#histamine intolerance

[amethystsoda]

I keep my DAO enzyme in this shell I repurposed from a dollar tree blush, so now I feel like I have a magical girl compact when I take my meds ✨

[campgender]

i'm gonna fucking cry???? was still rejoicing in my bread success & so happy there are forms of bread i can still eat since i'm definitely yeast intolerant, & i was thinking like "thank god for baking powder" & then like well i don't believe in that kind of god, let's find out who we have to thank

& it turns out Alfred Bird the inventor of baking powder & egg-free custard developed them because his wife was allergic to eggs & yeast!?! 🥺🥺😭 (which like she definitely might've had histaminosis / mcas)

that's rly sweet & it's still blessing my allergic life today <3 yay yeastless leavening

[hypoallergeniccarnage]

those perfumes hit me hard they really do (T-T )

[labelma]

Chronic illness rant incoming:

Saw a TikTok today that was a girl showing what she eats in a day on a low histamine diet, and I found it genuinely so helpful and comforting to watch as someone newly diagnosed with MCAS, but the comments made me want to CRY. Every other comment was someone talking about how ridiculous the creator is, how people are just making up new rules and dietary restrictions, how we should just eat whatever, leftovers aren’t unhealthy, and honestly??? Do they understand how LUCKY they are that they’ve never heard of histamine intolerance before? That they don’t have to severely restrict their diet because so much of what people normally eat makes people with histamine issues sick? That they can happily eat 6 day old leftovers without a problem while the same thing would SEND ME INTO ANAPHYLACTIC SHOCK?

Like do people think I want to cut 80% of food options out of my diet for FUN??? Don’t you think I wish I could eat gluten or soy sauce or leftovers? I obviously wouldn’t be doing this if those foods weren’t actively making me sick, and it sucks, it fucking sucks, I hate it, I hate having chronic illnesses and I hate that I’m the person with the food restrictions who can never go out because she’s always having a flare up but I can’t DO anything about that.

I promise it’s worse for us to deal with than it is for you to hear about it.

[be-sketchy]

Me: I think I was misdiagnosed with POTS, I think I actually have HI/MCAS

Dr: what is your biggest concern? What symptoms?

Me: I feel like I’m going to die everytime I get an episode, food sensitivities, skin sensitivities, smell sensitivities, weather sensitivities, skin issues, high hr when standing, low BP, blurred vision, dizziness, weakness, lightheadedness, tingling, numbness, digestive issues, I have to eat every 4 hours or I feel like I will literally die, etc.

Dr: you know what this sounds like?!

Me:….. (hopeful for an actual answer)

Dr: ✨Anxiety✨

[theperksofbeingahugefuckingcunt]

continually baffling to me that so many doctors refuse to believe in histamine intolerance. what do you mean a deficiency in a digestive enzyme is where you draw the line. didn’t you study like. the human body.

[blistexenthusiast]

ᯓ★ February recap/report

(chronically ill & disabled version)

reading ⋆ listening ⋆ watching ☰ pretending that the Wuthering Heights “adaptation” does not exist and Charli xcx simply made a very good concept album ☰ KiiiKiii’s new music is so fun, makes me crave spring and being outside so much (bad company managing them ik ik) ☰ Death In The Business Of Whaling by Searows ☰ have been finding myself watching daily/art vlogs basically every day… I crave real life like a drug 100% of the time ☰ also have been really into watching streams of indie games that I can’t play (bc of fatigue + pain, but also cause I don’t have a gaming pc) eating ⋆ drinking ☰ (ngl it feels like I react to everything I eat and food is getting scary bc nothing feels good OR tastes good anymore) ☰ found a few new allergen friendly foods to try: ➝ Quinn’s maple almond butter filled pretzel bites ➝ Seed + Mill pistachio halva ➝ Trader Joe's madeleines ☰ I had a singular vanilla lavender latte this weekend and felt the food fixation take hold (but I lowkey should not be ingesting things of that nature lol) creating ⋆ playing ☰ after quite a bit of searching/planning/measuring/hoping I found a bike bag from a good brand that is in "my colors" that I'm going to use as a bag for my mobility aids !! slay ☰ feeling fairly devoid of creativity due to being an yet another flare… feeling "sick" makes it hard to feel capable of dreaming/doing what I would like ☰ making my peace w/ the fact that an ipad would allow drawing/modeling to become accessible for me again admiring ⋆ obsessing ☰ went to Poemo (new store down in the East Village carrying overseas art from indie artists, some of who I’ve loved for a while) and bought some stickers + keychains/charms !! ➝ art from: oliwabiu, alldollscode, & sunonebird ☰ the specific shade of 1995-2003ish icy baby blue captured in editorial photographs I love is getting more and more popular, which gives me some hope that more and more accessibility gear is made in pastel blue ☰ XG’s new concept/performance music videos (lowkey gathering nonbinary style inspo, lol) ☰ my partner has finally been sharing some of their vintage fantasy illustration inspired Magic The Gathering proxy card art online !! practicing ⋆ learning ☰ how to exist in this world with severe moral OCD and AI use becoming rampant; currently struggling! ☰ working out the realities of being an Autistic Adult in the world, and accepting (or trying to accept) that I was waiting for a general sense of maturity that isn’t coming like I was expecting it to ☰ trying to be extremely mindful of my joint/ligament subluxations and properly correcting my alignment…

[dykesynthezoid]

As someone who’s had to eat at least partially low fodmap for years and now may also have to limit my diet even further to be anti-inflammatory/low histamine, I think this is all so stupid actually. I mean yeah it’s totally logical for people to avoid foods that their body reacts badly to. But it’s annoying that we haven’t gotten farther with addressing the root of the issue.

Like we know what the problem is when someone can’t digest fodmaps. We know what the problem is when someone has histamine intolerance. We know the mechanisms happening there. So why aren’t digestive enzymes more standard for treatment of ibs-like symptoms. Why haven’t we investigated and found a way to tailor the specific digestive enzymes an individual might need. And also have those enzymes covered by insurance. Why isn’t that a standard practice. Why aren’t we farther along in studying H3 and H4 involvement in histamine intolerance. Why don’t we have any differentiation in these low histamine diet lists about exactly how much histamine a certain food contains, whether they actually contain histamine at all or just a substance that can trigger histamine release.

An example: Citrus is often listed as a no-go for the low histamine diet because citrus fruits contain putrescine, which can trigger histamine release. But what none of these sources usually bother to tell you is that putrescine levels are highly variable. First, they’re highest when the fruit is at peak ripeness, and lower when the fruit is unripe or overripe. There’s also the fact that lemons are actually the citrus fruit with the lowest putrescine levels. And there’s almost never references to the fact that storing citrus at a cold temperature, ie in the fridge or in industrial cold storage, will make putrescine levels much higher than if they were stored at room temperature.

Someone with histamine intolerance who loves citrus may be able to perfectly tolerate a lemon wedge from an unripe lemon they bought at the farmers market (was never in cold storage) and kept on their counter. Like if changes to how we handle and acquire food can be made that don’t require us to cut things out of our diets entirely, why haven’t we studied that further?? Why isn’t that information more widely available??

Why does restriction have to be the end all be all??? Why is the expectation always for patients to make these big dramatic changes to their lives and then perfectly adhere to that forever?? That’s not how medicine is supposed to work. Lifestyle modification is normal, yeah, and to be expected. But for all the pressure to be on the patient to change their habits and be perfectly strict about it for the rest of their life?? Where’s the serious effort to lighten that burden. Where is it. Where the fuck is it