my chronically ill best friend just said "I feel like the side effects part of a medication commercial" SO FUCKING TRUE BABE

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my chronically ill best friend just said "I feel like the side effects part of a medication commercial" SO FUCKING TRUE BABE
I have forgotten what it was like to not be in pain every moment.
Genuinely, able bodied people cannot fathom what constant pain and fatigue does to a person.
Fuck everyone who says that escapism is bad when it comes to coping with lifelong impairments. Boo on you. 🍅🍅🍅
What makes escapism "bad" to most therapists and psychologists is the fact that it's an avoidant habit. That you're "ignoring your problems and refusing to fix them, instead just hoping they get fixed for you."
You can't fix a problem that has no one cause or cure. All we CAN really do while managing symptoms is hope that one day, a miracle comes, and we either go into full remission, or the problem magically goes away.
Even on good days, we still can't do the things we used to be able to do, or could have done if we weren't sick. So we settle for what we CAN do, and sometimes, that is escapism.
Sometimes, it's playing a videogame that makes you remember being outside and playing in the sun. Sometimes, it's collecting things that smell and taste like good memories. Sometimes, it's relying on nostalgia and living through it. Sometimes, it's spending hours listening to music that reminds you of old times while you look through old photos. Sometimes, it's distancing yourself from your social life for a few days because that social life is a reminder of everything that you can't do anymore. Sometimes, it's spending a lot of money on things that give you a small dopamine rush. Sometimes, it's daydreaming, roleplaying, or reading - imagining yourself with a completely different life where you aren't sick.
That may be "escapism," but it is not the same as people who have very fixable problems and run from them. What we do is called coping.
Our problem isn't fixable. We don't have another option. Keep your armchair psychology to yourself.
chronic nausea flag!
color meanings:
dark green to represent nausea, stomach pain
dark blue to represent disorders, conditions, and other symptoms that cause nausea (whether physical or mental)
lightish blue to represent chronicity and frequency
purple to represent pain, fatigue, exhaustion, and/or discomfort
made by blue, we’re just posting for cloud! tagging @radiomogai!
does the grief ever just hit you that youre disabled now and will never be able to do the things you love ever again
me mentioning to someone that i’m pretty nauseous and them asking me if i need to stay home from an event. girl if i stayed home every time i felt like vomiting i would literally never leave my house ever
Ok nonjirai related post but i need help figuring out if what i have is chronic fatigue or at least something similar to it
Everyday for the past two years ive been tired 24/7, i wake up tired and go to bed tired and everything in between. BUT i sometimes get excited/ loud and energised around my friends, but if i am like this it usually lasts max a few hours and im completely wiped out the next day. My head always hurts, my stomach always hurts, im always zoning out, it doesn't matter how much sleep i get. I do have anxiety, depression and (suspected, currently trying to get a diagnosis) ADHD- which definitely affects this. Ive also been regularly, almost constantly nauseous everyday since i was like 8/9
Idk i just want other ppls opinions
Things I wish I knew before I got diagnosed with a chronic illness
You’ll forget - Sometimes you’ll straight up forget you have a condition, that you have a disability, and that others don’t feel like you
Your most important job is to stay alive - Everything else is secondary, as long as you stay alive you have achieved something
It’s okay to cry - It’s normal, chronic illness is sucky, but don’t cry for too long or focus too hard on everything that’s wrong because it will make things worse
Your body is in a war, be kind - Your body is constantly fighting against itself, give it time to rest and heal, eat food and drink, do what you can to aid in the battle
If you feel like you can’t do it, you can - Have a cry, eat some ice cream and have a nap, when you wake up you’ll find the strength to keep going
Some advice from younger me; January of 2021 (I just found it stashed away)