Spoon Shares

25 year old spoonie with Ehlers Danlos Syndrome, gastroparesis, dysautonimia, a gastric pacemaker and a feeding tube. My goal is to bring together people with all kinds of chronic illnesses to share their tips and tales. www.spoonshares.com

[chronicillnesshelp]

I do think that it’s pretty interesting how this coronavirus pandemic has showcased how manufactured inaccessibility is. 

When I was too sick to attend high school, I was told that any distance learning accommodations were impossible and I was forced to drop out. Now, my same high school has switched to online courses. 

When I asked my college’s disability office if they could offer any accommodations for days I was unable to make it to class due to my illness, I was told that it was not possible, and that if I missed more than the allotted amount of days I would be automatically failed. Now, my college is offering numerous online accommodations and any illness related absences are fully excused. 

When I spoke with my college about the physical problems that the increased burden of work study was causing me, they didn’t care, and said I could either work 20 hours a week or not get the money. Now, they’re funding work study for students who are either ill or who are not physically be on campus.

It almost seems like full accessibility isn’t actually impossible, and institutions just don’t want to make the effort to include disabled individuals. 

Somehow, when abled people need accommodations, they’re readily available. 

[jekabeth]

And I thought the struggles of chronically ill people couldn’t possibly get more infuriating. Go figure.

[youngchronicpain]

funny that I've been told so many times by able-bodied/neurotypical people that I'm "lucky" to stay at home all day

*intense eye-roll*

and now those same people are all losing their shit because it isn't some fun magical experience being stuck inside all day

[spoonshares]

this is what I’m sayin 

[thesufferpuppet]

I may not be “healthy”, but I can use my own freezing cold hands as ice packs. So who’s the real winner here??

[spoonshares]

I’m back after...over two years! Which led me to the topic of this video: when chronic illness keeps you from doing productive things

[sunflower-cane]

never be afraid to get out of your wheelchair, or stand up, or stretch, or do anything in it, or out of it.

the ignorance of people around you shouldnt stop you from doing what you want.

[sunflower-cane]

never be afraid to get out of your wheelchair, or stand up, or stretch, or do anything in it, or out of it.

the ignorance of people around you shouldnt stop you from doing what you want.

[spoonshares]

Find handmade, vintage, and unique goods that express who you are.

Still want a pussyhat? I’m still making them! All proceeds (except for shipping) are donated to my local chapters of ACLU and Planned Parenthood. If you’d rather your own chapter or a different charity, just specify in buyer’s notes! Prices are listed at $35, because that’s usually the low end donation suggestion, but I can lower the price if that’s too pricey for someone who wants a hat! I also do custom orders if you want a specific color or style or size (and yes, I can make baby hats!) 

[heyatleastitsnotcancer]

THEY PULLED THAT SHIT SHOW OF A HEALTHCARE BILL. 24 MILLION AMERICANS WILL KEEP THEIR INSURANCE. AND MANY OF US WILL KEEP OUR LIVES. 

Okay but seriously though, don’t let up, don’t let this momentum slow down. We will need to keep fighting. We have to keep fighting

[chronicillnessmemes]

http://www.huffingtonpost.com/entry/house-republicans-obamacare-repeal_us_58d5a4aee4b03692bea62b40

[nuestrasciudades-deactivated201]

[dynastylnoire]

[foreveraphoenix]

You might be chronically ill if..

You can tell the person drawing your blood exactly which vein is best. 

[showerthoughtsofficial]

When medication says “do not operate heavy machinery” they’re probably mainly referring to cars, but my mind always goes to forklift.

[thestarsarehaunted]

It has honestly never occurred to me that this warning was about cars and not construction equipment

[bpdsnek]

my mitochondria clearly aren’t working because this bitch has NO FUCKING ENERGY

[spacelesbians-archive-deactivat]

Mitochondria machine broke

[kamuis]

actually the funny thing is that this post is basically describing what researchers now think is the underlying cause in chronic fatigue syndrome (as in there is notable dysfunction in mitochondria that means less ATP is produced, especially under stresses)

[heavenlymuse]

[hobpd-deactivated20170705]

i want to get therapy so i can get a job but i need money so i need a job so i can get therapy but i need therapy so i can get a job but i need money–

[lifecomesatyoufast]

This is honestly me tho

[spoonshares]

This. Is. Why. Mental. Health. Including. Therapy. Needs. To. Be. Covered. For. Every. Person.

For reals guys. I'm so tired of watching my friends struggle just to get through the day because they carry the weight of untreated mental illness but can't afford to get the therapy they need and deserve. It's unconscionable. No one deserves that. It's hard enough to fight through the social stigma without adding the financial burden on top.

[sunflower-cane]

we shouldnt be calling it disability benefits, it should be called necessities.

considering the only people who could possibly call getting money in order to pay a hospital bill or debt you didnt deserve, for the meds you shouldnt have to take, for the life you never asked for a benefit is abled people who dont have these problems, will never have this debt and will never need the money to pay it off.

a necessity for disabled people is nothing more than some extra cash, a benefit for abled people, and people tend to be against the idea of the disabled getting money to help pay their medical bills because they dont understand that it isnt some get rich quick thing, its usually a life altering situation.

the idea of a disabled person not having to pay for an unfair life, and being abled to have enough money to get things that they NEED to live, to have a life that abled people get for free, is so foreign that people choose to describe it as a benefit, as an accomodation.

but tell me again about how ableism doesnt exist?

[spooniestrong]

[the-real-eye-to-see]

In 1988, these neo-Nazis disgraced themselves on the “Oprah Winfrey Show”

She used her platform to expose their ignorance and hate. 

What happened during this hour changed the course of Oprah show history forever.

Oprah says she and her producers believed they would be exposing ignorance and confronting hate, but they were wrong.

That was the show that changed the way Oprah thought about TV and how in should be used for good.

#Neo-Nazis #OprahWinfrey

[honestlyyoungpersona]

[etothevictory]

For the “try to understand the other side” squad…

[spoonshares]

I think we’re missing another aspect of the harmful “you don’t dress like that unless you want male attention” statement. Aside from the fact that someone can dress however they want for themselves or for whatever reason and might give zero fucks what men think. 

But maybe a woman is dressing to attract a man. But just because they want attention from *a* male doesn’t mean they have to accept attention from *any* male.