#potsawareness

[leafzomb13]

The ritual shaming of having to sit on the floor at work because you got too light headed

[kkm-spn]

hi, i saw ur recent post and was wondering if you have any tips for managing chronic illness! i have severe pots and am in a wheelchair and i’m really struggling to find thing that help. also i absolutely love your fics ! 💕

hi!!!! thank you so much, i’m really glad you like the fics!! i’m honestly still trying to navigate my pots. i got diagnosed about two years ago and i unfortunately live in an area where absolutely no doctors know how to treat it. so i actually am currently in the car to see a pots specialist at the mayo clinic in florida! it’s like a 15 hour drive😩😩 but im hoping to find out more about my pots and what i can do to help. but i will offer the few tips that i do have!

my tips-

i always have my fan with me. it is LITERALLYYYY a life saver… it also has a flashlight as well as doubling as a portable charger! i’ll try to link it.

i also always carry salt on me. anytime i go to chick-fil-a (if your not from the united states, it’s a fast food restaurant) i also ask for a bunch of salt packets and get them for free to keep in my purse. that way if i feel like i am going to pass out, or even feel a little “potsy” i take a “salt shot.”

also another tip i learned from working at a chronic health camp.. i like to call it my pots shot. it’s literally a little dixie cup with gatorade in it and a bunchhhh of salt. it tastes DISGUSTING but it really helped me.

another one i learned from a friend is to buy and abdominal binder!! you can get them from drugstores or at some grocery store too. wear it when you are eating or if you are having a bad pots day and it really helps. it apparently helps because when you are eating, the blood pools in your stomach and causes discomfort as well as symptom flares sometimes.

also if you are in the er or at a doctors appointment and they are refusing to do a specific test/treatment on you, ask then to document that they are refusing.

those are the tips that i could think of off the top of my head. i know it’s not a lot but i hope they helped you!! you’ll have to let me know:)) also if you want tips for other health things besides pots let me know, bc i have a lot of health issues so i may be able to help lolol

here is a link to the fan that i use, as well as a abdominal binder:

the abdominal binder is not the exact one that i have, because i got mine from a local drugstore, but it’s very similar!

Amazon.com

Amazon.com

[jojosbingsu]

Well maybe we shouldn’t pass out in the shower idk

[eventuallavender]

i hate nothing more than when you’ve already resigned yourself to passing out but somehow your body keeps on fighting for consciousness. like buddy, this is way more exhausting for the both of us

[emkwithtism]

POTs is so hard to deal with! 😭 Especially in hot weather 🫠

( *´・ω)/(；д； )

[mymuseisunmedicated]

For the first time in 3 years, my POTS has unlocked a brand new symptom. Apparently now I vibrate at night. I’ll wake up out of a dead sleep feeling like someone is blasting bass-heavy music right beside me, except there’s no actual music. Just my body acting like it swallowed a subwoofer. 😞

Internal vibrations are absolutely insane. I swear my body just spins a wheel at random and says, “Alright, let’s freak her out with this one tonight.”

If I'm gonna vibrate can I at least get some Van Halen, Black Sabbath, Tupac, or MJ blaring when it happens? Let's turn it into a concert. And, yes, I'm aware I just showed my age with my music choices. 🤪

[mymuseisunmedicated]

Do any of my fellow POTS people get night terrors when your adrenaline dumps hit while you’re asleep? Because I definitely do.

Early this morning I straight up kicked the shit out of my husband in my sleep. My adrenaline dumped and dreamland went completely off the rails.

I had woken up briefly and told one of the cats to get off my head, so I knew it was storming outside. That part matters. In the dream, I thought I was fully awake because I could hear the storm and see it through the window. Everything felt real. I could see my husband next to me and feel his arm around my waist.

And then… Pennywise the fucking clown pops up at the end of the bed.

Not the newer version where you can tell right away he’s evil. I’m talking 1990 Tim Curry Pennywise. The “normal happy clown who turns into nightmare fuel in two seconds” version. He’s just standing there holding a red balloon, then his face twists into that awful smile, his mouth stretches open, and he starts slowly crawling up the bed like Samara from The Ring.

Yeah. Absolutely not.

Long story short, I kicked my husband directly in the nuts and woke up to him holding my legs down going, “Baby, it’s me. Ow. Stop. Wake up.”

So anyway… anyone else out there accidentally committing domestic violence in your sleep?

This is basically what I saw at the end of my fucking bed:

[pigsducksflowers]

you’re all lucky i have a chronic illness because if i didn’t i would uh, ummmmmm. hold on just give me a second. i would ummmmmmmmm. sorry, it’s the brain frog. brain frog? no, that’s not right. frog…. oh it’s fog. ummmmm i forgot what i was saying, sorry