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@princessoflightbulbs
Bad Days
Honestly, the worst thing about bad pain days isn't even the pain itself. It's the removal of the independence that I do have. Like being able to drive, or just walking to the bathroom. I have to ask people around me for actual help, more than just opening a heavy door. I hate that more than anything.
Just because someone else who has the same illness as you can work full time or do more than you can, doesn’t mean you can or should do more. Even people with the same chronic illness have different symptoms and severity levels. Try not to view other chronically ill people’s lifestyles as “proof” that you should be doing more. Don’t feel guilty for doing what’s right for your body.
you ever realize how able bodied people just are not expected to do things that cause them excruciating physical pain? like they’re just. not
if i shouldn’t use my cane because i can sometimes technically walk without it, it would just hurt like a motherfucker then abled people should no longer be allowed to use potholders to take things out of the oven because i mean
well they could technically pick up a hot pan with their bare hands. it would just hurt like a motherfucker
*sees an abled person using potholders*
i just think it’s really sad that you’re giving up on yourself like that
if you use potholders how will you ever build up the calluses necessary to pick up scalding hot metal without burning yourself so severely? it’s like you’re not even trying to get better
I mean, my mother uses potholders, but she’s in her 70s. You’re just… too YOUNG to be resorting to potholders at your age.
If you start using potholders, your inability to hold hot metal will only get worse.
As a professional cook I was, and still am, able to pick most stuff up out of an oven without a pot holder. I might get blisters and maybe it will hurt, but usually it won’t
AMAZING! based on this one specific individual’s experiences i will now safely assume that it’s possible for anyone to overcome hand pain & leave potholders behind for good!!! as long as you want it bad enough, anything is possible!! make this story go viral so that all those self pitying losers who still use potholders know that there’s no excuse
☆♡LIKE & SHARE IF YOU WERE INSPIRED!!!♡☆
This made me cry. I can’t even imagine what it must be like to be potholder-bound like that, and it must have taken such incredible strength to overcome it. If someone like that can hold hot metal, the rest of us have no excuse to give up on anything.
Always reblog.
Dear assholes who tried to close the elevator on me when I asked you to hold it,
1. You’re fucking wrong, I DON’T have two perfectly good legs I have shin splints that make it impossible for me to walk to class as well as an ankle that’s been damaged so many times that I probably need surgery. 2. You’re wrong I CAN’T climb three fucking flights of stairs. I don’t have good lungs OR a good heart and if I even think about attempting that, I’ll likely pass out from lack of oxygen. Not to mention my fucking legs. 3. Youre FUCKING WRONG, there is about 5 square feet of space left in that fucking elevator and I need to get to my class on time just like you do. 4. I hope to god you don’t spend your spare time yelling at people in elevators because you think it takes 3 people to help a dude in a wheelchair to his class this dude who btw was telling you to shut up and let me ride the damn elevator the whole time you yelled. Next time, keep in mind that invisible illness and disabilities exist. Next time, remember that I shouldn’t have to tell you my entire medical history just to ride the elevator. And also fuck you.
No, It’s Not “In Spite Of” Anything...
I absolutely hate when people say “so and so did x in spite of their disability” or “so and so overcame their disability and did x.” Because really, that’s not how it works. Disability and illness shapes a person and their experiences. Most of the time, it’s not “in spite of” our disabilities, it’s because of them.
Let’s look at some historical examples, shall we?
Take FDR. He was a wealthy, pompous playboy from a political dynasty who Gatsby-ed his way through the Roaring 20s without ever experiencing the real world. He didn’t become president in spite of having polio, he became president because of it. At a time of national hopelessness and desperation, his polio put him into the real world- into a place of understanding for the common man affected by The Depression. It humanized him and it got him 4 terms. It inspired the March of Dimes which consequently ended up funding Salk’s vaccine. That’s not “in spite of,” that’s because of.
Beethoven did not make music in spite of being deaf. In fact, he revolutionized Romantic music because of his distinct lack of high notes. His symphonies, especially his later works, are all much lower than what was common at the time, and it was all because he couldn’t hear high-pitched sounds.
Frida Kahlo did not blur the lines between Expressionism and Surrealism in spite of being disabled, she did it because she was bedridden and bored. Because she was in pain and she was shunned. In the same way her relationship with Diego Rivera inspired her works, so did being disabled. She didn’t overcome anything expect societies limitations.
The truth is, disability and illness are integral parts of our identities and they do shape our lives. The worlds we build and create are not made by overcoming the hindrance of disability, they are made because of the perspective it gives up.
Erase the idea of in spite of. Erase the idea that our success comes from overcoming anything other than deep-seeded ableism.
I can't believe I have to explain this but
If someone with chronic illness seems cranky, it’s probably because they’re in pain.
How cheery would *you* be after days, weeks, months or even years of unrelenting discomfort?
Considering how many people whine when they get bruises or headcolds, it never ceases to amaze me how it comes as a shock to some that when I’m having a bad episode I’m not in the mood for putting up with bullshit.
Just a PSA that calling disabled people “differently abled” pisses a majority of us off. We’re disabled. Sugar coating it treats us like who we are is something bad. There are things we CAN’T do, not things that we do “differently.” People need to accept that.
Pain
I’ve never had a day without pain, or if I did I was too young to remember it. I was diagnosed so young, that the pain has always been there. I never had that moment of getting sick, or search for some diagnoses because my had already been named.
Maybe it’s a good thing, because I don’t know what it’s like to live without pain. So maybe I don’t really know what I’m missing. Sure there are a lot of moments where new symptoms and pains emerges but the old pains are always there. I don’t have that memory of being pain free and know that I can never go back to that.
Maybe it’s worse, because I’ve only felt pain. I don’t know what it’s like to not feel pain, and that’s just kinda sad. I don’t know how it feel for abled body people, so at times it’s makes it harder to explain my disease to them. Because I have no idea how they feel, and how to relate it to how I feel.
Part of me is wishing that I at least had one pain fee day so that I know what abled people felt like everyday. The other part of me is happy because I didn’t have to go through the pain of waking up one day and being in pain your entire life.
I don’t think there two parts will ever get along and that’s just another battle I’ll have to deal with.
person with disabilities? no. person with diss abilities. i have a gift for clever but biting comments & also my knees don’t work
Do not tell someone with a chronic illness to “think positive”. Living in pain 365 days a year 24 hours a day is torture and it’s a miracle we can think at all and don’t lose ourselves completely.
It is okay to let your illness define you. It’s part of who you are and if you’ve been suffering a long time it can shape your life and personality. It can change who you are for better or worse. Stop listening to these “don’t let your illness define you!!” Or “your illness is not your identity!!” posts. If your illness defines you and is a huge part of your identity that’s okay. If your illness doesn’t define you and you don’t see it as part of your identity, that’s okay. Just stop telling other people what should and shouldn’t define them.
If you were born as you are in a world where everyone had superhuman fighting abilities, you would be considered disabled.
If you then studied martial arts for 10 years to gain fighting abilities, you would still be disabled, because you had to put years of effort into doing something that everyone else does naturally, and because there would still be fighting moves that you’re not able to do (for example, no amount of martial arts training will make you able to throw someone across a room).
Disabled people learn coping techniques to survive in a world that was not designed for them. Even after learning the coping techniques, they are still disabled.
Being “slightly” disabled is rough. There are people who have your conditions who are living relatively normal lives. They are able to go through life without their illnesses really affecting their quality of life or getting in the way of daily tasks. There are people who have your conditions who are struggling severely. They have foundations who are willing to help them out because they’re a severe case. And then you have people like me. You struggle to do daily tasks, but because you have good days, non-profits and companies meant to help chronically ill and disabled young adults turn their noses up at you. The people like me usually struggle to get through life on their own, with the occasional support from friends and family members when we’re not seen as burdens. But then we start feeling like maybe we’re not THAT sick, and push ourselves harder. Because if we don’t meet qualifications for assistance, then we really can’t be that bad, right?
a cold truth about chronic pain
is that at one point, youll feel like you wont be able to talk about your pain, and the idea of moving on from it is taken away.
because its a constant, every day, every second agonizing challenge, and at one point, painful things stop being surprising, they stop being scary, they stop being upsetting, they stop being painful until something happens to make you remember how painful it is.
you dont get used to the pain, just used to expecting the pain, and the sadness and the agony that follows it. and soon you cant even complain about it because someone somewhere will get tired of you saying it. all the time, because they dont get that you say it because the pain is ALL the time. or theyll think you should just get used to it.
and the constant pain will take what should be normal tolerance away, so you dont even notice when something should make you scream or cry because it isnt anything compared to the pain you have every second of every hour of every day, and people will look at you like youre a freak for it, because they dont understand that pain has changed you, and shot your pain scale off the charts.
so you cant complain or cry or be angry or sad about it, you learn that people stop caring when they realize its not going away, either because theyre upset and dont know how to help, or they cant bring themselves to face that, or some other reason.
and that chronic pain is solely something you feel, and that even other chronic pain sufferers cant relate too much becausd everyone goes through it differently, so you just end up feeling so isolated.
and if people dont do these things to you, often, whether its on purpose or not, youll do them to yourself, because you cant ignore how different you are and how awful it is, and you just have to learn to accept it and deal with it, because you cant get over it, because it stays with you, forever.
and its hard to realize and understand, and even hard for me talk about it because it hurts to even think about all the pain im in all the time, and how much i just wish i was healthy and just had a day or even a minute without pain, and then its followed by having to accept that thats never going to happen.
a hard truth about chronic pain is that theres no way to talk about it without adding to the pain.
[Tweet from George Takei reads: Betsy DeVos’ Dept of Education took down a website for disabled children—info on Individuals with Disabilities Education Act is now gone. #Shame]
This is not even about politics or parties anymore. It’s not about “he won, get over it.” This is shameful. This should anger you. As a sibling of someone who has disabilities; as an adult who was once a kid with an IEP — this enrages me. Disabled students deserve so much better than this.
As someone who has used this act to get through elementary school till college, it's ridiculous to try and hide information that people need. Without this act, that people fought for their entire lives , I would not be able to survive college. Having a disability while in school is hard enough, and this administration is literally just makes it harder for kids to get the accommodations that they need. This act help people get an education and helps hem not only better themselves but their country and to take that information away is a injustice to not only those kids but America itself. I am fucking done with this administration. Disabled kids are already fighting a battle, and this is just making it fucking harder. Getting accommodations that you need is already difficult we don't need fucking Betsy DeVos to add more fucking steps.
