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@spooniegoestocollege
My current view: hiding out in my friend's bathroom and watching a stream of Macklemore and Ryan Lewis performing while my friends watch fireworks out in the porch. This is reality for someone like me who has migraines that are easily triggered by lights and sounds. I miss being able to enjoy things like watching fireworks.
When you just want sleep and migraine relief, but the migraine med had caffeine in it and now your heart rate is too high to sleep :(
Watching Star Wars: The Empire Strikes Back and naturally making Darth Vader sounds because of a POTS/Costochondritis flare that has me wheezing and catching my breath
Update: Made it through the day woohoo!!
- Two hours of physical therapy (re-evaluation appointment plus work on my hip and exercises)
- grocery shopping (and only forgot three items, which is impressive considering I forgot my grocery list)
- five hours of internship in which I think I impressed my bosses so yay!
- managed to eat, take all pills (so far haha) and write a to-do list
I’m ridiculously proud of myself and feel like I made a little progress in getting my life together today. Thanks to every one who sent words of encouragement today, I couldn’t respond earlier, but they helped me power through!
Now to go eat dinner and collapse in bed.
First day of the new semester...
And starting it off with a 7am physical therapy appointment and then later five hours at my new internship. All while in the middle of a giant pain flare.
I don’t have to apologize for what I can’t do. My disability, my chronic illnesses are not my fault.
You don’t have to apologize.
carrie fisher didn’t get laid to rest in a prozac-shaped urn for us not to take our meds…………. so take your meds
A spoonie's Saturday night:
Watching a movie to distract from the pain and armed with Gatorade, super salty popcorn, heat and ice packs, and my tens machine.
Spoonie life is trying to fly back to college today but having to go to the ER instead because your body decided it wanted to have one of its worse pain flares ever
Struggling with the heat and having a major flare thanks to it. I was supposed to take photos of a football game tonight but I'm really struggling so I'm trying to focus on taking care of myself today and keeping my body cool. Took a cold bath this morning and am now watching Grease Live while icing my leg. Everything just hurts :(
Dealing with a massive headache this weekend. Luckily it's Labor Day so I didn't have to go to school today; but I start a new job tomorrow so hopefully the pain eases up a bit before then. I've been spending my day watching Netflix, doing laundry and cooking in my crockpot :)
Life update
Hi everyone!! I know it's been forever since I've posted and there are a lot of new people here so I figured I would let you all know why I've been absent. For the past two months I worked as a photography teacher and bunk specialist at a summer camp in the middle of nowhere. Being a camp counselor was amazing and I felt so comfortable there. My health was also pretty good (besides a few days and things like migraines and spraining my wrist) because of the weather, being on a schedule and being active (also huge shoutout to KT tape for making sure my knee didn't dislocate). I still had a lot of pain, there just were fewer flares. Camp ended yesterday and I'm traveling back to school now to start what should be my busiest school year yet on Wednesday. I'll try to update more soon! Can't wait to hear how you all have been doing! Love, hugs and spoons, Lauren
Friends who ask you to tell them how to decorate cakes because you're having an anxiety attack and it's something factual that you can recite are the best kinds of friends.
Really really bad pain day again :( I'm so sick of this flare. Pain meds aren't helping- I had to take a second Tylenol with codine to try to find some relief. Finally feeling like I can sleep a bit so I'm gonna try before going to see my doctor later.
Extreme flare-up :(
I've had a bad fibro and migraine flare for over a week but I woke up this morning to 9.5/10 pain. Had to miss classes and work and am barely able to function. I just want to cry constantly it's that bad.
Just got through a super intense midterm not even 24 hours after being glutened. It took all I had but I made it through and hopefully did a good job on it. Now I’m gonna go rest because I’m so exhausted after that.
Found out today that I got a 94% on this midterm! The points I missed were mainly from the multiple choice portion which I didn’t have much time to study for because of the gluten incident. And I did really well on the actual skills part so yay!
Just got through a super intense midterm not even 24 hours after being glutened. It took all I had but I made it through and hopefully did a good job on it. Now I'm gonna go rest because I'm so exhausted after that.
