*Shakes the jar they put me in* @lawfullyhopeful - Tumblr Blog

Am I taking a hot soak for the 6th time tonight? Yes.

Am I doing this just because iv been having an 3 your panic attack about my chronic pain, therefore making it worse? Also yes.

#chronic illness #actually chronically ill #crohns disease #immunocompromised #cripple punk #mine #ibs #crohn's disease #ibd #cripplepunk #fuck. something has to work. something has to fucjing work. my legs dont even hurt theyre just poppy snd twitchy #but my body refuses to recognise this as anything but a threat #something had to happen to get my heartrate down #watch. im gonna go to bed tonight ant not wake up in bleeding screaming pain #it never comes. it used to #and i need to acknowledge that #but it doesn't anymore #and i also need to acknowledge tha5 #😎me when the fear grips me

lawfullyhopeful

#memes #prednisone

Prednisone PLEASEEE kick in

I'm fucking terrified and Iv been terrified all night of a leg cramp

#crohns disease #ibs #immunocompromised #arthritis #rheumatoid arthritis #chronic illness #actually chronically ill #ibd #crohn's disease #cripple punk #cripplepunk

lawfullyhopeful

Not to bitch about my job but there is no good reason that someone who scans shit all day is required to stand

lawfullyhopeful

Life update!

Now I scan shit sitting down!!! :D

#mine

Me walking 5 blocks this morning: woaw I feel almost no pain :) maybe I really am healing

My legs, at midnight: oh, looks like we're late. Opsies!

hi-yenas

Able-bodieds when they join cripple punk and realize they cant relate because everyone is talking about incontinence and wheelchairs and canes and blood tests while they just have depression and anxiety

#text #neg

Getting rid of NSFW was such a bad idea because now we have freaks in the incontinence tag

#incontinence #chronic illness #actually chronically ill #ibd #crohns disease #crohn's disease #ulcerative colitis #uc #u.c.#cripplepunk #cripple punk #use some other fucking tag jesus #unless your a freak who just so happens to be legitimately incontinent #you should probably know better #diapers #mine #text

lurinoodle

Hey!! I stumbled upon your post about UC, and, my girlfriend is just going through the very same thing with a diagnosis of a severe UC for over a year now.. Is there anything that you could share as words of advice? Any hope to spare our way that things can get better? ( & I love love love your art )

Hello, and thank you !!

I'm so sorry your girlfriend is going through such an awful time. What I can say there is a light at the end of the tunnel. For me it was taking a very strong probiotic that targeted the colon. It literally changed my 6 year long severe UC into remission in 3 days. Does that mean it'll work for everyone? Not necessarily- everyone is different. But what I'm trying to say is not everything her doctor will suggest will be the answer. There's also pills now that are on the market to help with UC. I've been diagnosed for almost 10 years now, and medication for it has gone a LONG way. There's options out there, but it's okay to try home remedies as well.

As for advice, if she hasn't already get medical emergency cards from her doctor. Docs are going to say 'avoid stressful situations' because stress is the trigger for UC, but we all know that's impossible. The medical card will inform spaces with private bathrooms that, by law, have to allow her to use it.

Healthline also has an IBD app that connects people with UC and IBS in a informative, community kind of way. I totally recommend it to have her feel she isn't alone and to help with specific advice. It's also okay to call off work/school when flares are really bad, and if it's option down the line to work from home so she's always near the restroom.

Because all in all it boils down to having her be as comfortable as possible. Severe UC is tough, so please make sure she's taking Slow Release Iron, Vitamin D, and drinking plenty of water on top of her medication. The disease relies on how well you're taking care of your body, so those additional meds are a must. Try out different remedies like I mentioned before too, but also let her know it's okay to tell people about her disease. For the longest time I held shame, but in recent years I've been more open about it and it's made me feel better about myself and my situation. People call me IBS Warrior now, and while it's a meme, it does feel pretty empowering not gonna lie.

I hope any of this helped! She's got this, and it sounds like she has an amazing partner to help her through it. Of course if you have any other questions feel free to reach out!

#not my ask #text