#fibroawareness

[fibrowarriorgirl]

Had to share! Found this in 'Fibromyalgia memes' on facebook

[fbdirectory]

[coriakin-wandering]

Been trying to figure out how to start talking abouty new diagnosis of Fibromyalgia. It's an answer. It brings new meds, new therapy...OT and new PT, and pain management.

It brings a name and new research to focus on. I'm trying to allow myself to be hopeful even though I've been exhausted by this process that's stretched into years. So that's that. Still standing (sometimes) still walking forward. Still doing my best to manage my body and leave my mark on the world.

[greenbloodedhobgoblinx]

My day in a meme

[can-it-be-nap-time-now]

Post-diagnosis depression is so annoying like

I have the thing,

I know i have the thing,

I have been telling my doctors i have the thing

I’ve known I have the thing for the last five years

I’ve basically been treated for the thing for the past three years

I’ve been through the diagnostic tests for the thing knowing i have it

But being told i have the thing leaves me depressed and bed ridden for days😅

[another-suffering-artist]

You know you're an empathetic spoonie when you're glad you're home alone so no one can see the pained faces that you make

[fibrowarriorgirl]

I love it, so I can't do it

As a teenager, I really liked getting Starbucks coffee. The closest Starbucks was a 45 min travel with public transport away. And you know what, I did it often. Sometimes even a few times a week. I'd often get the question why I would put in all that effort, just to get some Starbucks. I didn't understand why people acted as if I travelled to the other side to the country. All I did was some public transportation travels. Nothing spectacular, right?

Nowadays, the closest Starbucks is a mere 10 minute walk away from me. I can even use the bus, that only takes 3 minutes. But I rarely go, even though some days all I can think about is a delicious white mocha. Why? Because it's too much. A 10 minute walk? Do you have any idea how many spoons that costs me? And I avoid public transportation at any and all costs (more about that in my previous blog post). And it sucks, because Starbucks is a small thing that cheers me up so much. It might sound silly, that a cup of overpriced coffee means so much to me, but it does.

Starbucks isn't the only thing I can't do nearly as much as I would like to. I want to go out for dinner with my partner this weekend. But I can't just come up with that on the spot. I have to make sure the restaurant is accessible to me, which is something I didn't have to do before. I realise that in itself was a huge privilege. But I can't even guarantee I can go. I can't predict with 100% certainty that I will have enough spoons. We haven't got a car, so we'd have to use public transport. We'd have to walk to a restaurant, wait a long time before we can eat and then walk back and get on a bus again. I estimate that whole ordeal to cost between 6-8 spoons. And what if I only wake up with 8 spoons? It's so frustrating to not be able to do the things I love the most.

I have been trying some low-spoon activities. I'm learning myself to knit, which is about 1-2 spoons. Video games can sometimes be a way for me to recharge, and sometimes can cost up to 3 spoons. Watching my favourite show Friends is a great way for me to recharge.

So, what are some of your favourite low spoon activities? What are some activities you can't do (much) any more due to your chronic illness?

[fbdirectory]