i'm housebound and unable to work or donate.

i will share donation posts on main if contacted. 26, transneutral they/it ace

[nark-my-words]

i don't tag any tws on this sideblog, sorry, it's not something i expect to use much beyond saving posts and venting. My only tags are #disability and #fat liberation and #antipsych and #ableism and #advice and #intersexism and maybe #positive

expect discussions about fatphobia, ableism, intersexuality, and medical abuse

i'm physically disabled and follow cpunk stuff and believe in those beliefs, but don't personally feel comfortable calling myself the slur itself bc I'm ambulatory and don't have the kind of physical disbility helped by mobility aids

i am autiadhd and i know the difference between my neurodevelopmental disorders and my neurological sleep disorders and so should you lol

I have other health stuff going on in various systems, but I'm not comfortable listing my entire medical history and personal information on tumblr. If something comes up, it'll come up

I'm fat (more small fat in the fategories. but in NO way straight sized) disabled fat people and esp disabled fat poc face intense medical discrimination and maltreatment bc of our fatness and it WILL get us killed. remember that.

main is @aeimygdala

proshippers/comshippers or whatever you call yourselves will be blocked for my comfort and safety.

I don't really care to hear about the ways some GBTQ+ men try to ignore some of their privileges.

[hell-on-sticks]

"accessibility isn't just about ramps" could we possibly wait until ramps are actually reliably available before we hand-wave them away please?

[fidelcostco]

WAIT HOLD ON I cannot fucking believe when I was like four years old my parents were cajoling me to walk with the family and trying to get me to keep up even though I kept insisting that I was "tired" until they took me to a doctor and found out my LUNGS DIDN'T WORK. how insane that we live in a world where reasonably loving parents think their FOUR YEAR OLD is trying to be LAZY. like they were mortified to be clear. adults are just so trained to ignore children's complaints as untrustworthy, kids just need discipline, they can't possibly speak for themselves. what the fuuuuck.

[fidelcostco]

YOU ARE NOT IMMUNE BTW you should always be trying to take children seriously, especially very little ones but definitely all of them. the most disempowered class basically legally defined as property and most people are like "yeah that's good actually I hate when they Loiter lol they're stupid and loud and i actually think children should stop existing. restrict their personhood more actually"

[luna-azzurra]

What helped me write trauma better is remembering that the nervous system learns predictions. If danger used to come after quiet, calm can feel threatening. If kindness used to come with a price, kindness can feel suspicious. So healing is not just “they know they’re safe now.” Healing is the slow, annoying, deeply unfair process of teaching the body that the old prediction is not always the present truth.

[bluering8]

listen to me, this is so so important: you've gotta get used to really giving it your 60% as a default. like don't half-ass it necessarily but try not to go over 70% or so of an ass. you'll feel better and live a happier more fulfilled life, and on the rare occasions where you do need to lock the fuck in you'll be able to pull off bullshit that the sad miserable wretches giving it their 100% can never dream off, because they're busy draining themselves dry and you have energy reserves to spare.

[smokingchagga]

This is actually what I was adviced to do at the work rehabilitation program I went to. Hasn't left my mind since. 10/10 solid advice

[redstonedust]

the whole "insulting someone based on their appearance is bad because it could indirectly hurt people you like who share that feature" is a good start for unlearning body shaming but i do think we need to go further and remind people that even if there was some physical trait that was magically 10000% exclusive to conservatives and creeps and nobody else ever had it, we still shouldnt be insulting them based on that. because the problem with them is not their appearance its their ideology and actions. by insulting their appearance you arent just indirectly insulting others who look like that, youre literally not making the correct point. stay on topic ya know.

[redstonedust]

also to be clear bc some people have mentioned it, theres already aspects of peoples appearance that are 10000% exclusive to a specific ideology (a tattoo of a fascist symbol, for example) but i really dont think you can count that as insulting someone based on their appearance because the appearance isn't the problem. idc if the tattoo looks good or bad i care that this person is broadcasting their fascist views to the world. i hope the difference is obvious,

[this-is-psychosis]

I often talk about reality checking and going along with it when helping someone deal with delusions, but I felt as if I didn’t really make it clear to what I meant when I said it.

Recently I saw a post similar to “how to sneakily give your delusional friend a reality check when they told you not to” and honestly, that’ll just make us lose trust for you. Because we can tell when you do that.

[can-i-make-image-descriptions]

[Image IDs: Image #1: Flowchart titled “My friend is experiencing a delusion!”

First box: Have they asked you to give them reality checks when they have a delusion. Green “yes” leads to a green box reading: Reality Check. Pink “no” leads to a pink box reading: Let it be / Go Along With It. Black “no, but im still worried” leads to a box reading: Have you asked if you can give them reality checks and they said?

Green “yes” leads to a green box reading: Reality Check. Pink “no” leads to a pink box reading: Let it be / Go Along With It. Black “they said no but im still worried” leads to box reading: Have you asked if there is anything else you can do instead.

Green “yes” leads to green box reading: Do that instead. Pink “no” leads to a pink box reading: Let it be / Go Along With It.

Image #2: Pink box with text reading: What Letting it Be / Going Along With It Is Not: (red “X” bullet points)

adding new information to the delusion / trying to send your friend deeper into the delusion

“that must be scary to believe something that isn’t real”

“keep that to yourself, the more you talk about it the more you’ll encourage yourself”

dismissing your friend’s delusions, saying “everyone thinks like that once in awhile.”

trying to distract your friend from their delusion or act as if it’s a game

What Letting it Be / Going Along With It Is: (blue checkmark bullet points)

allowing your friend to vent or express themselves ( sometimes just talking about their delusions out loud can help them question it )

“I’m so sorry that you’re going through that”

encouraging your friend to express their delusions through poetry, song, art, or other non-harmful things they enjoy

“If that becomes too over whelming for you, you can call me and ask for comfort or a distraction”

allowing your delusional friend to feel safe around you, allowing them to healthily express themselves

Image #3: Green box with text reading: What Reality Checking Is Not: (red “X” bullet points)

“Snap out of it, it’s just a delusion.”

“That’s impossible.”

“Think about it for a second, then you’ll snap out of it”

forcing your friend into the hospital

calling the police on your friend

trying to fix or stop the delusion

What Reality Checking Is: (blue “checkmark” bullet points)

“Could you describe the evidence you have for your belief?”

“How firm are you with this belief? Would you be okay with other suggestions on what could be happening?”

“You’re going to be okay, what you’re fearing won’t hurt you.”

“Can we take a step back? Is what you’re going through effecting those around you?”

“Has what you believe happened to anyone else? What is the likeliness of this being real?”

Helping your friend question the delusion or become aware of how the delusion is affecting them.

/End IDs]

[storybookprincess]

one of the best ways i’ve found to combat that inherent depressive pessimism without veering into toxic positivity territory is simply the phrase “i’m open to the possibility”

this particularly works with anything negative i’ve forecasted. “i woke up feeling like shit today, so my day is gonna suck” isn’t a particularly helpful thought, but “it’s a great day to be alive!!!!!” feels hollow and insincere when i have a pounding headache & am running on three hours of sleep

instead i’ll tell myself, “i really don’t feel good right now, but i’m open to the possibility that coffee and breakfast might perk me up a bit.” or “i’m in a lot of pain today, but i’m open to the possibility that my workday might still have fun parts despite that”

sometimes, when your impulse is to slam the door on anything good, but you’re not exactly up to going out & hunting it down yourself, leaving the door open just a crack makes all the difference

[wizardarchetypes]

u think ocd therapy is impossible to do yourself and that it's all too big to start but you can get workbooks or even just try small things.

a lot of my ritual behaviors are "checking"

self-guided ocd exposure therapy can be as simple as resisting the urge to check if your door is locked more than once and sitting with the discomfort until it passes without engaging in any reassurance rituals.

it can look like sending an email and resisting the urge to re-read it over and over again obsessing over your wording, sitting with the discomfort until it passes without engaging in any reassurance rituals.

some of my rituals are also "avoidance"

in which case it can look like checking your email inbox you've been obsessively avoiding because you're anxious about receiving a specific email you don't want to see.

and YEP! ☝️

sitting with the discomfort until it passes without engaging in any reassurance rituals.

[wizardarchetypes]

!!!

it might be hard to believe, but learning distress tolerance for things like "checking" with emails and door locks actually prepared me for the Big Ones like harm and sexual OCD themes.

I think this article from 2007 is a good introduction to the basic concepts of exposures:

Self Directed Treatment for OCD The Irony of Doing the Opposite By Paul R. Munford, Ph.D.        I remember a movie in which one of the char

that SAID, a lot has changed since 2007! the idea that exposure therapy can (or even should) prevent fears from every happening has come into question!

now the conversation about OCD exposure has turned to training distress tolerance:

...rather than aiming for the decline of anxiety (habituation) during exposure, the inhibitory learning approach to ERP teaches people how to be open-minded toward experiencing anxiety and fear when these experiences inevitably show up. Indeed, fear and anxiety (and other emotions in OCD such as disgust or guilt) are universal and even adaptive experiences, not something that need to be “fixed” or gotten rid of. Most importantly, even if they can be unwanted, intense, and distressing, these emotions and thoughts are safe. From an inhibitory learning perspective, fear extinction (and long-term improvement in OCD) depends not only on learning that feared stimuli are safe, but that it is also safe to experience the emotional response that is triggered by these stimuli.

It should be noted that all of the following procedures are still currently being researched. While there is evidence to suggest that they c

And remember at the end of the day I AM NOT a specialist. I am discussing my own OCD journey and referencing the available material on OCD exposures.

I'm not always right, and I can't know what's best for you.

Which is why I haven't recommended any of the old workbooks I've completed, because some of them are old enough that there are better ones to follow that I haven't gotten to trying yet!

I recommend doing your own reading from OCD-aware organizations:

The International OCD Foundation

The mission of the International OCD Foundation is to help those affected by obsessive compulsive disorder (OCD) and related disorders to li

Obsessive-Compulsive Disorder | Made of Millions Foundation

Obsessive-Compulsive Disorder (OCD) is an anxiety disorder that causes unwanted intrusive thoughts (obsessions) and mental or physical ritua

[lazer-exe]

I'm gonna say it, I do think that even the laziest person imaginable should have a roof over their head, food in their stomach, and access to healthcare

[wheelie-sick]

mast cell activation syndrome (MCAS) is more complex than just "having a lot of allergies." MCAS is distinctly different from traditional allergies.

MCAS is caused by a problem with mast cells, a type of immune cell in your body that acts as an alarm for invaders, having a faulty threat detection system.

mast cells release inflammatory markers called histamines in a process called "degranulation." these histamines do not attack the source of the problem directly like other immune cells do but instead act on your own cells to create responses like swelling and the production of mucus.

in a traditional allergic reaction, mast cells will incorrectly react to a harmless particle. with traditional allergies the same particles will receive a reaction every time the mast cells interact with them. in traditional allergies it is common for the reactions to improve or worsen with repeat exposure. sometimes people grow out of a traditional allergy but this takes time.

MCAS operates differently. in MCAS, mast cells will still degranulate incorrectly in response to harmless particles. the difference is that MCAS lacks consistency. in MCAS, mast cells not only incorrectly label harmless particles as dangerous but also are unable to make up their mind about what is dangerous and what is safe. MCAS is caused by not just a faulty ability to distinguish threats but also a highly heightened sensitivity to potential threats.

in MCAS, triggers for reactions will change frequently and unpredictably. things that were safe the day before may be dangerous the next day and safe again the day after. people with MCAS often have a handful of consistent triggers that will reliably produce a response. people with MCAS will also usually struggle to identify all of the things that trigger a reaction because, by the time someone has started narrowing down possibilities, the trigger has changed.

before diagnosis, many people with MCAS will build a long and disorganized list of allergies that they have attempted to narrow down. these lists will usually have new, often highly specific, triggers being added frequently as that person attempts to identify a consistent pattern behind their reactions.

while some people who are diagnosed with many allergies actually have MCAS behind it all, many people also just have a lot of allergies unconnected from MCAS.

[scoutology]

#crysobbing

[tlirsgender]

"You know what's harder than Getting Better? Living Like That" is just the thesis for my whole shit going on right now honestly. You know what's harder than doing my physical therapy? Hurting All The Time. You know what's harder than addressing my gender dysphoria? Hurting All The Time

[tlirsgender]

I'm Doing The Hard Thing and it's *easier* than how I was living before. If you make yourself feel better you will have more energy to spend on Getting Better. Nice inch nails - the upward spiral. Crawl out of your grave Thursday

[sapphling]

"drug seeking" as a patient label one of the most dogshit stupid concepts of all time. fuuuck everybody look out this guy came in here expecting medical treatment. better watch out in case he goes to a restaurant and starts food seeking

[mxjackparker]

Don't leave your friends and even acquaintances to go to the hospital alone. If they don't have someone already going with them and don't explicitly tell you they don't want you there, go to advocate for them. Outcomes for sick people change dramatically when they have someone else there to observe doctors (making them know they can't get away with negligence) and note symptoms from an outside perspective.

Going to the hospital is scary and even someone totally unprepared to be a medical advocate or physical support will be better than nothing, purely from their presence. You can grab food, be there with your phone to search if theirs dies, go in search of a doctor, distract them from pain or discomfort... go with them.

[meret118]

I don't know how anyone makes it out of a hospital alive without someone to advocate for them. It's especially important if the patient is elderly, a woman, or a minority. Basically anyone that isn't a white, straight man under 60, because if you aren't in that small group you're far more likely to receive substandard care.

One of those pamphlets or papers they give out in admittance will contain the number for the hospital ombudsmen or patient advocate. Save that! I had to contact them when they twice messed up a test prep for my grandfather by giving him food when he wasn't supposed to have any so they couldn't do the test. He was moved off that floor to the cardiac wing of the hospital, even though he wasn't in for cardiac care that time, in less than an hour after I called the ombudsmen. It was a much nicer room, and the patient to nurse ratio was better too. Document everything, and be firm but calm.

Don't be afraid to ask for a second opinion or another doctor. The best resource I found was to ask all the nurses which doctor they would use for their grandfather etc. I found him a different heart doctor doing that who was so much better than do nothing doctor he had before.

I've found, "How would you want your grandparent, sister, daughter etc treated," to be a bit magic in terms of getting them good care in general. I've literally seen medical people pause, and rethink what they're going to say after I phrase it that way. Also, women doctors generally spend more time listening to patients. I'm not saying that's always true of course, but there have been studies backing that up, and it's certainly been my experience as well. I went with my grandfather to an appointment with his GP, and reported all these symptoms I was seeing. He literally laughed in my face, and circled his age on the chart. I took him to my doctor, a woman, and it turned out he had Parkinson's.

The Internet is your friend, provided it's a legitimate medical site like the Mayo or Cleveland clinic etc. I saved my mother's eyesight finding an off label usage for a med, and found some stuff my vet ended up using for other patients.

Sorry if I this too long winded! I've unfortunately have a lot of experience caretaking.

[json-derulo]

it sucks that the overwhelming majority of medical messaging around salt/sodium is "evil poisonous substance that you're definitely already eating way too much of," because like. you do still need it. (trust me, as a POTS-haver, I've had to completely rewire my own brain about salt.) and you need more salt when the entire northern hemisphere is hot enough to fry an egg on. ever tried sucking down the recommended 64oz of hydration per day entirely as water, only to find you're peeing constantly without any of the purported benefits of being "hydrated"? assuming you don't have another medical condition that causes frequent urination, your body probably needed more salt/electrolytes to be able to hold onto that water and make use of it. if there was ever a time to keep a sports drink/pedialyte/etc within constant reach, it's when the heat index is 110°F/43°C.

[snapcracklepop-myjoints]

happy disability pride month to mean cripples, nasty addicts, people with down syndrome who arent nice and talk constant shit, wheelchair users that WILL run you over, autists that dont care and arent about to pretend to, people who lie to their psychiatrists, people that sit on the floor in public places with no benches, amputees that lie profusely about "what happened", ; to the "noncompliant", the "drug seeking", the "mean", the "difficult" and the "undeserving", and so on and so forth, i love us all and we deserve the world actually mwah mwah

[snapcracklepop-myjoints]

to people that hide contraband in their assistive devices. to people that do party tricks they arent supposed to and people who will spit on you if you ask them to do party tricks. to people that weaponise the infantalisation of disabled people for their own purposes (theft et. al.). to the people who "misuse" their medication and people who dont take it at all. to my mother, who takes out her hearing aids when she doesnt want to hear shit anymore but will still pretend to be listening so you dont catch on. to people who sleep all the time and to people with "abnormal" circadian rhythms who are unwilling to alter their sleep/wake cycle to best appeal to societal (and moral) expectations. to people that complain loudly about inaccessibility and refuse to try and "make it work". to people that charge money for invasive questions and people that pretend not to understand the question at all.

[five-thousand-loaves-of-bread]

AAC users who swear profusely <3