Life is a stage and we the actors. @sablesigyn - Tumblr Blog

i highly recommend developing an intense interest in some natural phenomenon or creature such as bugs or stars or mushrooms. you will be delighted every time you go outside

sablesigyn

Will you cut it out of me?

When will you cut it out of me?

If I try to cut it out myself would you finish the job?

How much will it cost me?

In years, in tears, in suffering...

Will you only operate if I can pay the bill?

Is life solely monetary?

What price is my life worth?

I want it out, I need it out before it spreads again.

How many lives will waste away before somebody cares?

-by Angelina Murray

(Prose on Chronic Illness, Endometriosis, Endosalpingiosis, Adenomyosis)

pcos-and-endo-awareness

sablesigyn

Chronic Fatigue is a major symptom of Endometriosis and Endosalpingiosis. There is currently no known cure for these conditions. Laparascopy (surgery) is needed to confirm diagnosis via biopsy. Surgical excision is the best treatment for these conditions, but the US Healthcare system is setup so that insurance can deny claims for surgery as elective for these conditions. Insurance will deny the first claim and may deny appeals multiple times. If you need surgery, talk to your Dr. about ensuring you have enough documentation for an appeal.

sablesigyn

March is endometriosis and Endosalpingiosis awareness month.

Endometriosis is a full-body inflammatory disease more prevalent in women, that is identified through surgical biopsy. 1 in 7 women suffer from this and it is recognized as being more painful than child birth and kidney stones, sometimes resulting in death. The cells are similar to those in the endometrium and, when active, they bleed. This causes scar tissue to continuously build up, gradually adhering and crushing organs. Cysts and lesions can form in later stages of the disease. Lesions have now been found to create their own blood vessels and produce estrogen. The cause of endometriosis is still unknown and it takes an average of 10 years for a diagnosis. Retrograde menstruation as a cause has been disproven. Unfortunately, Hormone therapy is used to treat symptoms and does not treat this disease. Excision surgery has been proven to be the most effective at removing the disease, but most surgeons offer ablation (burning tissue, which only addresses stage 1 disease and misses deep infiltrating disease). Research funding is severely lacking, despite it being as common as diabetes and being the leading cause of infertility. There is no known cure for endometriosis.

Endosalpingiosis causes the same symptoms as endometriosis, but is classified as a rare disease. Cells are similar to those in the fallopian tubes and it is often found when looking for other conditions as a tag-along. There is no existing treatment for endosalpingiosis and no known cure. Studies report it is usually found in older women, however, mine was found along with endometriosis at the age of 24.

I have had 4 surgeries as a result of these diseases, costing around 50k since insurance denied claims for the 2 excision surgeries. I lost my ability to have children and have had chronic pain since the age of 9. Research for these conditions is severely lacking and medical gaslighting delays treatment, allowing disease to progress. Unfortunately, by the time I had my stage 4 endometriosis removed, it had already caused damage to my nerves and 4 organs.

What you can do:

Believe others when they tell you their struggles/symptoms.

Talk about these diseases openly to spread awareness.

Be kind! It’s the small acts of kindness that keep us feeling connected and loved.

Donate and/or share information about foundations that promote research into women’s health.

Support political policies that value women’s health research.

Rather than bombarding us with suggestions for cure-alls, Ask what you can do to help.

im-lost-in-ikea

in honor of endometriosis awareness month, I will be complaining every time I have endo pain.

like now, and yesterday, and the day before that, and the day before that-

lucy-withthediamonds-inthesky

This one hits hard for me this week

March is endometriosis and Endosalpingiosis awareness month.

Endometriosis is a full-body inflammatory disease more prevalent in women, that is identified through surgical biopsy. 1 in 7 women suffer from this and it is recognized as being more painful than child birth and kidney stones, sometimes resulting in death. The cells are similar to those in the endometrium and, when active, they bleed. This causes scar tissue to continuously build up, gradually adhering and crushing organs. Cysts and lesions can form in later stages of the disease. Lesions have now been found to create their own blood vessels and produce estrogen. The cause of endometriosis is still unknown and it takes an average of 10 years for a diagnosis. Retrograde menstruation as a cause has been disproven. Unfortunately, Hormone therapy is used to treat symptoms and does not treat this disease. Excision surgery has been proven to be the most effective at removing the disease, but most surgeons offer ablation (burning tissue, which only addresses stage 1 disease and misses deep infiltrating disease). Research funding is severely lacking, despite it being as common as diabetes and being the leading cause of infertility. There is no known cure for endometriosis.

Endosalpingiosis causes the same symptoms as endometriosis, but is classified as a rare disease. Cells are similar to those in the fallopian tubes and it is often found when looking for other conditions as a tag-along. There is no existing treatment for endosalpingiosis and no known cure. Studies report it is usually found in older women, however, mine was found along with endometriosis at the age of 24.

I have had 4 surgeries as a result of these diseases, costing around 50k since insurance denied claims for the 2 excision surgeries. I lost my ability to have children and have had chronic pain since the age of 9. Research for these conditions is severely lacking and medical gaslighting delays treatment, allowing disease to progress. Unfortunately, by the time I had my stage 4 endometriosis removed, it had already caused damage to my nerves and 4 organs.

What you can do:

Believe others when they tell you their struggles/symptoms.

Talk about these diseases openly to spread awareness.

Be kind! It’s the small acts of kindness that keep us feeling connected and loved.

Donate and/or share information about foundations that promote research into women’s health.

Support political policies that value women’s health research.

Rather than bombarding us with suggestions for cure-alls, Ask what you can do to help.

#endometriosis #endosalpingiosis #awareness month #women’s health #research #how to help #personal

thepastisalreadywritten

digitalagepulao

BURN IT DOWN, RIDE IT OUT

2026 Year of the Horse

I've been meaning to make Lunar New Year art since forever, seems like now is the time! Going from Wood Snake to Fire Horse felt very poetic, so~~

PRINTS AVAILABLE | COMMISSION ME

edgar-allan-homo

Honestly not enough people are treating conditions like endometriosis and PCOS like disabilities. Not surprising considering ailments associated with the menstrual cycle are so normalized that affected people are pretty much just expected to live with it, but still. It's pretty damn debilitating actually.

flowercrowncrip

Disabled adults should get to choose to go to bed whenever the fuck we want, even if the support we need to do so is inconvenient or expensive.

Disabled adults should be able to go on nights out with friends until 5am then sleep in until the afternoon if we want to.

I really shouldn’t be turning down social invites because my care provider and local authority say I need to be in bed by 10pm at 26 years old.

moniquill

infinitemachine

That is wild. I love it.

freakoutgirl

one of my fears is that i'll be 7 hours down my dash reblogging things not knowing that, like, the end of the world is happening. everyone is posting shit like FUCK THE MARTIANS HAVE TOUCHED DOWN IN LOS ANGELES CALIFORNIA meanwhile i'm like here's a picture of snoopy :-)