum-tiss) set on this diagnosis, however, for I just want an honest answer to what is causing me to spiral downward from a healthy and active young adult to a disabled burden who can’t shower for longer than 10 minutes. 

I also chose this hospital because in the event of my being diagnosed with something rare or new, I would like the results of my tests and other procedures to be used to help educate future doctors about these conditions. My biggest spoonie struggle so far has been to advocate for myself, and of whatever I have is discussed and taught about more often, my hope is that in the future there will be far fewer 19 year-olds struggling without answers. Lastly, I chose UCDMC because I go to UC Davis (not studying medicine) and it is the best medical center nearby. Having grown up in a small town, I’ve had my taste of inaccessible healthcare, and I’ve done my time. Honestly I’d be lying if I said I didn’t take the medical center into account in my decision to attend UC Davis. 

So that’s my blurb on that. I’m going back to studying for my midterm exams now, but I hope you all have a wonderful period of time until I check in again!

[beeth0ven]

what i mean when i say “disabled bodies are treated as public property” is that we are constantly under scrutiny, and everybody and their grandma has an opinion on how we should live our lives/treat our illnesses/cope. 

if you try everything you’re wasting money and desperate, if you don’t you’re not trying hard enough. if you work you’re not really disabled, and if you don’t you’re a lazy piece of shit mooching off the government. there is no winning. no matter what happens it is wrong. and everybody has an opinion on you- and god forbid you tell them off for it, that makes you an ungrateful bitch.

its like able bodied people cannot possibly fathom how disabled can be independent, thinking, capable beings, fully equipped to make our own choices in life. we aren’t alive so you have something to tear up over and talk about over dinner. we shouldn’t feel the need to tip toe around everybody and everything because we’re afraid of what kind of hell abled bodied people will raise.