Cosimo Galluzzi
NASA
TVSTRANGERTHINGS
Claire Keane
Xuebing Du
shark vs the universe
will byers stan first human second
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ojovivo
Cosmic Funnies
YOU ARE THE REASON
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Kiana Khansmith
hello vonnie
gracie abrams
if i look back, i am lost
blake kathryn
Fai_Ryy
Sade Olutola
ellievsbear
seen from Saudi Arabia
seen from Spain
seen from United States
seen from Iraq
seen from Japan
seen from Mexico
seen from Singapore
seen from Türkiye
seen from Belgium
seen from United States
seen from United States
seen from Singapore
seen from Bolivia
seen from Malaysia
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@rsdthings-blog
Would anyone be interested...
in contributing to a chronic illness themed zine? I think, for the first attempt at least, I would need people to supply their answer to one illness-related question (I already know it, just don't wanna put it out there yet), and maybe what their illness is (of course, anonymously if preferred). Maybe even add some art from you guys. Let me know if this sounds fun to you!!
The problem with fibromyalgia is that it makes every activity hurt. It’s not a matter of being in too much pain to hike, to go to a concert, to work. It’s being in too much pain to sit at a computer, to knit, to sing. It’s your fingers being too swollen and sore to hold your partner’s hand. It’s avoiding movie theaters because you can’t relax without laying down. It’s baking then being to exhausted to eat the finished product. It’s texting because you don’t have the energy to talk.
Reblog this if you have a disability and you are willing to answer any questions anyone may have about said disability.
The pain bone’s connected to the pain bone
spoon theory: a low-spoons-friendly summary
it’s sort of ironic that the original article on spoon theory costs so many spoons to read, so i decided to write a brief summary for people who need it
spoon theory is an analogy
in it, spoons = energy
you get [x] number of spoons a day ([x] amount of energy), & doing things costs [x] number of spoons ([x] amount of energy)
for example, you get 10 spoons today; getting up costs 1, making food costs 2, making a phone call costs 2, watching a tv episode costs 2, etc
the purpose of spoon theory is to explain to abled/healthy people what being disabled/chronically ill is like, in a way they might find easier to understand
it highlights how little energy disabled/chronically ill people have when compared to abled healthy people, how much more energy things can cost, & how careful they have to be in prioritising what they spend that energy on
disabled/chronically ill people also use it as a way of talking about their energy levels
if you say “i’m low on spoons”, you’re not just saying you’re low on energy; you’re saying you’re low on energy because you’re disabled/chronically ill
for this reason, abled healthy people don’t get to say “i’m low on spoons”
here’s the link to the original article
also worth noting:
creator of spoon theory has said it is okay to apply it to mental illness as well.
your benchmark on whether you’re “sick enough” to use spoons is your own, so if you feel like it applies, it can apply.
Super nice things to do for someone who has depression
- Chances are their room is a disaster and they have -846 motivation to do anything about it. Helping them tidy up will make them feel a little less overwhelmed.
- Do their laundry. Even small chores seem to pile up when a person is depressed and not having clean clothes won’t make them feel any better. Washing their bedding is also great.
- Try to convince them to go for a short walk with you. There is a good chance they will feel a lot better after.
- If you can’t get them outside, at least open a window for fresh air and let some sunshine in.
- Prepare them a healthy meal with some fresh fruit. Many depressed people fall into bad eating patterns.
- If they aren’t eating enough, make sure they are taking a multi vitamin since not getting enough of a vitamin causes depression
- Make them a warm, nice smelling bath. Aromatherapy is a great way to treat depression and anxiety.
- Write them a letter or card to read for when they’re feeling really bad.
- Make them a recovery playlist with some of their favourite songs and anything up lifting.
- Make them laugh.
- Make them a cup of tea and sit with them.
- Listen to them and try to understand what they’re feeling.
Please do this, it helps it really does.
-Invite them for movies!
-Cuddle with them when they don’t want to go out
-Link them to things that makes you remember them, it’s nice to know somebody saw a pic and thought of you
-Give them space when they ask you to
if you developed a mental illness because of your physical illness please know you aren’t the only one, you aren’t weak, you have been dealing with exceptionally terrible things and the way that ends up affecting you isn’t your fault
This couldn’t be more important. Dealing with a chronic illness messes with you in so many ways (I’ve written about one such way before), and it’s pretty rare to come out of it unscathed in some way. Friends, please be sure to tend to your mental health as much as you do your physical health.
I didn’t know until recently that “Mood Disorder Due to a General Medical Condition” is a thing. It’s a real diagnosis. Having a chronic illness can truly affect mental health in various ways. If you feel like this is happening to you, your concerns are valid and you have every right to seek treatment and care for it.
Woah thank you for sharing - I’d never heard that mentioned before. Another lesser known reaction is c-ptsd (complex trauma). It can be developed from prolonged exposure to a situation from which a person has little or no hope of escape. Although its rarely written about, some chronic illnesses can really fit this criteria. People deserve to know these things can develop due to physical illness - if I’d have known I could have been diagnosed much sooner.
Chronic pain is...
Chronic pain is getting out of bed half an hour after curling up under the blanket when you finally decide that, yes, you are hurting bad enough to take pain medicine. Chronic pain is owning more heating pads than shoes. Chronic pain is feeling more tired than upset when stabbing pain pierces your elbow for no reason at all. Chronic pain is standing in a room full of people, looking around and wondering what it would be like to feel nothing at all. Chronic pain is always wondering whether the next person you have to ask for help will take you seriously. Chronic pain is constantly carrying a survival bag: medications, joint braces/wraps, topical analgesics, battery-powered heating pad/hand warmer, earplugs. Chronic pain is being disbelieved by at least 70% of the doctors you visit. Chronic pain is hunting for other people who “get it,” just so you can feel a little less alone. Chronic pain is the constant balancing act between doing enough to make yourself happy and not doing so much that your pain gets worse. Chronic pain is standing in the middle of a sidewalk, breathing as deeply as you can manage, and willing your legs to keep moving forward in spite of the pain. Chronic pain is constantly explaining that, yes, you are disabled, but no, your disability can’t be seen. Chronic pain is sometimes just breaking down and crying when the combination of your body and the world become too much to handle. Chronic pain is being forced to choose your friends carefully and your doctors even more carefully. Chronic pain is nearly falling down in the middle of the sidewalk because the sole of your foot decided it didn’t want to bear pressure today. Chronic pain is having a specialized gadget for any task requiring force or dexterity: jar openers, electric can openers, pencil/pen grips, ergonomic computer input devices, spring-loaded scissors, the list goes on. Chronic pain is an ache in your forearm, a lightning bolt down your leg, spikes in your back, rubber bands pulling on your wrists, a giant weight crushing your skull, a burning in your spine, phantom bruises on your feet, or a nail through your knee. Chronic pain is eventually realizing that your life has changed and that you will live in this horribly unfair state possibly for the rest of your life. Chronic pain is finally finding strength in the fact that you have survived and faith that you will continue.
This.
Do you have trouble sleeping? Because, for me, it has gotten progressively worse. For the past 12 days I have gotten no more than 3 hours of sleep a night. It is so hard to get/stay comfortable. Any tips?
Oh yeah, horrible trouble. I've tried melatonin before which helped for a bit (1mg at the same time, say 9:30, half an hour before sleeping, for two weeks). I took Trazodone for four years at night which knocked me out really well but it has side effects, as any antidepressant would. For now, my heated blanket is my best friend and I kind of just lay there until I'm so bored, I fall asleep.
Buy on RedBubble here!
Just want to make sure everyone sees this because I’m really happy with it and I think it looks so cute on the products!
It’s Invisible Illness Awareness Week
What’s something that you wish the world could see about your “invisible” illness(es)?
California peeps, I need help!
I'm finally thinking it's time to look into disability insurance. I've had to quit two jobs due to my illness, and although it's under much better control now, it's still very much an issue. Are any of you on disability? Any tips, tricks, resources you can share? I know it's much harder when you're not coming straight out of a job. Thanks!!
I was diagnosed with RSD 4 months ago. I experience pain all through my left leg. I am doing a Lyrica/Cymbalta combo now that seemed to help in the first few weeks, but now I am miserable. Any help or advice you could give would be amazing.
I'm sorry you're having to deal with that. The pain is already so hard to deal with, especially when pesky drug side effects are thrown in the mix. Just keep working at it! It gonna be hard, you're gonna want to cry and give up, but it WILL get better. It will get a lot worse before it gets better but I promise it will be worth it. Physical therapy, desensitization therapy, and some angry music (hello Nine Inch Nails and Linkin Park!) did the trick for me in my worst flare.
Every night I can’t sleep… For hours I lay in my bed feeling like I have made a mistake but I don’t know what it is. And then I realize I didn’t make a mistake. I am sick, and what I can do with my future may be limited and that scares me.
(via thefaultinourspoons)
Buy on RedBubble here!
You guys! It’s finally happening! (Okay I know this blog is “RSD” things, but comorbidity is known all too well on our little community, and this is an idea I’ve wanted to play around with for a while.) Please share. :)
Available as Stickers, iPhone Cases, Samsung Galaxy Cases, Posters, Home Decors, Tote Bags, Prints, Cards, Pencil Skirts, iPad Cases, Drawstring Bags, and Stationeries
I just posted my first design on Redbubble! This is what happens when you listen to Twenty One Pilots a little too late at night. I think this looks super cool on the drawstring bag and notebook, check them out for sure! And share. <3
Hey guys, I made this!! And keep your eyes open for some RSD Things merch soon (finally)!!!
