#disability feels

[drummuso]

in the bed. straight up burning it. and by it,, well let's just say,, my legs. ow. ow .ow .ow. ow ow.ow .ow.kw ow ow

[nonbeans]

The horrible fibro feel where your skin is so fucking itchy but every time you scratch feels like a scorching pain across your skin and in your muscles.

[autistickeely]

I love that feeling of accomplishment you get when you’ve had a super productive day and got stuff done that you’ve needed to do for ages 😍

[drummuso]

looking for advice on buying my self a wheelchair while still living with my parents, and with almost no access to healthcare

does anyone have any advice on how to bring up getting a wheelchair to parents? i feel stupid worrying so much about what they'll think since i'm 21 like. but i still live with them, and we're very reliant on each other. they know about my health stuff, but not every detail. i try to downplay everything, and when scary potential diagnoses are brought up i don't mention them to them.

they know i used a crutch all last college year, and that since april i've needed two crutches almost every time i leave the house. but i know that for how accepting and progressive they try to be, they still see a wheelchair as a point of no return.

i was putting off talking with them about a wheelchair until i had a proper diagnosis or a specialist or anything tbh. i do really worry about doctors' opinions if i source a wheelchair myself without consulting a professional (despite that not being a fucking option for me rn because of the state of the healthcare service in my county)

but i found a custom chair on ebay that is almost perfect. in my price range, good sizing, good make, good shipping, everything. i can't exactly get it shipped to our house secretly like. so i feel like time is much more pressing now. and i really want to have this conversation with them before term starts too.

tl;dr: i live with my parents and need to get myself a wheelchair. how do i bring this up to them? and how do i deal with future doctors opinions on self-sourcing my first chair? will it harm the likelihood of me being taken seriously by them, and is that avoidable?

any advice is appreciated, and even just knowing that other people have gotten through similar situations would be helpful.

[nonbeans]

I have had to take a lot of time off my in person job because of this new disability and I'm somehow in the final stages of an interview for a remote job. Which is great, but I am so scared that it's just still gonna get worse and I'm gonna have to go on a leave or something.

Cause at this rate I keep getting more and more symptoms and my second opinion Rheumatologist appt isn't til October and my neurology appt isn't til November 😩 which means no reprieve from any of this until then.

[drummuso]

i hate to be a hater but man i wish they cast an actual wheelchair user for the wheelchair user in wake up dead man. ambulatory rep is important but honestly i'd prefer just any sort of actualllll rep instead hiring an abled actor so they could make sure they're ambulatory.

everything else about the movie was pretty perfect. just a little salty over that.

[lips-parted-soft-sighs]

finally gonna try and sleep a bit. medicines are helping. gonna be up and down still but hopefully i can get sleep in between doses this time. checking tumblr gives me something to do if i have to be up anyways 💖