#kesimpta

[dovecow]

This stupid thing costs $9,000 (the medication not the cat haha) and I have to take it once a month. Insurance has covered the cost of it, until all of a sudden this month they aren't. WTF?!?!?!

There's no cure for multiple sclerosis, and this medicine helps slow down the progression of it. It's helped so much! I'm pissed that today might be my last dose because health insurance is stupid and medication costs are INSANE ($9,000 per injection is ridiculous, what normal human can afford that?!?!). My neurologist and I will both have to keep bugging the insurance company, and maybe they will cover it again. Cross your fingers.

For the millionth time this past year, I have the song Butters sang in 'South Park: The End of Obesity' stuck in my head. The American healthcare system SUCKS ASS.

I love Butters so much!!!!

Almost as much as:

gif overload to cheer myself up. byeee

[thelittlegrinch]

A pile of ashes with eyeballs.

Yup, that's me. Or what I assume will be left by the time my body fries itself into oblivion. I always wanted a name for what felt like it was melting my brain, but now that I know, I don't actually feel any better about it.

Since I got an MS diagnosis summer of '25, I spent 6 months going full ostrich mode head-in-the-sand ignoring it. Then I felt so shitty, I caved and tried Kesimpta. That felt more toxic than any medication I've ever put in my system and I lasted through the loading doses and one monthly injection.

I've had lesions on my brain for years, oligoclonal bands in CSF and optic neuritis too; they've been toying with this diagnosis like a demented cat with a battered mouse since 2016. So what's the push to get me on a DMT now? Does it even matter at this point?

Nevermind the fact that if I hadn't read my MRI reports where some blessed tech quite literally spelled it out - active demyelination indicative of MS - the doctor wouldn't have even diagnosed me. Yet again. I so deeply mistrust the US medical system. My motto: "They will kill you if you let them."

Docs were not concerned about the reaction to Kesimpta then recommended Briumvi. Which would last longer in my system. 'But it's all just trial and error.' Yes, and I'm apparently an overgrown lab rat. I'm at a total loss and not sure what the way forward is here. Giving up sounds great, but for some godforsaken reason, I keep fighting to exist and maybe even lead a meaningful life. Cue eyeroll. But on we go.

[adventureswithmultiplesclerosis]

Pretty much just fell off the face of the earth for a week.

Holy hell. Just a mess.

Sinus cold hits Tuesday. I spend Wednesday, Thursday, Friday on the couch at home. I’m depressed. I’m sick. I’m fatigued and napping daily.

Saturday I start to feel a bit better. I take my Kesimpta shot a day late. Sleep hard that night. Wake up Christmas morning and things are a little better.

So we go sledding. I’m EXHAUSTED on the way out. I’m sleeping the whole way there. I feel like a noodle when I hop on my sled. I push so fucking hard and the coughing comes back.

Wake up like I’ve been hit by a truck this morning. The sledding, the Kesimpta, the head cold AND waking up in the middle of the night with a crabby baby compounded to just utter physical and mental crash. I force myself to go to work. Advil and red bull get me through the morning. Advil and Starbucks get me through the afternoon.

I would like to get off the struggle bus now.

[joseywritesng]

How does B cell therapy for multiple sclerosis work?

How does B cell therapy for multiple sclerosis work?

After Cherie Binn’s breakthrough symptoms of multiple sclerosis developed while being treated with an interferon drug, she weighed her options carefully. Finally, her neurologist prescribed rituximab. It’s a type of B cell therapy, which gets its name because it targets the B cells that cause nerve damage when you have MS. Binns, a 69-year-old nurse who works with MS patients in Wakefield, RI,…

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[adventureswithmultiplesclerosis]

So the neurologist wants me on Kesimpta.

Surprisingly I am considering it. She’s very persuasive.

She also said I appear to be in perfect health and have no new lesions so that’s good news. But what do to next?

[u2hearts]

Rituxan Infusion Successful

Well I finally was able to take my MS meds again. Last time was January 19. That was Kesimpta. I made the decision to go back to Rituxan after using Kesimpta for six months. I had 3 UTI’s, Covid and a pneumonia within that 6 months. I didn’t think it was the drug for me. I have had issues with Rituxan in the past, skin issues. I can’t say all my infusions have been smooth sailing. I just never…

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[atomsokc]

Kesimpta (Ofatumumab) Subcutaneous: Uses, Side Effects, Dosages

Good information on Kesimpta, one of the newest medications approved for treating MS.

[u2hearts]

Multiple sclerosis vs pneumonia

Multiple sclerosis vs pneumonia

I last took a Kesimpta shot on January 19. It is now the beginning of March. I had this dilemma of being behind my shot date in January. After Covid and a UTI that put me in the hospital the first time, I needed to be well before I took my shot. That ended up being about 6 weeks after the last shot Kesimpta dosage instruction is every 4 weeks. I’ve never not taken a disease modifying therapy…

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