#possible pots

[xxbl00dsh3dbunnyxx]

Self medicated but not in the smoking weed way

But in a I have so much sodium a day that I've been indirectly managing my POTS my whole life and didn't realize how bad it actually was until today when I only ate mr noodles for breakfast and chips for my sodium today and I ended up getting so nauseous and dizzy that I stood up and almost passed out kinda way

[phantomhivestims]

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Standing up too quickly and almost falling over stimboard

Requested by myself

Note ; I think somethinys wrongs with me chat

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[emberphoenixisgoingtolivee]

can nondisabled people do THIS- *gets so overexcited about my hyperfixation that my heart rate gets too high and i pass out*

[deermioda]

computer,

how do I convince my parent im not a hypochondriac and that my problems are infact not normal and that i will not grow out of them? (...because we havent in all the years we've been alive)

quickest route, no freeways.

...

computer, do you hear me. D:<

[lunarwings-rambles]

now have a referral to a cardiologist for my suspected POTS. on one hand, yaaay figuring out what the problem is to treat it

on the other hand they're probably going to make me do some tests that are going to suck and definitely make me flare. not sure what exactly, money is on stress test and or tilt table, but we'll see when we get there.

I just want to at least feel less like im dying perpetually (preferably not at all but thats too much to ask chronic illness)

[then0rthernd0wnp0ur]

I just did my first VERY MINIMAL, “LOW ENERGY” work out for my suspected chronic illness, and I feel like I just ran a marathon. Man, maybe I’ve been underestimating my symptoms

[ocean-not-found]

Being disabled is too expensive. Knees gone? P a i n? Wrists wont hold cups of coffee?

Either wait weeks/months for physio or pain management to help with the cost of mobility aids/heating pads etc..

I've never had the nhs help with the cost of knee supports (which can be £20+), or walking sticks (mines bent at the bottom because how much weight i have to put on it to be able to walk relatively not in pain.)

Im happy though that i do have enough money to support my own health issues/problems/disabilities etc... but there was a time, literally last year, and all throughout my childhood, where i was struggling because i didn't have the money for mobility aids/helpful things.

I needed so much support from my carers because i couldn't be as independent as i liked, because pain.

[clarafyer]

Update on my health since I haven't talked about it much! I have an appointment scheduled to get started with my diagnosis journey! My mom put in some of my symptoms and that I heavily suspect that it's hEDS (I've been researching for months and wrote shit down, I am NOT getting gaslighted for ts.)

I may also have POTS, suggested by my POTSie friend, but I have less of the major symptoms for that and so my main focus is hEDS.

I'm so happy to finally start making progress though! Thanks to everyone who's supported me so far :)