Some additions, from the notes and also context:
- Nobody needs to apologise for venting in the notes or reblogs. We're scared and upset and deserve to be heard.
- australians: don't give up! There's still people fighting this, it's not law yet. And even if it passes we can fight them on it. Most disabled peoples' organisations are fighting this, so organisations like People With Disability Australia and area specific groups. Membership to most of them is free if you're disabled. PWDA sends out a list of the news about us each week to keep us informed.
🔗Disabled People Against Cuts are leading a charge. There's always a way to make politicians pay attention even if we have to park our arses on their front step. Share support and resources where you can and keep an eye on the others in your community if you're able to. Talk to local support clinics about Coles and Woolworths vouchers for those facing a lot of uncertainty. And get your flu shot if you're able. Nobody needs the next protest to give everyone the flu.
- non-australians: keep watching. You might also benefit from seeing what DPAC are doing and if they ever call for international support. Supporting the disabled australians you know and refusing to be kept in the dark about what’s being done to marginalised people internationally is good preparation for lots of ways to help, it means you're ready to go if something you can help with appears and don't lose time educating yourself. Many of the situations with the NDIS have deliberately had short time frames to act, to try and stop us from having a voice.
- When I said health insurance doesn't cover disability supports, I don't mean "it's very expensive so people can't access it". I mean the services often won't take on anyone who doesn't have an NDIS plan. Even then, it's common for services to prefer people who are "plan managed" or "agency managed", meaning someone else handles our invoices, because they feel "self managed" people might not pay them fast enough.
- People have been getting "check in" phone calls from the agency. It’s secretly plan reviews for them to reduce people's funding. If they call you and you don’t have your support people with you, they are lying when they say you don't need them. Tell them to organise a time to call later so you can have your support people. This kind of warning is the only reason I knew to contact my support coordinator when I got this phone call. Others I have seen didn't know and got their plan cut. And it takes years to try and change a plan or appeal it through the tribunal.
- Someone in the notes has identified herself as a support coordinator and offered to help with questions for people concerned about their plan via DMs (thank you @andromedusia). This is very kind of her and I also hope mentioning this here doesn't cause you any trouble, very sorry if it does.
- Also, not thrilled to find out they might be phasing out support coordinators. Lots of us are dependent on them - a support coordinator is someone who helps us understand out plan and connect with supports, and often helps with advocacy too. They’ll save money on us purely because we won't know where to go or what the plans mean. They use a lot of confusing terms in the plans. I'd be screwed without my support coordinator.
- Oh they also want to use a standardised assessment tool to tell how disabled we are, after a decade of having to pay out of pocket for specialists who know us to provide reports. This is actually worse because the tool doesn’t have to be done by a qualified professional and doesn’t work on people with a lot of different disabilities. The government is very good at somehow turning "bad" into "worse".
- Yeah. 760,000 australians is actually not that many. There's 27 million people living here. 85% of disabled australians aren't on the NDIS. Now, a lot of disabled people don't necessarily need the kind of support the NDIS provides, but you know who I don't trust to make that decision? The government who doesn't want to pay for it.
- None of this fixes the existing problems with access for First Nations people or people from culturally and linguistically diverse backgrounds. I'm pretty sure a standardised assessment tool will actually only make that way worse. No room for professionals to work with cultural sensitivity and humility to understand the impact of someone's disability, or the varying ways First Nations communities may construct and talk about disability that don't necessarily align with the settler government's convenient definition. Just checkboxes.
- This isn't even our "conservative" government party in power. This is the centre/centre-left party, Labor. The 'Liberal party' (note: not liberal) would likely do worse. But I don't think there's much to be grateful for when this will kill people. And probably won't stop later conservative cuts anyway. Because we cost too much.
It means a lot to see people care about what's happening here. Thank you for paying attention and getting angry with us. Because we're angry and scared and have a right to be heard that the government is doing its best to not have to hear.
