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I was so focused on updating my youtube that I forgot to post here but guess what guys!!!
I don't have cancer!! The second biopsy came back as negative as well! The doctor didn't say why it grew back so aggressively after the first biopsy, but at least it isn't cancer!!
I want to celebrate somehow. This feels like such a major relief since I've been stressing over this for over a year now!
my surgery follow up appointment was horrible omg the surgeon came in and became impatient with how long it was taking to soak off the bandaging so he ended up just ripping the rest of it off my fresh nail bed and I actually cried
The pain meds they prescribed didn't do anything to help against the pain of him doing that, so my thumb was sore for the rest of the day too.
My parents saw me go from happy and excited to dead serious about needing to sit down today for the first time ever. They've never seen me have a pots attack or anything where I actually almost pass out, but I walked into the kitchen and I was excitedly telling them about a package I got in the mail when suddenly my vision started to go dark and my body felt really heavy so I just stopped talking and I began staring ahead trying to see if it would go away on its own. It didn't, so I said, "I need to sit really bad," because that's all my brain could think lol and they helped me pull out a chair so I could sit. By then, my hearing had started to go quiet, too, so I knew it was getting bad. After sitting for a while, I started to go back to normal, but my poor mom looked so scared! I tried to brush it off since I'm so used to this by now, but I still feel bad for worrying her. 🥺
It's official! I've been diagnosed with POTS. My tilt table test went relatively well. They wanted me to pass out fully, but that didn't happen. My heart rate did go from 90 to 165 bpm, though, which is enough to at least diagnose me even though I didn't pass out. The whole test made me feel like garbage, so my parents just took me out for pizza after, and then we went home so I could rest.
I really need some advice guys.. I don't know what I should do. I'm wondering if I should make a gofundme for my family? My dad was approved for disability almost right away since he has terminal cancer, but we still have the waiting period before we receive any benefits. We are struggling really bad because my mom is the only one who's able to work now. My dad is going through chemo three times a week every two weeks, and his treatment is an hour away so we're spending a lot on gas alone 🥺 I'm watching my parents struggle harder than they ever have before and I can't even be of any help to them because I haven't been approved for disability yet and I can't get a job in my current condition so I'm useless to them. I want so badly to find a way to help them make it through the next few months until my dad's benefits come in, but I've also heard good and bad things about gofundme. Is it worth trying out in hopes that it will actually help my family out, or is it not actually worth trying? I know my parents hate asking for help of any kind, so I'm worried I'll offend them somehow too 😞
Ugh pls just any advice for this situation would be helpful 🙏
My biopsy surgery is scheduled for April 30th, so now I just have to wait for the surgery and then the results 😅
I'm so insanely anxious about my surgery consultation next week. The dermatologist said this surgeon doesn't do any surgeries under anesthesia, but my anxiety won't allow for me to be awake when they're cutting into me like that. They said "well you'll have a nerve block so it won't hurt." Dude, my anxiety won't even allow me to see that nerve block needle!! I have a major fear of surgeries since I've had multiple of them throughout my life!! My last surgeon was willing to operate on me under anesthesia, so at my consult, would I be able to insist on a referral to a doctor who will do it under anesthesia? I feel like that should be allowed since I want my body and mental health taken as seriously as they can be. They said he could give me a Valium before surgery without asking about any other medications I take. Like, I just want this done how I want it done as the patient and the person being cut into??? Why is that so hard for them to understand? They didn't seem to care at all.
My second video is posted! ♡
Check it out here? 🥹👉👈
