Totally in LOVE with this blue curly hair!!! #love #wigs #rhuematoidarthritisawareness #prednisoneproblems #bluehair #greeneyes💚 #biglipscurvyhips #selflove #bodyacceptance (at Casa Colina Hospital and Centers for Healthcare)

seen from Italy

seen from United States

seen from United States
seen from Türkiye
seen from United States
seen from Türkiye
seen from Russia
seen from United States

seen from Yemen
seen from United States
seen from China

seen from Germany
seen from United States
seen from Poland
seen from United States

seen from United States

seen from China
seen from United States
seen from China
seen from China
Totally in LOVE with this blue curly hair!!! #love #wigs #rhuematoidarthritisawareness #prednisoneproblems #bluehair #greeneyes💚 #biglipscurvyhips #selflove #bodyacceptance (at Casa Colina Hospital and Centers for Healthcare)
Taper.. ⚠️
Today once again is taper day.. Down again, to 25mg of Pred.
Why does one little change in medication have such an effect?! My mood, fatigue and general feeling changes with such a bang. I know this is temporary and it'll take a couple of days to come round, roll on then! Freedom from the Pred ✊🏻
If you know, you know. And you only know if you've taken prednisone before. Omg, the love/hate relationship of #prednisoneproblems, right?? I took my first dose at 6am. Posted these pics and this text at 10am on Facebook, forgot to finish posting it here. It still feels same so, here it is, lol: M O O D I'm doing a high dose. 80mg. Omg. It's to try to get some relief on the torn discs on my back that are causing the sketchy nerve stuff down my leg, while I wait for a dr to see me. Big mess there. I start at 80mg, taper down, just 9 days tho, thankfully. On one side, yes, I'm excited. Prednisone always helps. And it'll help my rheumatoid too, as a bonus. Which is great because this weather got me flared like woah. But on the other side It's like F*CK PREDNISONE OMG YOU WANNA THROW HANDS? BECAUSE I'M ALREADY SO JACKED UP ON ADRENALINE AND ANXIETY I COULD FIGHT A BEAR AND REARRANGE MY LIVING ROOM BUT I CAN'T BECAUSE I'M DIZZY AND GONNA THROW UP. Ugh. Trying to drink my coffee this morning but feeling like it might turn me into a freaking hummingbird and zip zip away. Bzzzzzz. Funny how there are meds you can take if you ARE bipolar and you want to treat it but then there's prednisone if you wanna like, take the bipolar feeling for a test drive, lol. Wooooo. And it's only been a few hours, man. I'm gonna feel like really powerful, energetic trash for a week, lol. Woo hoo! *I've lost 16lbs lately though, and 9 days "shouldn't" be long enough to gain weight on prednisone, but it turns me into a pufferfish so fast, man. Fingers crossed. ---- It's now 6pm here and I still hate it. But hopefully it'll work. I'm cautiously optimistic, as always. 🖤🖤🖤 #chronicallyill #butyoudontlooksick #autoimmunedisease #rheumatoidarthritis #spinalstenosis #bulgingdisc #herniateddisc #lumbarspine #prednisonesucks #spooniesupport #spoonieproblems #spoonielife #chronicillness #chronicillnesslife #chronicpain #invisibleillness #neuropathy #nervepain #laughsoyoudontcry #anxietybelike (at Terrace Heights, Washington) https://www.instagram.com/p/CV3_vu_Pk9Z/?utm_medium=tumblr
《《《 eat a rainbow 》》》 I'm making rainbowls again. 🌈❤🧡💛💚💙💜 Get it? Rainbow bowls - rainbowls? Much clever. So wit. . I don't eat much. #spoonieproblems You'd think I'd be skinny, but I'm not. That might be partly #prednisoneproblems, lol. Lots of meds the past year that have made me chonky. But --- . I finally got my hysterectomy. Had a 4x normal sized uterus, endometriosis, a 12cm fibroid (it was WAY bigger, but I did 6 months of Lupron injections and they shrunk it. Also lupron put me in menopause which also helped cause the chonk.) All of that inflammation and stuff out should make a difference. Still got what they call "swelly belly" going on, but hopefully a flatter stomach is ahead, with healing. . I think I *might* have finally found a winner in rheumatoid arthritis meds. I started Actemra injections a couple months before surgery, and was juuuust starting to think maybe I could tell a difference? I've been through five other RA meds that failed. So if this one works, I'll be so happy. I had to stop it for a few weeks due to surgery, just started again, but fingers crossed. It might have been just coincidence? But it seemed like pain levels were down and energy levels were up and damn it, wouldn't that be so good? . I don't have much appetite ever. Chronic nausea and med side effects and allllllll the GI problems mean food just isn't that fun. But I'm working on filling up with more color - these daily rainbowls, and I got a juicer - woo hoo! - so I can start doing daily juice blends too. (Any tips on #juicingrecipes i should try??) . Do you have any specific goals with what you eat? I don't watch calories. I'm just aiming for 7 servings a day of fruits and veggies, which is more do-able with the juicer, and fills me up enough that I don't eat garbage. . Summer is coming. The pool is gonna get whatever body I bring it, lol. But I want to get STRONGER again. Energy. Stamina. Flexibility. You know? Skinny is lame. I wanna be able kick your ass. ;) Muscles. . #eattherainbow🌈 #fruitsandveggies #fruitbowl #rainbow🌈 #healingvibes #strongwomen #chronicallyill #chronicpainlife #spoonielife #chronicallyawesome #chronicillnesses (at Terrace Heights, Washington) https://www.instagram.com/p/CL7-YL8B4Ts/?igshid=10910i2wj1h3j
Believe it or not, I’m actually even more exhausted than I look. Damn. #selfie #crohnie #prednisoneproblems #lgbt #lgbtq #enbie #actuallyautistic #egirl #oldestegirlever https://www.instagram.com/p/CAALDtipjZ8/?igshid=18y1534hi0o94
Believe it or not, I’m actually even more exhausted than I look. Damn. #selfie #crohnie #prednisoneproblems #lgbt #lgbtq #enbie #actuallyautistic #egirl #oldestegirlever https://www.instagram.com/p/CAALDtipjZ8/?igshid=18y1534hi0o94