Well, the evaluation for physical and aquatic therapy, and the four “homework” exercises I was shown during the session, resulted in a pain explosion, an explosive migraine, taking a Robaxin and three Aleve when I got home, and curling up to hide from light and sound and clothing (but not sheets) for a few hours.
It turns out it’s not just the iliopsoas muscles giving me grief. The spinalis muscle seems to be “dead”, and needs to be built up, so the longissimus muscle and the iliocostalis muscle are working over time, which is what create the majority of the pain in my back. It’s why my back is feeling bruised right now, though there were bruises on my back from that chair earlier, which didn't help.
So essentially the whole erector spinae set is messed up, and the exercises I was given is the start to correcting that. The lower pair, the part down in the hips, of the iliopsoas has likely been “shot” and turned to spaghetti as well, at least for the moment, and that’s why I had the hip weirdness last night. The fact the spinalis doesn't engage properly didn't do me any good either.
I'm sure that my new PT coach loved the fact he could nerd out at me, and that I could keep up. He’ll likely go to my former PT coach and ask her about how nerdy he can get, and she’ll bring up the fact I was bringing in Rock Tape stuff they didn't have to try, and how nerdy she, my AT coach, and I got with it. We even invented new stuff for my feet small bone weirdness.
This will be what we work on primarily, even though other bits and bobs like to hyperflex out. I only get thirty total physical therapy visits per year, so there’s no way to work in seeing the hand specialist for the fingers flexing out - I'm just going to have to see about getting the fancy rings that are actually braces to hold them in, and see if I can’t supplement those in next year’s run, after these four jokers are taken care of.
Working these four out will help strengthen the shoulders, elbows, and knees by extension (no pun intended), so there’s at least that. I'm really hating on my insurance for how people with permanent issues can’t get permanent help with physical therapy for all their parts.
Speaking of, I talked to my insurance about the referral to Johns Hopkins, and was basically told as long as my primary care doctor can prove that there can’t be a diagnosis made within the local medical system, they’ll approve the authorisation and referral to JH. So if we explain how badly rheumatology failed with making the diagnosis of even just joint hypermobility - since no diagnostics were done and it was just hand waved then ignored - and that genetics is going to take a 10 - 12 month wait, it’s possible it will go through.
Here’s hoping. I'm really sick of things hyperflexing out, and sick of my joints hurting and not having anything rheumatology’s tried helping. I'm actually so not cool with what rheumatology’s done, I don’t even want to go back for help with my fibromyalgia, which is why I'm going through the pain clinic instead, despite the fact they know fibromyalgia and arthritis well enough.
