disability wrath month

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[doesnotcontain]

so you know this?

it's on stuff now

redbubble | ko-fi

[fealty-to-thee]

More characters ending disabled and happy NOW

[hylianengineer]

There is one very important thing I need people without major dietary restrictions to understand: the distress caused by allergies, celiac disease, and other food restrictions is largely not about the food.

Do I miss some foods I can't eat anymore without getting sick? Sure, but that's not what really bothers me. What bothers me is being excluded from a huge portion of human social life of which food is a crucial component. What bothers me is the stress and social stigma of trying to figure out what I can safely eat. What bothers me is the amount of extra work and cost that is required of me to identify, obtain, and prepare safe foods. What bothers me is people treating my needs like a nuisance, as though I chose to be like this - as though their brief inconvenience to check an ingredients list is unreasonable, when I deal with this every day of my life forever.

I don't miss the food that much. I miss not having to worry about what I eat. I miss freedom. I miss when trying new foods and new restaurants was fun instead of a minefield. I miss not having to plan my entire life around the need for safe foods.

Food is such a basic human need, and a lot of people don't really need to think about it. When your danger foods can be anywhere and everywhere, suddenly your entire life revolves around avoiding them, and it massively sucks. You get used to it and it's not a big deal most of the time, but then you go to a new restaurant, or your office has a potluck, or you've been invited to a party and suddenly it feels just as miserable and exhausting as it ever has.

[orteil42]

given the current climate this pride especially i feel i must mention that i love my trans friends, i stand with trans people in the fight against transphobic legislation and those who would enforce it, and this blog is not a good place for you to be if you do not vibe with that

[not-freyja]

Can everyone who makes video content do a Deaf bitch a favor? Watch your shit with the captions on and the sound off, and then do another round of editing to fix things including but not limited to:

Captions cover the spot on the screen you put the information I need

The dialogue is captioned but not the song you have playing that the dialogue is responding to

You only captioned the person on the screen, not the person off screen who is also talking

No captioning of critical sound effects (alarms, bells, dogs barking, etc)

Speakers are not labelled at moments where it is not clear on the screen who is talking.

Captions cover the spot on the screen that you put the information I need!

Other d/Deaf people welcome to add.

This post brought to you by the fifth video tutorial I could not follow because the bad, auto-generated captions covered what I was trying to watch today.

[eptck]

you have to be kinder to people with memory issues.

you have to be kinder to people who are slow processors.

you have to be kinder to people who don't understand your jokes.

you have to be kinder to people who forget important dates.

you have to be kinder to people with cognitive decline.

you have to be kinder to people who were always this way, too.

you have to be kind. you have to be kind.

[fidelcostco]

WAIT HOLD ON I cannot fucking believe when I was like four years old my parents were cajoling me to walk with the family and trying to get me to keep up even though I kept insisting that I was "tired" until they took me to a doctor and found out my LUNGS DIDN'T WORK. how insane that we live in a world where reasonably loving parents think their FOUR YEAR OLD is trying to be LAZY. like they were mortified to be clear. adults are just so trained to ignore children's complaints as untrustworthy, kids just need discipline, they can't possibly speak for themselves. what the fuuuuck.

[fidelcostco]

YOU ARE NOT IMMUNE BTW you should always be trying to take children seriously, especially very little ones but definitely all of them. the most disempowered class basically legally defined as property and most people are like "yeah that's good actually I hate when they Loiter lol they're stupid and loud and i actually think children should stop existing. restrict their personhood more actually"

[64mpg]

“my friend is ALWAYS sick and cancelling our plans” it sounds like your friends life suuucks and you should check on them

[rimonoroni2]

what people don’t understand about how adhd is disabling is that it’s not just getting temporarily distracted from, like, school work or hobbies. it’s getting distracted/being unable to motivate yourself to go to the doctor, eat regularly, do hygiene tasks, etc. it’s not knowing when or how long it will take you to do something, ANYTHING, and in many cases that thing is taking a shower or keeping your house from turning into a biohazard. it’s about being fundamentally incapable of controlling your attention and focus on anything, even and especially things you need to do to survive.

[asexual-amanita]

As summer is approaching, I’d like to remind everyone that you are not entitled to ask someone to cover up their scars, self inflicted or not. I don’t care if they’re big, I don’t care if they’re noticeable, or purple, or all over their body, or what. You can’t police people’s bodies.

[asexual-amanita]

This also goes for my friends with feeding tubes, ostomy bags, central lines and urinary catheters. People are allowed exist in bodies that stray from the expected norm.

[vampirebeverage]

psa

no one fucking tells you this so here it is:

when signing out forms to apply for disability / filling out a form for diagnosis

you’re supposed to fill it out as you on your worst days

like, I filled out forms that said I could do most things usually

like, my doctor added in the conditions like “yeah, they can feed themselves when not stressed” “they can do this when not stressed”

but how I should have filled it out was more like

“some days I can’t feed myself” “some days I can’t leave the house”

My doctor didn’t even know this, but I talked to someone who had worked with people with both developmental and intellectual disabilities for a number of years, and she told me to write down how it is for your bad days

this should be a thing they tell you, but it isn’t

part of the reason I didn’t get my autism diagnosis as soon as I should have is because I filled out forms wrong!

[reservoircat]

This also goes for filling out forms for disabled parking rights. I’ve been rejected multiple times for a pass cause I didn’t find this out till recently.

[deducecanoe-deactivated20161213]

Wow

[myceliorum]

Also you’re generally supposed to fill it out as you are without help.

That throws me too.  Because the more help I get, the more capable I get.  It’s easy to forget what happens when the help falls away even partially let alone completely.

[blackjame]

[bebsi-cola]

health isn't a virtue.

[bebsi-cola]

people still go around acting like they've done something good in order to be able bodied and healthy. that they worked for it, that it's due to their moral fibre or good upbringing or self control. they genuinely, on some level, believe that they are a good person solely based on the strength of their physical abilities. they will resist the fact that it is largely down to chance that they were able to maintain such health. whatever they think they've built from scratch, the building blocks were already handed to them. not because they're more worthy of it, just by luck. and they really think they're worth more based on that sheer luck. i've met disabled people worth a hundred of the healthiest ableds alive.

[normal-with-adhd-is-a-joke]

Filming people without their consent is a massive issue of not only privacy but ableism that's been going on for many years.

It started out with filming more visibly disabled people, like high support needs autistic people having meltdowns in public and (especially fat) disabled people literally just using mobility aids, but once that was deemed less acceptable it moved to other things. Filming people acting "weird" in public. Eating weird foods. Falling asleep in weird places. Wearing weird things. Stimming. You get the idea. It's no longer safe to be visibly weird in public and that's an issue for a lot of disabled people. I recently had to lay down on the floor of a department store because I had an ME crash while out shopping. Not only did I have to worry about the normal things like people coming up to ask me if I'm ok, I also had to worry about some video of me at my lowest point, when I'm suffering immensely, being shared around as "haha look at this weird bitch on the floor". It's upsetting. It's scary.

And then there's fakeclaiming. A fun trend where people will film us in public to "prove" there's some kind of huge epidemic of people faking disability. Spoiler alert: there is not. Most of the time the people they film are real disabled people who don't fit into the expected mold for disability, usually service dog teams or people who use mobility aids who don't "look sick". And you would think this trend would be some kind of abled nonsense, but it's not. It's often other disabled people doing the fakeclaiming. Yes, there are some times when it's obvious a service dog isn't trained properly, but other than that, it's damn near impossible to tell if someone is faking a disability, and you're much more likely to target a disabled person than a faker. I'd love to say this trend was new, but it's been going on since the days of "the people of walmart" where many of the people posted were fat mobility aid users, always with the assumption that they used it because they were too fat or lazy to move on their own. In fact, the image of a fat person in a mobility cart has become almost synonymous with "lazy". It's one of the things that drove me to get my own expensive power wheelchair, to avoid the judgmental stares in the grocery store when I was just trying to exist, to avoid the fear of public shame. Even now when I stand up from my chair to walk to the bathroom stall or reach something on a high shelf, I watch the corners of my vision for that telltale phone in the air. I feel like I'm never safe from the judgemental eye of the internet, even when I'm logged off, and I'm sure I'm not the only person who feels that way.

Tik Tok, YouTube, Instagram, these places are all great for disabled people, especially those of us without access to the outside world. But it's also become a source of great anxiety for anyone who's uncontrollably "weird", mostly disabled people. Leave us alone, I'm begging you, we just want to go to the fucking grocery store in peace and safety.

Tl;dr

Stop filming people for "acting weird" or "faking a disability" in public. It's ableist, it's invasive, it's creepy, and it's humiliating. People don't exist in public for your amusement and especially not disabled people. You don't know who is disabled and who isn't no matter how many disabled people you've known or how sure you are that the person is faking.

[fibro-memes]

[chronicillnessmemes]

[ID: Chronic illness cat meme "But you did it yesterday" --- Yes, and today I can't move. End ID]

[forestgreenandgray]

Hey do you know what rumination is?

Rumination is probably the most common type of OCD compulsion, but I rarely see anyone talking about it. I've talked to multiple people diagnosed with OCD who didn't even recognize it as a compulsion.

Basically, if you have OCD you have terrible intrusive thoughts. They can be about anything, but common themes are fear of being a bad person, fear of hurting someone, fear of contamination. etc.

Rumination is when you get stuck in a spiral. Rumination is when you spend hours catastrophizing, overthinking, analyzing, telling yourself it's going to be okay.

I'll say it again:

Rumination is a compulsion.

Rumination is a compulsion, and that means you have to stop doing it.

I did ERP (exposure response prevention) for my OCD with a therapist! For 9 months! And it did help, but the idea didn't really click until I found this website a couple years later.

And Oh My God. It made things make so much more sense, and I was able to pull myself out of an episode even though I wasn't in therapy or on meds at the time.

Genuinely if you have OCD, or even if you suspect you have OCD, I'm begging you to read some of these articles.

Like this was genuinely life changing for me.

Here are some of the ones that were most helpful to me:

Defining Rumination

How to Stop Ruminating

ERP Exercises for Compulsive Rumination

What to Do When You're Triggered

[kelpforestdwellers]

If you need help with keeping your body clean, it's okay.

If you need help with eating, it's okay.

If you need help with going to the bathroom, it's okay.

If you cannot get out of bed at all or do any of the regular tasks of daily living yourself, it's okay.

You can mourn the losses and the difficulties. You can mourn and rage against the systems and people that often prevent people from getting their care needs met safely, kindly, and with dignity.

Just please try to remember: you are not the problem. Your care needs are not the problem. They simply are what they are.

Every person is worthy of love and genuine care, and to have their needs addressed with the maximum possible dignity and autonomy.