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@depressforsuccess
Knight and a Second chance
Not getting a ton of reporting in US news, but the Trump administration is going after donors to Palestine, including going as far as international extradition under the guide of "counterterrorism"
the thing that drives me crazy about transmasc invisibility as a topic is that i DO think it's a problem, but i think the term gets misused a lot and i also think a lot of trans guys come to some pretty batshit conclusions on how trans women are treated
i think maybe we can talk about how we are routinely erased from conversations about reproductive care, abortion, gynecology, etc and then treated like we're annoying when we ask to be included without insinuating that trans women somehow benefit from it.
in case folk outside the UK aren't abreast of our news, the British press just hounded a black academic to death
a rough timeline of events (from memory, there may be inaccuracies, feel free to correct me if I'm wrong)
Cambridge professor of sociology Jason Arday is accused of plagiarism by another academic
the accuser is a "race realist" who believes that in a true meritocracy all university professors would be white. this is somehow not acknowledged much during the entire ordeal
this leads to several days of media coverage demanding an investigation, or that Arday is expelled from his post immediately
somehow this accusation that has no effect on the lives of 99.99% of the population becomes FRONT PAGE NEWS in all the newspapers for multiple days, above anything else happening in the UK or the world at large
following intense media scrutiny, Arday resigns his post as a Cambridge professor
today, august 14th, days after resigning, Arday is found dead at his home in Battersea
the British tabloid press remains, and will always be, fucking evil
woahhhh a floor beef clover it must be my yucky day
Looking at you
The beautiful and endangered Dumb Gulper Shark
one time i was making potato soup and i needed broth for it but i was out of broth. but in my dog food cabinet there was a carton of chicken broth that i had bought for my dog. now the box did say HUMAN GRADE and the ingredients were just bog standard chicken broth. it did say something about joint health for dogs on there. but the ingredients were normal. i even compared the ingredients list to some normal person broth and they were the same. so i did put dog broth in that soup and it did taste completely normal. but i did use the dog broth.
i think we should be talking about the semi-recent advancements in cystic fibrosis treatment like all the time every day. there hasnāt been a drug like this since AZT medications for HIV infection it is truly fucking miraculous and very important
basically: cystic fibrosis is a genetic disease which makes the mucous a person generates extra sticky. it used to kill people in infancy, then with advancements in medical tech it killed people in young childhood, and until very recently cystic fibrosis patients could expect to live until about thirty years old with consistent painful lung infections and complications.
in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.
people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.
like isnāt that insane. isnāt that amazing. doesnāt that give you hope for the future of medical advancements and treatment. fuck. i think about it all the timeā¦ā¦
Thereās a WHAT.
For WHAT.
It's been amazing!
My ward is the respiratory ward - CF is one of the things we specialize in.
Since this med came out we haven't had a SINGLE CF admission to the ward
There used to always be a CF patient spending a couple of months with us at a time
There's a man who is 23 years old who I was sure would not survive his next admission (aim saturations 85% is end stage lung disease)
There's a set of the local frequent flyers that we all know so well
Except
No we don't
On the CF specialist ward (with reasonable staff turnover)
Half the staff have probably never even seen a CF patient
They are going to live
For the people asking "well how do we know people are living that long if it's so new????" Here's a page from the CF foundation about life expectancy.
Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.
But the fact remains that the odds are better now than they have ever ever been before, by leaps and bounds. It isn't cured, and many patients still need significant treatment in addition to Trikafta, but it is so much better than anyone could have dreamed of twenty years ago, and that is a triumph.
Yes! My sister has a serious form of cf and finally is living a more comfortable and active life. She was also part of many of the clinical trials leading to these breakthroughs due to the nature of her cf. It's been very exciting to see.
That's absolutely incredible. Don't get me wrong. It's miraculous from a clinical standpoint. But, uhh. Not to be a downer but I need people to see this so they stay angry and stay real about what medical breakthroughs actually mean for patients. When I call something "survival gatekeeping", this is what I mean:
That is per month with the most common coupon people are likely to use.
But don't worry, there's grants and patient assistance programs you can apply for. š¤š« Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.
NEVER look at something like this and navigate away feeling better about things without asking how much it costs and who can get it. NEVER. It isn't revolutionary until poor people can access it without a struggle.
Couldnāt get eclipse glasses but my humble colander got my back
we need to romanticize lying on the floor and not doing anything
op is actually napstablook from hit indie game Undertale (1915)
I MEANT 2015
playing undertale in the trenches with the lads before the Big Push
āThe women were lounging about the houses, some cleaning fish, others pounding rice; but they do not care for work, and the little money which they need for buying cloes they can make by selling mats or jungle fruits.ā
ā
some English lady who spent 5 weeks in Malaya in 1879 that Syed Hussein Alatas quotes in The Myth of the Lazy Native. The joke practically writes itself, but Alatas says it for us: āWe may ask the author what is meant by work here? Is cleaning fish and pounding rice not work? Work here means wage earning outside the home. Are making mats and selling fruits not work? It is clear that work here means that activitiy introduced by colonial capitalism. If the ladies became coolies or servants of British planters or firm officials, she would then have considered them as working.ā
So when the settler colonials say Indigenous people are lazy, they really mean āthey wonāt work for us to help us engineer their economy for our benefitā.
(via jhameia)