cai

[decora-kai]

Yk i wish medical professionals could actually act fucking professional and understand that being in constant pain is not something that 'everyone has' or 'just growing pains'. I want them to recognise that I'm not just a whining kid who wants attention, or an unhealthy kid who just needs to exercise. It fucking pisses me off. I'm also pissed because I feel like my level of pain doesn't warrant any help compared to others. I know some people with chronic pain are bed bound 24/7 and because of fucking medical gaslighting I feel like I'm not worthy of a diagnosis because I'm not also stuck to bed forever. Like Im with my chronic pain people's who have to deal with such bad pain that they probably will never be able to leave there house and I feel for them, but just because I'm not 'as bad' as them doesn't mean I'm just a pussy bitch.

[feathereddragonobsidian]

Being a new adult who spends and has spend most of their life in hospital waiting rooms, surrounded by elderly people. Being told "just wait untill you get older". Trying to find mobility aids, with mostly elderly people being seen in the example pictures. Elderly people being mad, because you, a disabled person, took the disabled seat.

Young disabled people exist. Young disabled people are valid. Young people can experience pain. Young people can need mobility aids and tools to help them make life easier. We exist and we are valid.

I hope some day, it will be seen that anyone at any age can become disabled. People are born every day with a disability. Mental disabilities don't dissappear with age, and physical disabilities don't just appear when you become an elderly person.

[thedisabilitybookarchive]

[ID: A poster. The logo for The Disability Book Archive is at the top. It is a large red circle with a green book in the centre. The book has a yellow book mark in the middle. The book mark has a blue flower. Around the book, white leaves. Text at the bottom of the logo reads "The Disability Archive". The logo is bordered by a thin layer of red dots.

A column of grey text below this reads:

"A collection of disabled literature"

"Searchable"

"Tag System"

"LGBTQ+"

"Fiction & Non-Fiction"

And "Submit Your Own" in a slightly transparent red box.

At the bottom of the cover, next to the tumble icon, white text reads "@thedisabilitybookarchive" and "www.thedisabilityarchive.com".

The background of the poster is the straight diagonal version of the disability pride flag. /end]

[disableddyke]

women in STEM (struggle, tribulation, exhaustion, malaise)

[p0isonp0ison]

as a kid, I was really good at the sit and reach during gym class. now? I'm an adult with diagnosed hypermobile joint problems

[curlyhaircripplegf]

my current thoughts on mobility aids I've used

Unassisted walking

Pros

Not feeling judged 

No jokes at my expense

Cons 

Ouch 

Fatigue

Cane

Pros

Reduced fatigue

Able to take weight off one problem area at a time

Cons

Hurts shoulder 

All weight on wrist

Can only assist one leg at a time

Crutches 

Pros

Able to switch gaits to take weight off problem area(s)

Very stable and balanced

Can move quickly

Significantly reduced fatigue (still affected by inclines)

Cons

Cannot hold anything

Difficulties opening doors

Difficulties going upstairs for non-fatigue reasons (you try walking upstairs and also carrying two big sticks, it's difficult)

My arms get tired (they’re getting stronger)

People love to stare

[p0isonp0ison]

the increased amount of stares & comments I get when I walk unassisted, use my cane, use my crutches is absurd. No comments when unassisted. Mostly stares, and a couple comments here and there with the cane. All the stares, and all the people gasping at me asking if I'm okay when using crutches. abled people need to mind their business!

[p0isonp0ison]

thinking about the lady who saw me standing in Target with a crutch, came up to me and said "oh my God, are you okay?" bewildered, I said yes I'm fine. she clutches her pearls & goes "oh good" then walks away as if that was a completely normal interaction.

I was just standing in self-checkout. I was just existing. abled people have gotta stop doing this to disabled people who are simply living their lives.

[chthonic-pain]

put spikes on your wheelchair's handles. wrap barbed wire around your cane or crutch so it'll hurt like a motherfucker if someone kicks or grabs it from under your hand. wear a personal alarm and pull the pin every time someone moves you without your consent, leans on your chair, takes a seat on your rollator, taps your hearing aid, steals your AAC device. scream for help when you're abducted. wail like you're in agony when people trip you up or knock into you. take pepper spray to the grocery store. take a knife to the club. leave cards that say "fuck you" under the wipers of inconsiderately parked cars and scratch access codes for bathrooms on the outside of the door. we are not begging for mercy, we're fighting dirty. we have to.

[chthonic-pain]

someone grabbed my wheelchair today and then shouted "ouch! there's spikes!"

YEAH!! GET FUCKED !!!!!!

[p0isonp0ison]

if I didn't work with kids, I'd absolutely consider doing this. unfortunately I'd get fired if I showed up with spikes on my crutches and a kid hurt themselves with it

[battle-for-dyke-island]

shout out to “gross” disabled people.

people who can’t shower/bathe people who can’t shave people who can’t wash their clothes people who need help going to the bathroom people who have nasty habits (biting nails, picking nose, etc) people who can’t brush their teeth people who can’t go to the doctor people who can’t clean their room people who can’t make their beds people who vomit a lot people who wet the bed people who constantly have diarrhea people who’s physical deformities are seen as repulsive

and every other kind of person I missed that deserves to be here too.

you are people, first and foremost. your thoughts deserve to be heard, discussed, acknowledged, no matter what. you are not lesser. you are just another person. you should never be ignored for what you can/can’t do. you deserve care.

to abled people: check yourself. make sure you listen. and you can reblog, just don’t derail. maybe don’t add on, either.

[battle-for-dyke-island]

happy July everyone

[battle-for-dyke-island]

my favorite part of this post is seeing people in the notes whose hearts have been touched. if you don’t mind, I’d like to share a few.

keep in mind: this is nowhere near everyone. Some responses were too short, some were too long - I heavily advise you to go look in the notes yourself. And I’m sure many people reblogged this with just sorting tags or nothing at all, and that’s wonderful.

I made this post for myself, mostly. while I don’t do everything on the aforementioned list, I do apply to quite a few - but, ultimately, it was for me. I never expected it to boom like this.

And yet, it did. And that is a wonderful, wonderful thing. This post has helped people, even in small ways, something I never imagined. It’s wonderful.

so here, let me add a few more I missed. some taken from notes, some of my own.

people who pee in a bag people who can’t brush their hair people who can’t wash the dishes people with stomas and catheters people who are gassy people who have constipation issues people with chronic hives/red bumpy skin/MRSA people with heavy birthmarks people with bugs in their homes/car/etc people with constant runny/bloody noses people who can’t do certain things from depression people who need help getting out of bed people who eat in bed and have crumbs in there people who can’t clean their sheets people who can’t make their bed people with shower chairs

and even more that I had to have missed. Again, please add on.

So for this July, every one after, and all the months in between, just remember: You are loved. You are not alone. The notes both below and above prove that. I promise I am not lying. You are a wonderful, beautiful person, no matter what you can/can’t do, and no matter what you look like. You deserve to be heard and listened to. Your voice and opinion matters.

[p0isonp0ison]

it has been one week since I got my forearm crutches. here's some things that have changed since switching from my cane to my crutches:

they help my pain so much more than just using the cane! having support for both legs w/o subluxing my shoulder rocks

smart crutches lead to cool conversations with other disabled people

abled people cannot stop staring at me. with my cane I got less stares and more intrusive questions. with the crutches people stare more AND ask intrusive questions

I've already been told I cannot do things at work bc my crutches pose a "safety hazard." that never happened when I just had my cane

i take up more space when walking around & it's weird to get used to

old people keep asking me where I got them. no one ever asked that about my cane

[4nemo1egend]

One of the things I don't see a lot around online is the talk about the frustration that comes with being disabled. It seems to easy to make your peace with the fact that you're disabled, that your body just has new limitations. I'm only talking from personal perspective here, naturally.

But then you get slapped in the face with new limits, new struggles, and problems. You realise you can't be like your peers. You can't be like everyone else. And you never will. And as someone with great ambition who is hard working and creative and who thrives from creating and showing people their art and work - it sucks. It sucks so much. It sucks to be given the time off of work you earned so hard only to be faced by the limitations your body and existence now have. To struggle with brain fog, fatigue, lethargy, aches and pains.

If anyone else is struggling with this and feeling frustrated with conditions out of their control, I see you and hear you. I may not be able to help but you're not alone. There's at least this one person out there who struggles too and who curses their existence every day alongside you. And ya know what? We'll figure it out somehow. And until then, we can be frustrated and angry and use that anger as fuel for our fight against the unjust universe.

[nbmudkip]

“how could you have forgotten that” i forget Everything. unless i remember

[shitposting-hobbits-to-gallifrey]

"how can you remember that" I remember Everything. unless I forget

[threadbareturnbacks]

You know what? Happy Disability Month to those who were disabled by accident. Cars, skis, ice, sand, rocks, horses, just plain bad luck. Broken bones and backs that never heal. Shoulders that can't lift or move right. Wrists that don't turn. Hands that can't grasp. Brains that don't work right anymore. Legs that don't move anymore and eyes that won't recover.

The shame, the blame, the frustration, the wishful thinking that tears you apart. The beauty of small victories and simple kindness. The community you build. Reshaping a life with no warning. Mourning for the person you once were. Joyfully embracing the person you now are. Happy Disability Month to you too (even if you aren't ready to use that word yet)

[p0isonp0ison]

what sucks about being disabled, using mobility aids & being a teacher is that every day I have to answer the same questions over & over again - "what happened to you? why do you have that cane? can I see it?" and suddenly my job is to now educate these parents & children that yes, surprise, your child's teacher is young and disabled. it means telling all the new students not to touch my mobility aid and it's hard not to get upset when all they want to do is touch it/take it from me. it's so.... ugh

[queermoths]

the physically disabled fear of what people will say/think when i start using a new mobility aid

[p0isonp0ison]

why am I so scared to ask my pt about mobility aids. theyre so helpful to me but I'm scared she'll say I don't need one & then I'll lose all motivation I have to go to pt

[p0isonp0ison]

I keep battling with myself about how bad my pain is. then today I went to pt and discovered I'm hypermobile. and after pt? oh boy everything sucked. I couldn't scoop ice cream, use a zip tie, cut something out, push open a door (granted it is particularly heavy, even according to my able bodied peers), my knees kept giving out while i walked...

has it really gotten that bad? the answer is yes! able bodied people don't struggle with this stuff