#hyper mobility syndrome

[autophobiastar]

Pros of hypermobility:

- scratching my back is really easy because I can contort my spine and elbows or whatever pretty easily to reach the itch

- I have a lot of great party tricks. My classmates are very impressed with me I think. Or afraid idfk.

-can crack my neck/back/knuckles with inhuman volume to assert dominance over everyone else

- I know how to re-locate most of my joints by myself

- I can fold my body into spaces that look impossible for someone my height during hide and seek so nobody even thinks to check them (cabinets, a pizza oven one time, a bookshelf, a hamper, under a couch, a cardboard moving box, the list goes on)

- I can rotate multiple of my limbs almost completely backwards with very little discomfort

Cons of hypermobility:

-ow ow ow ow ow ow ow ow ow ow ow :(



[chronically-kai]

I need some friends

I need some spoonie/ chronically ill friends

Pls I'm lonely 😭

[spooniful-daze]

That Spoonie Feeling When...

you really want to shower, but every muscle and bone in your body is stopping you from moving,plus the pain is bad enough already. You just know once you are in the shower, you are going to feel light headed and weak from exerting all that energy just to shower, not to mention the pain from also having to wash your hair. By just dreading how exhausting showering is going to be, you just want to fall back to sleep. Showering is too exhausting, and being a spoonie is already tiring.

[aeonfluxcopy]

Somebody knows if it's possible to do a homemade finger splint? I need one for my thumb knuckle...

I keep dislocating it when I try to write.

[bandom-and-fandom-gurl]

Hypermobility in Schools

This is just gonna be some ranting it Probably won’t make sense.

Sometimes people don’t understand that im always hurting. When i get hurt and have to wear braces that take up my leg people ask me, “It wasn’t that hard, why does your leg look like its in a cast" no one takes my pain seriously. What takes you 2 days to heal from could take me weeks and no one understands that. In a full leg immobiliser and an ankle brace people try and shove me down the stairs because im a “crippled lard” i wonder why I even come to school. Sometimes people are very understanding and offer to help me stand up or get stuff for me, im so grateful for those people but the bad always speaks out to me. I walk into almost every class late and feel people’s eyes on me, then i see everyone’s head turn and start snickering Im tired of never being included. Im tired of people underestimating me. When I’m out of a brace I can do almost everything you can I just have to do it slower. Im still a person. I can’t help that I have this disorder, if I could get rid of it I would in a heartbeat. I just hope someone understands

[autophobiastar]

Having hyper mobility means you could stretch veryyy lightly and suddenly hear your back crack like five times and feel your shoulder pop for no reason (help)

[spooniful-daze]

Hey spoonies, my name is Kim and I have recently joined tumblr and discovered the spoonie community. I have so far been diagnosed with fibro, hms, cfs/me, ibs, gerd, tmj, migraines, and vertigo. I’ve recently been struggling even more with dealing with these conditions because they have been more deliberating in my life lately, to the point where it is affecting my college education and relationships. It can feel very lonely and alienating, but it is really comforting to know that I am not alone and there are people out there who are going through very similar problems. I honestly find it beautiful that this community stands together and supports each other. Invisible illnesses do not have a lot of recognition, so it is easy to feel like you are over exaggerating and imagining it, but I know we are not. We need to know that what we are feeling is real, and it can be very deliberating. We are not alone, and there are other people who understand what we are going through.

[spooniful-daze]

I love being outside and feeling slightly normal. It’s nice seeing the different colored leaves on the ground and feeling the gentle wind hit your hair. But, at the same time the lurking fatigue makes me feel lethargic and disconnected from the world. I just want to be in my bed sleeping since there’s barely any energy left in me. I wish I could tell myself to snap out of it, but it doesn’t work like that.