#plaquenil

[schizoaffectively]

I have an appointment with rheumatology today, to see if another med would suit me better. I’m on the highest dose of Plaquenil I can be on, and it’s not really cutting it anymore!

Here’s to hoping we find something that helps!

[chronicillschronicpills]

My doc told me today that a medicine for Lupus is also being used to treat Covid19 so there's a shortage. Idk if it's everywhere but ppl need to be aware!

Hey! 

I don’t know why I never get notifications for my messages.

This is true. The medicine is Plaquenil (Hydroxychloroquine). I am on this medication and rely on it to function. But I do not have a severe case, a lot of people need this medication to live. 

There is a mass shortage in the US. It's been terrible. I'm on a lupus Facebook group and reading all the people's stories was truly horrible. Some people couldn't get access at all, some people only allowed 14 at a time, some people being told to ration their meds, people having to get their doctors to ring the pharmacy to tell them to give them the medication. It's really bad. 

I luckily have had no trouble refilling my prescription. I don’t even know if I have any advice here. I think the best thing is to try to get your normal prescription if you can, do not get more or others may not be able to get it.

Ive also read that theres no real evidence (except for anecdotal) that it even helps for covid 19. 

I just think it's ridiculous that a bunch of disabled people and a lot of people rely on this medication to live and to protect their organs, are coming second yet again. Disable people are always an afterthought. I really hope that you guys are all safe and have the medication you need.

Love Aston 

[sherlock-study]

Don’t fucking hoard Plaquenil.

People who have lupus (like me) actually do need to take it every day and now pharmacies everywhere from the US to Taiwan are running out.

Recently I’ve heard of horror stories like insurance companies refusing to fill a Plaquenil script for a lupus patient and thanking her for her “sacrifice”. Like, seriously dude, what? Those who are able to get theirs pay 300% more than usual.

Before this shitstorm in the US happened I was already having a hard time getting my Plaquenil prescription filled here in Taiwan. The pharmacies near my home was completely out of stock, and the one near school was back-ordered so I had to go twice to pick up everything. Fortunately hospitals are still stocked up and I can get my prescription filled there, but it’s disgusting how some patients who actually need this medication can’t access it during this time of crisis.

[midnightfunk]

Trump Has ‘Financial Interest’ in Hydroxychloroquine Manufacturer: NYT

The president’s family trusts all invest in a mutual fund whose largest holding is the drugmaker of Plaquenil, the brand-name version of hydroxychloroquine.

Can we impeach him a second time?

[spooniestrong]

[gettothedancing]

[gaybesthusband]

So the doctor call from yesterday did not mean good news.

I got hold of him this afternoon and he told me I had a melanoma that needed to be removed by a surgeon. (And one of the guys he recommended had like TITS all over his website and it made me uncomfortable.)

My mother called someone she knew and got an appointment but they needed the lab results, and the original dermatologist’s office has been so irritating about faxing the path report over. I hate dealing with all this healthcare nonsense.

It is probably very treatable (the dermatologist said 90%) but I would like the surgeon to look at it, since he would have more experience with this kind of thing, and he can’t if they won’t send it to him. I might have to go over there myself and physically free my records tomorrow.

Health care in America is ridiculous. I hate it so much. (The surgeon my beloved Sjogren’s doctor recommended was off limits to me because he was “out of network” for my healthcare, and I’m so lucky to have a mom who has connections or else I would’ve been at a loss for who to call. These seem like very important decisions--who will treat your cancer--and it seems most people just have to pick at random from a group of doctors who take their health insurance?)

Also, I found out today that being on immusuppreseant drugs is a risk factor for melanoma. And I’m very unclear on whether or not Plaquenil, which I am on, counts as one of those. Some doctors say yes and others no?

That is today’s update. More to come.

WEAR SUNSCREEN.

[clinicallychronically-blog]

Plaquenil issues

So I just started taking plaquenil and my nausea man. THE NAUSEA IS INSANE. Does this side effect go away after awhile as your body gets used to it. Tonight I'm gonna be premedicating with my compazine to see if it helps.