You don't really think about living on reduced lung capacity until you get sick & a shower wipes you out. Or until you get sick & have to sit down cooking dinner. Or until you live by the puffer times like they're alarms, even when you're not sick. Or until you plan your days around air quality & whether or not there's resting spots & how long everything is going to take & 1001 other decisions that nobody who isn't living with a disability or raising kids with one ever thinks about. It's like that with disability. It just becomes a background app you're running that's draining your battery. Another example:
I'm used to thinking about autism 24/7, to where it's secondary nature so I don't always stay aware that I am. Until something or someone happens & I am often painfully reminded oh yeah this is an inconvenience for most people not just a way of being.
I'm not complaining, which some people seem to think I am every time I speak up about living with or parenting a disability. There are SO many choices you have to make when you have autism or are chronically ill that nobody is thinking about who isn't. And a lot of those choices could be reduced/removed if abled people stopped being spoiled little shits. I don't look disabled to you, because you never see me when my disability is affecting me to the point it would inconvenience you. I still have that extraordinary privilege. BUT AN INVISIBLE DISABILITY STILL EXISTS! Whether or not you are personally experiencing my autism or my post Covid symptoms, I AM STILL LIVING WITH THEM. And disability isn't always easily hidden. It should never HAVE to be, in the first place.
That's your psa of the day. You shouldn't need to have to be told to be a compassionate human being. You shouldn't need to have to have a visual cue "Oh hey this person is disabled let's not be an ableist asshole."
It is a very deeply disturbing thing in our society that if we aren't visibly shouting in some way that we need accommodations, we aren't treated like human beings worth accommodating. And when we are doing well with the accommodations that we need to succeed, all of a sudden we aren't considered in need of them. It always comes down to us not being worth it in some way.
Why do we have to be in crisis, & ONLY in crisis, for support to be available? That is a fundamentally insane concept in a "civilized" society. So yeah sometimes we just fucking stop making the effort, because we are always trying to make sure abled people aren't inconvenienced, but abled people rarely make the same effort to make sure we are accommodated, unless they're forced. It's so mercilessly exhausting.
Not everyone is born disabled (ie autism or etc) but ANYONE can BECOME disabled (ie Covid or etc)...why are we not building a society that includes disability instead of trying eradicate it? I don't care wtf you think about curing things, this isn't your experience. This is ours. And we're freaking tired of people telling us we shouldn't exist the way we do, & for being asshats when we try to explain the heavy cost of trying to pretend like we aren't disabled just to survive here.
If you feel the need to police my words, take a deep breath & fuck all the way off with my most insincere wishes. My entire household is autistic in varying degrees, & I don't give a squirrel's last nut your opinion on our lived experience or how we use language. I can't stress enough the fucks I don't give. 👈