Everything Hurts 🤕

Dysphoria | Mental Health | Chronic Pain

[guil-t-ventz]

Just added an “​okay to reblog” tag, but it will ALWAYS be okay to reblog my personal posts. Even if I forgot to tag something. I’m very open about what I’m going through.

This works in the opposite direction too - if I reblog something that you didn’t want me to, don’t be scared to let me know! I have “don’t interact” and “don’t reblog” blacklisted just in case, but sometimes things get through anyways. I NEVER want to make anybody uncomfortable here. This blog is meant to support others going through similar things, and documenting my own experiences.

Another quick note - ask box is ALWAYS open. I’ll answer most invasive questions, and I’m always here to lend an ear to those who need to vent. Anon is totally fine. I’m here for you regardless. 😌

[thesweetiepienovels]

Some is better than none. Some is better than none. Some is better than none. Walking for three minutes, is better than nothing. Drinking a glass of water and eating a snack, is better than nothing. Wiping down the counter, is better than nothing. Small things are not nothing. Small things are not nothing. Small things are not nothing. You don’t have to achieve grand things if all you’re capable of right now is the smaller things. They are still achievements. Don’t do nothing just because you don’t think you’re capable of doing bigger things, just do something you’re capable of today. 

[persianmom-deactivated20251026]

agonizing over all the time you wasted or lost is useless. it’s gone now. you survived in the only way you knew how. doesn’t your survival deserve some recognition too?

[persianmom-deactivated20251026]

like toni morrison said, “sometimes you don't survive whole, you just survive in part. but the grandeur of life is that attempt. it’s not about that solution. it is about being as fearless as one can, and behaving as beautifully as one can, under completely impossible circumstances.”

[lichen-punk]

honestly i think the reason why it’s so common for kids to have the “it’s not a phase, mom” argument in their adolescence is less because they genuinely plan for their current state of being to remain utterly unchanged forever and more because they’re tired of having their interests/self expression/beliefs/etc dismissed as foolish due to being probably temporary

i know that when i was that age i certainly wasn’t thinking about whether or not i’d be into whatever shit i was into then when i was 80, all i knew was that i was sick of feeling like the adults in my life were just rolling their eyes and waiting out everything that was important to me at that moment

[chronictranssexuality]

"you don't owe anyone anything" You are a tar pit. Speak for yourself. I personally owe the cafe employees my dishes put away and my friends a listening ear and small scared insects a cup and a gentle trip outside. Hyperindividualism is a rancid infection borne of capitalism and willfully misinterpreted therapyspeak and I will defy it by continuing to be kind regardless of whether or not it benefits me personally

[perfectquote]

“You are so brave and quiet I forget you are suffering.”

— Ernest Hemingway

[johannestevans]

It's really funny when doctors and medical professionals don't like, meaningfully understand how comorbidity works. "oh, it's very unlikely someone would have all these rare conditions at once"

yeah. maybe that would be fair to say about say, discrete viruses. but about syndromes?

like. the conditions of the human body don't know that they're taxonomically discrete. they don't know that they have different names or lists of symptoms. if a human body has a consistent issue with say, its heart rhythm, or its inflammatory response, or its glandular response, or immune system

the reason that ehlers-danlos syndrome (EDS), mast cell activation syndrome (MCAS), postural tachycardia syndrome (PoTS), IBS (irritable bowel), autism, and even shit like coeliac and PMDD or endometriosis overlap is bc like. these are largely inflammatory issues or issues with the fascia

It's not "what the fuck, how can this person have all these different things wrong with them", bc these are largely like. syndromic definitions of how x bodily issue manifests in different systems, structures, or organs of the body

many of these conditions change in definition over time

and that's bc they're studied and understood more over time where people more meaningfully understand underlying causes and issues, such as through hormone or genetic profiles, or largely like. immune response

it's also how "rare" conditions become understood as more common over time

idk like. not to be on my soap box on this specific issue but this is what happens when you don't teach medical professionals philosophy beyond the basic ethical shit. the reason philosophy is important to medical study is so you don't mistake etymological or philological issues for scientific ones

[madanimalscientist]

I got told by a -medical geneticist- that it was extremely unlikely for someone to have both celiac and EDS because both were so uncommon so therefore I probably didn't have both, despite clear physical evidence to the contrary. I pointed out that there's enough people out there that even with low incidence of both, even assuming there was no link, statistically there were going to be people with both just by basic probability and that 'rare' didn't mean 'doesn't happen. I also pointed out I had 2 younger half-sibs with celiac and a cousin with celiac, T1D, and EDS-h, so odds are that no it wasn't as unlikely as she thought especially given that kind of family history.....She did not in fact care for my attitude. I didn't care for her lack of understanding of her own job, so the feeling was mutual.

[vaspider]

Lol I definitely have both.

[hasufin]

I think many medical professionals are very narrow-focused on their specialty, forget the rest of the body exists, and don't think of it all as an entire system.

I recall reading the book A Slow Death: 83 Days of Radiation Sickness. It's about a nuclear worker who received a lethal dose of radiation due to a prompt-critical accident while making nuclear fuel. As the title implies, he died over the course of 83 days.

What struck me about the book was, it's pretty clear his DNA was just shredded and nothing was really replacing itself effectively. His organs and systems failed at a rate consistent with their typical cellular lives. At each step of this, they brought in specialists to manage the problem: he wasn't producing erethrocytes, they brought in hematologists. His stomach lining was breaking down, they brought in gastroenterologists, &c. Each one had this faith that if they kept him going past this crisis, his body's natural healing would take over and he would get better. But looking at his body as a whole, it was obvious from very early that was Just Not Happening. Each specialist was looking at it as "Oh no, my one part is failing, I need to get him through this and the rest of his otherwise healthy body can pull him along!" except the whole damned body was going because that's what a lethal neutron flux does. And somewhere around day 30 or so they should have said "I'm sorry, this is not going to work, we are switching to palliative care" and he could have died a week or two later, but that's not how specialists think.

The body doesn't know we've divided it up into organs and systems and specific types of cells. It's just a body and each part affects everything else.

[lifewithchronicpain]

Yeah I have a cluster of diagnosed conditions that are comorbid and it was like a cascade, one problem, then another, till I’m permanently disabled. :/

But I also want to point out that people have a horribly understanding of percentages. If a condition affects only 1% of the population, then at 8 billion people on earth, that’s 80 million people with the condition.

[dogpuppy]

[bettyrightnow]

ever since i was a little girl i knew i wanted to put no effort into my appearance

[libraford]

An incomplete list of

Potions of Hydration!

Earlier this week I mentioned putting pickle juice in my water to replenish electrolytes. I work outside in a very hot and humid area, so it was very necessary.

Since then, a LOT of people have chimed in with their favorite hot weather drinks. I want to try... all of them. I've only had a few. Many of them are similar, but I still think its cool how many variations there are for 'its fucking hot out here and I don't want to die.'

So here is the incomplete list.

ORS (oral rehydration solution) (link has several recipes)

Shrub (sharaab)

Agua de pepino

Switchel

Posca

Ayran

Straight up drinking pickle juice (small doses)

Agua fresca

Sekanjabin

Pickle lemonade

Lebanese lemonade

Salted watermelon

Jamaica/hibiscus tea

Lebu pani

Ayuvedic gatorade

Soda chanh muôi

Suero

Aam paan

Sharbat

-

These ones were given to me without names, and were just lists of ingredients, to taste:

- water and umezu

- diluted apple juice with lemon and salt

-watermelon, lime juice, mint

- sparkling water, mint leaves, lemon or lime juice, cucumber

-coconut water, lime juice, salt

-salt, lemon juice, water

-orange juice, salt, sugar, water, lime or lemon juice

-elderflower syrup and lime juice in water.

There are probably more! Hydrate or die straight!

[kinfolk-of-frogs]

One of the best things I've done for myself as a disabled person is get rid of my shame around sitting or laying in weird places. Bathroom floor? Check. Random sidewalk? Check. Lobbies of various professional buildings? So many checks. It is not embarrassing or shameful for me to take care of my body but it is embarrassing for architects and city designers to value appearances over accessibility

[scooplery]

"it's just growing pains" -> "you're too young for that to hurt that bad" -> "you just need to get in better shape" -> "welcome to being old, everyone is in pain"

[fitnessadvicethatfitsinyourlife]

Drinking soda is better than drinking nothing all day. Eating ice cream for dinner is better than eating nothing for dinner. Eating salsa is better than having no produce in your diet at all.

Water is way more hydrating than soda, but soda is more hydrating than nothing. A balanced meal is way more nutritious than ice cream, but ice cream is more nutritious than nothing.

Something is better than nothing. Some hydration is better than no hydration. Some nutrients are better than no nutrients. Some produce is better than no produce.

Don't let societally imposed food guilt trick you into believing that nothing is a better choice. Nourishing your body, however you can, is always the better choice. Fed is best. Always.

[nonaferatu]

This would have had me crucified on tumblr 10 years ago but maybe we are ready for this conversation now:

If you are a socially anxious person, you have to socialize. Your panic/anxiety attacks will only get worse and trigger more frequently if you constantly avoid contact with The Public. Not saying that you need to be a social butterfly- but there is a genuine problem with not being able to order your own meal at a restaurant. And it cannot be solved by always having someone else do it for you.

This is a PSA to about 3/4s of the Portland Youth populace

[nonaferatu]

everyone who reblogs this and is like "I ordered my own tea this week" or "I only barfed once when I had to give a presentation'- you are doing amazing sweetie. Have patience with yourself, you are relearning a skill so difficult that people get 4 year degrees to do it professionally.

[ab0masum]

me when i have 'always hurts disease' and then i fucking hurts

[free-my-mindd]

[honeydewdrops333]

what doesn’t kill you makes your nervous system more sensitive for the rest of your life