#fibro warrior

[mollynix]

I just want to make it through my best friend’s wedding.

[sugar-magnolia-kahlide]

I am not feeling well today. My stomach is all fucked up. I'm fairly certain it's a bug. Been getting chills, I feel weak and I'm fatigued and nauseated. I have been in bed most of the day. Either I'm sick, or my IBS is royally pissed. Also, my fibromyalgia is flaring. Fucking perfect...🙄

[chr0mesthesiac]

the moment i trusted my dr and her diagnosis: i was expressing my frustration to her about my symptoms getting worse and i said “i don’t know what else to do” and she said

“figuring out what to do isn’t your job, that’s mine”

in that moment i knew that she would have my back no matter what diagnosis came up or if it changes at all

[whilereadingandwalking]

Do I look A. thriving B. medium or C. wrecked?

The answer is C. Unless you know me, though, you probably can’t know that I’m in the middle of an atrocious flare (and probably even if you do—I’m pretty good at masking). My body is seized up, brain fog is heavy, I’ve been overheating hard all day, and I’m liable to trip or run into things when I’m this bad because my joints loosen up and my reflexes are clumsier.

This is a reminder that invisible illnesses and disabilities are everywhere. You can’t know someone’s status or need for access by looking at them. And for many people (aka me) it’s variable. One day, standing might be fine on the bus. The next, I’m feeling cautious so take the elevator if there’s time. The next, I go to squat and legit just fall down. And then take 2 minutes to stand back up.

So next time you feel the desire to scoff at someone who looks fine but opts for elevator over stairs, the accessible seats on a crowded bus, etc, keep in mind that even the most eagle-eyed person can’t possibly know everyone’s status by sight.

[starwarskawaii]

Less of a fibro warrior and more of a fibro victim tbh

[silvandar]

Completed it, mate! Averaged about 3km a day, with pacing and rest days built in.

Walking for charity seems mad with fibromyalgia, but walking is recommended as one of the best forms of movement for my conditions. So it was a good motivation to keep me going 💙

You can sponsor me here: https://events.battersea.org.uk/fundraisers/beccajones

All donations and shares greatly appreciated.

#charityevent #batterseadogshome #fibromyalgiawarrior #disabilityawareness

[whatthefibromyalgia]

Other places to find support!

Tumblr Communities - WhatTheFibromyalgia

X (Formerly Twitter) - WTFibromyalgia

Facebook - What The Fibromyalgia

Discord - What The Fibromyalgia - Community with introduction area/live chat welcome center. Live voice chats and video chats to come in the future.

Reddit - WhatTheFibromyalgia

I would love to see anyone interested in building friendships and a support system to join me anywhere they feel works best for them. I am new to starting all this so I know it won't be an easy road but I am here to build this village of warriors one day at a time. There is currently no cure for Fibromyalgia so it looks like we are all gonna need some life long friendships.

Mrs-Q

[impressive-imperfection]

I have no idea what I’m doing.

Every time I think I have a handle on life, life proves that I, in fact, know nothing about anything.

Still, I try.

My current goal is to manage my fibro flare well enough to start working out again. When I was in remission I lost 100 pounds and got healthier than I’d ever been and I was working out 5 days a week.

Granted my idea of working out is putting on my VR headset and slicing beats with my saber.

It was fun and I worked up a sweat…and I miss it.

(I never felt that way about a Stairmaster)

Unfortunately, stress quadrupled (as it does in life), and I started gaining weight here and there, but overall I was still okay.

Then more stress triggered a flare. As it worsened, I started experiencing headaches and migraines 24-48 hours after working out. So, I started spreading out the workouts to manage it…until I had to stop all together because on top of headaches, the fatigue kicked in and the migraines became more constant. Then came the joint & hand/wrists & feet/ankle pain.

So I haven’t been able to workout with any regularity, and I’ve gained more weight. The gravity of it all has caused an emotional roller coaster that’s dipping really close to Depression Land, which I have no interest in visiting.

Long story short, with my fibro diagnosis along with the ADHD/ASD diagnosis, I’m now on meds which help. The meds don’t take the pain away, but they take the edge off, so I’m trying to put exercise back in. The dopamine from exercise can help feed my ADHD brain, help lose the weight I’ve gained, and help keep me from stopping in Depression Land.

I did 15 mins of Beat Saber on Monday and so far the pain is manageable. I’ll see how I feel tomorrow and decide if I want to try another 15 mins or maybe switch it up and do some yoga.

What exercise can you manage while in flare?