Does anyone have Classical-like Ehlers-Danlos Syndrome?
I’m just now realizing I might have that type over the more common hEDS type which my doctor thought I had. It fits with my other "left over” symptoms they haven’t explained yet. They never genetically tested me because they thought it would be “pointless” when they thought I had hEDS (because there is no genetic test for that). So I want to know what having it feels like from a personal perspective. Also some extra stuff for clarification.
Do you have one or two copies of the mutation the TNXB gene?
Do you also have deletions in the CYP21A2 gene resulting in congenital adrenal hyperplasia and problems with cortisol etc. causing palpitations and fainting episodes? I thought I had POTS but I didn’t meet any of the criteria except for the fainting spells and heart rate.Â
Just wondering if this is a thing even worth bringing up with my doctor to investigate further, not trying to self diagnose lol.Â




















