it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)
every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat
sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive
this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions
My aunt called me for a family outing, and I refused because my pain was reaching higher levels and I knew it was flaring up and I just wanted to go to bed. I told her about it, and she goes "I'm tired as well, aren't I going out? I'm so much older than you, I'm still going out with all of you- "
I'm disabled.
I pleaded with my mom to convince her - I was feeling terrible. My pain was sooooooo high I was in tears. And to make matters worse, she told "if you're not coming, then we're not going as well." I felt so terrible.
EVERYBODY told me to suck it up and come along. A cousin was even so sure of why I was hurting, and blamed me for my pain. Told me that I should've listened to her and not done x and that's why I'm in pain.
I'm disabled. I have chronic pain.
And my own mother gave in to peer pressure and I was surrounded by ableists convincing me, blackmailing me to go along with them just so that they don't have to face the guilt of leaving someone behind. It was one of the worst days of my life.
I ended up going, and I cried that night because I was in so much pain. I had been on a bumpy car ride while my arm was flaring up.
Able-bodied people, if you're reading this — please understand that when a disabled person tells you to go somewhere without them, just go. Telling them that you would stay would only make them feel more terrible. And also, believe disabled people when they say they're hurting. PLEASE. Its the one thing we ask of you.
Heyo! Today consisted of 3 and a half hours of physics, and a shit load of joint pain :D
I had to use a shower chair today, and decided I would push my internalized ableism off a very steep cliff. Sometimes I need to remind myself that using disability aids is not necessarily a bad thing.
Things I did today:
Reviewed Physics Module 1
Three and a half hours of focus session, one and a half of that spent with @studaxy in vc
Necklace #1: chrysocolla with obsidian, quartz, and selenite
Primary use: chronic pain, especially that worsened by negative emotional influence and/or overstimulation (see also "central sensitization)
Chrysocolla is known for assisting chronic pain patients with pain levels, thought to be due to the rich presence of copper which is famous among rheumatics for musculoskeletal support, and among Chinese medicine practitioners for channeling and strengthening of Chi.
Obsidian, also known to some as volcanic glass, is famous around the globe for its energy-transmuting properties and grounding from negative influence. The application for central sensitization is the blocking and deflection of harmful energetic frequencies which overload the nervous system, keep the fight-or-flight response locked in the "on" position, and close an endless loop of overstimulation and pain.
Clear quartz is known as the master crystal because not only is its piezoelectric frequency an all-purpose balancing frequency, it also amplifies the piezoelectric frequency of other crystals. Think of it as a "driver" for other crystals.
Selenite is widely regarded as a sort of Energizer battery for other crystals, needing next to no charging in and of itself. It too is a sort of amplifier for other crystals, but its main purpose is typically extending the life of piezoelectric charge, meaning the user has to charge the necklace less frequently. Selenite also has energetic cleansing properties, meaning that because its frequency is so strong and so high, lower-frequency charge is overtaken and other stones (and the wearer) are "cleansed" from the harmful resonance.
By Forest Tennant, PNN Columnist Chronic pain patients may now be told by their doctor, nurse practitioner or pharmacist that they have “ce
Chronic pain patients may now be told by their doctor, nurse practitioner or pharmacist that they have “central sensitization” (CS). This vague, non-descriptive term is unfortunate in many ways. Nevertheless, it appears to be here to stay.
Since Intractable Pain Syndrome (IPS) is a far more serious condition that requires an aggressive, multi-component treatment approach, it is essential to know the difference between IPS and CS.
Going forward, we believe that it will be increasingly difficult to obtain some medications unless you have IPS. Therefore, it is of vital importance to not only know if you have IPS, but you must be able to clearly explain it to your physicians, family and insurance carrier. If you have simple chronic pain or CS, you could be quite limited in obtaining many prescription medications.
Definition of Central Sensitization: Amplification or heightened pain above what would normally be expected from tissue damage or injury.
CS occurs when brain tissue starts to alter due to excess electric currents that originate in damaged or injured tissue. Brain tissue alteration is referred to as neuroplasticity. CS can often be recognized if pain advances, because it begins to cause insomnia and requires daily, rather than “as-needed” medication.
CS is the forerunner or precursor of IPS. Almost all persons with IPS have had or currently have CS. There is a movement among medical practitioners to recognize CS and treat it with drugs like duloxetine (Cymbalta) or pregabalin (Lyrica) to prevent it from advancing to IPS.
Definition of Intractable Pain Syndrome: Constant, incurable pain with cardiovascular, endocrine and autoimmune complications.
Only some medical conditions cause IPS. The most common are arachnoiditis, Ehlers-Danlos syndrome, brain injury and Reflex Sympathetic Dystrophy (RSD or CRPS). (Read more at link)
having a muscle knot when you have a central sensitization syndrome like ME or fibro can really be awful... like the amount of pressure it takes to get rid of a muscle knot literally feels like getting beaten up it hurts SO bad
I always wondered how anyone can stand to get a massage and then I found out that the fact that getting gently poked hurts me is yet another symptom of my ME (& fibro).
