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@our-disabled-experience
intro post!
hello! this is Our Disabled Experience, a blog based off of many other experience blogs. this blog is dedicated to user-submitted experiences of living with disabilities. will also reblog disabled experiences we stumble across in the wild.
all types of disabilities are welcome. users may submit anonymously.
hii, i found out i'm alexithymic today during my therapy session and i wanted to ask whether that's a disability
have a great day/night
hi! alexithymia can definitely be disabling! for me personally it's an issue in that it's very difficult to know what i'm feeling, mostly because my feelings usually manifest physically rather than mentally/emotionally, and along with being physically disabled this can both raise my pain level and obscure other pain signals. so yeah, it's a whole confusing mess for sure!
i found a good tumblr post/infographic on this when looking for more info if anyone wants to read it! https://www.tumblr.com/my-autism-adhd-blog/767041008119726080/ways-difficulty-identitying-and-describing?source=share
side note ur my first ask on this blog. so hi!
^^^ also here's a picture that shows parts of the body associated with physical sensations/activation from different emotions that people feel
Say you break your ankle. You could know everything there is to know intellectually about the injury. Even with this vast knowledge, you will still experience physical pain.
Now take this logic and apply it to things like ADHD, autism, clinical depression, and other less visible/divergent disabilities. You cannot think your way out of feeling.
That is to say: you are not a bad, lazy, or selfish person for struggling, even if you know why you are struggling.
Also there's nothing wrong with having a disability. Being disabled isn't like a broken ankle because there's nothing wrong with you when you are who you are. Even when you are treated unfairly because of it.
Wait what's a buildings fire evacuation plan if you aren't supposed to use the elevator to get down
You go down the stairwell/fire escape. Is that weird?
But what if you have a walker or a wheelchair??
in america at least, in this situation, there isnt one. either your loved ones or the firemen can get you out using the emergency fire escapes or stairs, or you dieĀ
That's fucking horrific, thank you
āfunā little story:
last summer my friend who is an amazingly talented artist and i were in this super tall building, and sheās in a wheelchair and iām pushing her around the room. itās an art exhibit and some of her art was chosen to be showcased there and so itās all fine and dandy until suddenly an alarm starts going off
a FIRE ALARM
everyone starts running for the stairs and my friend just looks at me with this forlorn look on her face
āi canāt go down the stairsā
but iām a stubborn bitchĀ āiāll carry youā
āwhat about my chair? itās too expensive for me to be able to get another one if i canāt get this one backā
āiāll carry that tooā
and i did. we went to the stairs (by then most people from our floor were gone) and i lifted her up in a firemanās carry over my shoulder and then lifted her chair up and used the ridiculous amount of adrenaline that was coursing through my veins to make it down approximately 20 half-flights of stairs until we met some people exiting lower floors, one of which who kindly took the chair. I changed positions so i was holding my friend bridal-style which was, somehow, easier and the person who took her wheelchair (with her permission to handle it of course) accompanied me to the ground floor and then out the doors
basically there is no real protocol for people who canāt use the stairs in an emergency. itās up to the people with them, if anyone, to help them or the person to somehow make it down the stairs alone, unassisted
thank fuck that it was just a faulty alarm system, because if i was unable to carry her down those stairs and the building was on fucking fire???? then i donāt know what would have happened to her, but i donāt think it would have been very good.
itās fucking ridiculous and ableist to the absolute max.
I use a cane. When I did a day-long fire safety training at my northeast American university (UMass Amherst), I asked that exact same question: āwhat am I supposed to do if the fire alarm goes off and Iām in my lab on the twelfth floor?āĀ
the fire marshal hemmed and hawed for a while and then said to take the elevator- youāre supposed to leave it free for the fire department to use and they want able-bodied people out fast not waiting for elevators. if the fire alarm has just gone off the building probably hasnāt suffered enough structural damage to make using the elevator dangerous, and modern elevator wells are heavily reinforced. many large and high-trafficked buildings on my campus have fire rated elevators that link in with the fire alarm system so they wonāt let you off on a floor with a possible fire.Ā
if the elevator isnāt working, wait in the stairwell and call the fire department to let them know where you are. modern stairwells are also heavily reinforced- it might not be pleasant but modern building code usually requires fire-resistant stairwell doors in office and big residential buildings, also to help firefighters get in and out safely. older buildingsā stairwells may or may not be retrofitted with fire-resistant doors but a stairwell is generally the safest place to wait if you canāt get out.Ā
what happened to your friend was horrible, and iām very glad you were there to help her out, but you can absolutely use the elevator to evacuate if itās not shut down. those donāt-use-the-elevator rules are for abled people.Ā Ā
This is GOOD TO KNOW. why do they not tell people this??
Okay, firefighter here. If you are not physically able to use the stairs, and the elevator is NOT compromised, use the elevator. But you MUST be ABSOLUTELY CERTAIN that the elevator is NOT compromised before you get into it, because there is always the chance that once you get into it, you may not exit it. Power could go out. The elevator may actually BE compromised and you just couldnāt tell from where you were until you were in there, and it suddenly shuts down on you. Something else could happen.Ā
Understand that once you enter the elevator, you could POTENTIALLY be taking your life into your hands there.
It is NOT LIKELY, to be perfectly honest. Itās only in a pretty catastrophic scenario - think the Twin Towers, USA, on September 11th - that the elevators will be compromised and out of service. But there is a NOT ZERO PERCENT CHANCE and you need to understand that and accept it.
As for leaving the elevators free for the firefighters, okay, hereās the deal. Unless your nearest fire station is literally right next door? Your first on scene fire truck is NOT likely to be there on scene and needing that elevator before you get to the ground. It takes us TIME to find the address, gear up, and drive to the building. Then we need to hoof it into where the elevators even ARE, so YOU HAVE TIME to use the elevator to get down to the ground floor... BUT ONLY IF THEREāS NOT A RUSH ON THE ELEVATOR! And THAT is WHY we donāt tell people this shit. Thatās WHY we tell people to NEVER USE THE ELEVATOR... because every self-entitled asshole will use it because they donāt feel like walking, and then put YOU in danger by delaying the elevatorās arrival to you.
IF, however, the elevator IS compromised, or you just canāt get it to come for you, or whatever, and you either donāt have anyone with you who has the adrenaline fueled BALLS to be able to toss you over their shoulder and hoof it down the stairs with you - because, letās face it, that is RARE AS FUCK, then HERE IS WHAT YOU DO:
You call 911 and tell the call taker that you are in the building that has a fire alarm going off, and you are not able to evacuate because of a physical disability, and you tell them what floor you are on, and EXACTLY what stairwell you are waiting at. And the very FIRST thing that the firefighters are going to do once they arrive, if it is, indeed, a REAL emergency, and not a false alarm, is come get your ass and bring you down. Whether that means carrying you down the stairs, or whether that means locking out the elevators so that no one else can override them and coming to get you themselves, they WILL come get you FIRST THING if it is a real event. And if it is a false alarm? You will probably be the first person who is not involved with the building to know, because the call-taker is going to stay on the line with you until you are under someoneās care and out of danger, or until the scene has been sorted out as real or false, and you are out of danger that way.
These are pretty standard operations in the fire service throughout the United States. There may be some minor variations based on specific municipalities, but, for the most part, this is pretty typical: LIFE BEFORE PROPERTY. So, as long as SOMEONE knows where you are - hence why you call 911 - Firefighters will come get you. You are NOT alone, and you have NOT been abandoned. I PROMISE. Itās like, our whole reason for doing the shit we do: to save lives and to break shit. Sometimes, we get lucky enough to do both at the same time.
High rise fires suck ass, and I always hated them. But the very FIRST thing I asked anytime we got one was if we hadĀ āany entrapmentsā - which is what we call anyone who could not self-evacuate for ANY reason. We aināt leaving you behind. And yes, your friend who doesnāt have the stamina to carry you down can stay with you, too. Because I would never ask that of someone, honestly.Ā
Also, just a little FYI... MOST fire alarms are false alarms. Not to make anyone complacent or anything, but, yeah. Most of them are either system malfunctions, someone accidentally hit a pull station, or someone burned popcorn in a break room. So donāt let a fire alarm freak you out until you need it to - by smelling or seeing smoke or flames.Ā
i have had multiple nightmares about this very thing because NOBODY BOTHERS TO ACTUALLY TELL WHEELCHAIR USERS THIS STUFF
I am loving these additions!
If you're disabled, this is worth the time and focusing energy to read through!!!
Dear disabled people in school, please know your rights! If you have an IEP or a 504 plan with your school, your accommodations are not suggestions; a teacher cannot refuse them. If a teacher, coach, or other school staff chooses to ignore or disregard your accommodations, you can and should report them to the school.
The school, under the Family Educational Rights and Privacy Act, will not/cannot tell the teacher that it was you who reported them, nor can the teacher question you or your class about being reported.
Remember it's against the law for the school or anyone representing/working for them to deny you your accommodations, no matter your age or grade, no matter the disability, and no matter how the school is funded.
Becoming disabled as a teenager sucks, I'm an adult now in my late 20s and I feel like everything is stunted. I feel like I'm emotionally stunted, I never got to do a lot of the things teenagers get to do I don't have a license, I didn't get to study art as much as I wanted to I sit around thinking how good I could have been if I was actually able to dive into my craft I feel like all my skills in every department are just at the stage of a teenager and I don't feel like I can evolve past it. I hate the way this feels. I want my art to be better, I want to feel mature I just don't know how to get there when my disabilities get in the way of that
Iām disabled and thatās part of who I am. Itās not going to magically disappear. So donāt pretend like itās going to. Iām a cripple and Iām proud of it.
Becoming disabled as a teenager sucks, I'm an adult now in my late 20s and I feel like everything is stunted. I feel like I'm emotionally stunted, I never got to do a lot of the things teenagers get to do I don't have a license, I didn't get to study art as much as I wanted to I sit around thinking how good I could have been if I was actually able to dive into my craft I feel like all my skills in every department are just at the stage of a teenager and I don't feel like I can evolve past it. I hate the way this feels. I want my art to be better, I want to feel mature I just don't know how to get there when my disabilities get in the way of that
