thought i was a girl, turns out i’m a storm @thesaltyspoonie - Tumblr Blog

happy disability pride month to mean cripples, nasty addicts, people with down syndrome who arent nice and talk constant shit, wheelchair users that WILL run you over, autists that dont care and arent about to pretend to, people who lie to their psychiatrists, people that sit on the floor in public places with no benches, amputees that lie profusely about "what happened", ; to the "noncompliant", the "drug seeking", the "mean", the "difficult" and the "undeserving", and so on and so forth, i love us all and we deserve the world actually mwah mwah

snapcracklepop-myjoints

to people that hide contraband in their assistive devices. to people that do party tricks they arent supposed to and people who will spit on you if you ask them to do party tricks. to people that weaponise the infantalisation of disabled people for their own purposes (theft et. al.). to the people who "misuse" their medication and people who dont take it at all. to my mother, who takes out her hearing aids when she doesnt want to hear shit anymore but will still pretend to be listening so you dont catch on. to people who sleep all the time and to people with "abnormal" circadian rhythms who are unwilling to alter their sleep/wake cycle to best appeal to societal (and moral) expectations. to people that complain loudly about inaccessibility and refuse to try and "make it work". to people that charge money for invasive questions and people that pretend not to understand the question at all.

anotherdayforchaosfay

A popular antidepressant is being recalled because it may contain elevated levels of a cancer-causing substance.

Click the link! The drug treats several things, including fibromyalgia.

merps

Article date: June 14, 2026

Drug name: Duloxetine delayed-release (generic for Cymbalta) -- 30mg, 60mg

Manufacturer: Towa Pharmaceutical

Recall alerts say the impacted medication may contain more than the recommended limit of N-nitroso-duloxetine, which belongs to a class of compounds classified as probable carcinogens for humans. “These impurities may increase the risk of cancer if people are exposed to them above acceptable levels over long periods of time,” an alert from the California State Board of Pharmacy explains. There have been no reported adverse effects reported in connection with the recalled prescription medication. ... This recall is classified as a Class II recall, meaning exposure to the product may cause temporary or medically reversible adverse health consequences, according to the FDA.

This is a voluntary recall, the article links to FDA files for it but it's not listed yet on the FDA recalls page.

martindykewood

idk what other disabled person needs to hear this but if you need someone to do something for you that would be very difficult for you to do but very easy for them to do, that is a small favor. you dont have to feel gratitude and guilt at scale based on how hard it would be for you to do it disabledly

martindykewood

also a more general point: you dont have to feel guilty when people do things for you. if someone is offering, or if you ask and they say yes, that means they want to do it. if for some reason they are pretending to be okay with it, that is not your fault, it is theirs. this goes for things you are incapable of doing, things that would be difficult for you to do, and even things that you could do without difficulty. even if youre not disabled. if someone cares about you they should be willing to help you out in the ways that they are able to.

telekitnetic-art

🦦🌆

Fullbody otter commission for Loial Otter on TG, who also requested that the design be made into a sticker for my ko-fi shop!! Thank you so much for commissioning me!

You can find the sticker for sale on my ko-fi shop right now!!

diosapate

ever since i was a little girl i knew i liked problematic tropes

ratbastarddotfuck

We need to start seriously treating the concepts of "obesity" and "weight loss" as a dangerous pseudoscience and I'm not kidding.

It's some shit that everyone thinks they can understand based on vibes but science just doesn't work that way. Real scientists have proved time and time again that it doesn't work how people assume. Many medical conditions where it's assumed weight is a "cause", something to blame the patient for, it's often actually a symptom.

Body size is based on so many individual possibilities. genetics, upbringing, wealth, what type of food you eat, what type of work you do, where you live, etc etc etc. it is impossible to control for all of these.

I was a child born to fat, impoverished, labourer parents, and I grew up doing farm labour, gaining muscle - I will never ever be thin. It's just how my body developed. And no matter how much weight I were to hypothetically lose, doctors would still push me to lose more. Family would push me to lose more. Society would push me to lose more. It will never ever ever be enough. You will never be thin enough, there is no bmi low enough to satisfy them, there is no "progress" that won't just make them pity or shame you even more. Your personal circumstances aren't important to a pseudo-scientific practice, the variables don't matter that much, it must be a one-size-fits-all solution.

Every weight loss pill, every low calorie shake or meal replacement, every weight watchers frozen meal, it all contributes to the pseudo-scientific cult of thinness. Every ad that says you're not good enough, it pushes you to drop your critical thinking skills. We have created a world where people think shitting themselves into thinness using potions with untested ingredients is healthier than having some fat on their bodies. But it's not! That's absurd! You're sending your body into a constant state of gastric shock!! And one day, when you get bored of eating tasteless nutrient paste and decide to eat something with some flavour in it, your body will react with a starvation response and store every little bit of fat that it can, because it's so used to being fucking starved. Which sends people into a panic response, buying up more pills and trying to crash-diet and lose their meagre protective layers.

Your body stores fat because that's your reserve energy. Fat is protective. I thank my body every day for storing so much energy for me, fuck knows I need it! That's your blubber!! You are a large mammal. Your body is designed to keep energy in reserve so you can sleep and stay warm and keep your brain alive. You should research the human metabolic process. You should research the cow metabolic process. You should research bear metabolic process. YOU NEED FAT!

And just like so many other pseudosciences, fatphobia and all that it entails is deeply rooted in racism and specifically antiblackness. It is not a mistake that the ozempic-chic era is coinciding with one of the biggest waves of open, globalised white supremacy we've seen in decades. Whiteness needs to perform & police whiteness constantly, maintaining appearances is THE way to stay part of the ingroup.

You must commit to removing yourself from that ingroup. Do not allow it a single toe in the door. A pseudoscience, no matter how comforting and easy to digest it may be, is not your friend. It is feeding you lie upon lie upon lie.

hellish-undeath

disabled people who do not directly "contribute" to society and need large amounts of care and resources to survive deserve not only to survive but to have comfort, stability, and fun within their lives while they do. no compromises.

hellish-undeath

to all the people who have already said "hey this is about me" or added your commentary about your situation; know that i love you with my whole heart.

mamoru

would you be able to elaborate on the antibiotics that might kill you as an eds patient? as in why they’re harmful (i have eds also and i wanna know if it’s something i need to look out for)

gladly! good catch! people with ehlers danlos syndrome (and marfan, high blood pressure, blockages or hardening of arteries, history of aneurysms, and other conditions) should try to avoid fluoroquinolone antibiotics, which is a pretty common class of antibiotics.

some of my doctors think part of what makes me different (read: worse) than other patients might be how many times I was prescribed cipro while having EDS. these antibiotics can absolutely do more damage to the body than just death or not.

FDA Drug Safety Communication

[12-20-2018] A U.S. Food and Drug Administration (FDA) review found that fluoroquinolone antibiotics can increase the occurrence of rare but serious events of ruptures or tears in the main artery of the body, called the aorta. These tears, called aortic dissections, or ruptures of an aortic aneurysm can lead to dangerous bleeding or even death. They can occur with fluoroquinolones for systemic use given by mouth or through an injection. Fluoroquinolones should not be used in patients at increased risk unless there are no other treatment options available. People at increased risk include those with a history of blockages or aneurysms (abnormal bulges) of the aorta or other blood vessels, high blood pressure, certain genetic disorders that involve blood vessel changes, and the elderly. We are requiring that a new warning about this risk be added to the prescribing information and patient Medication Guide for all fluoroquinolones. Fluoroquinolone antibiotics are approved to treat certain bacterial infections and have been used for more than 30 years. They work by killing or stopping the growth of bacteria that can cause illness. Without treatment, some infections can spread and lead to serious health problems (see List of Currently Available FDA-Approved Systemic Fluoroquinolones). Health care professionals should avoid prescribing fluoroquinolone antibiotics to patients who have an aortic aneurysm or are at risk for an aortic aneurysm, such as patients with peripheral atherosclerotic vascular diseases, hypertension, certain genetic conditions such as Marfan syndrome and Ehlers-Danlos syndrome, and elderly patients. Prescribe fluoroquinolones to these patients only when no other treatment options are available. Advise all patients to seek immediate medical treatment for any symptoms associated with aortic aneurysm. Stop fluoroquinolone treatment immediately if a patient reports side effects suggestive of aortic aneurysm or dissection. Patients should seek medical attention immediately by going to an emergency room or calling 911 if you experience sudden, severe, and constant pain in the stomach, chest or back. Be aware that symptoms of an aortic aneurysm often do not show up until the aneurysm becomes large or bursts, so report any unusual side effects from taking fluoroquinolones to your health care professional immediately. Before starting an antibiotic prescription, inform your health care professional if you have a history of aneurysms, blockages or hardening of the arteries, high blood pressure, or genetic conditions such as Marfan syndrome or Ehlers-Danlos syndrome. If you have been prescribed a fluoroquinolone to treat an infection, do not stop the antibiotic without first talking to your health care professional.

some emphasis mine. not a complete copy paste of everything in that link.

brand name - active ingredient (of FDA approved fluoroquinolone antibiotics/antibiotics to avoid with EDS, marfan, and more. at least as of dec 20 2018, let me know if anyone reading this knows of more in other countries or anything):

Avelox - moxifloxacin+

Baxdela - delafloxacin

Cipro - ciprofloxacin+

Cipro extended-release± - ciprofloxacin extended-release

Factive - gemifloxacin+

Levaquin - levofloxacin+

Ofloxacin (generic brand)± - ofloxacin

check that link for more details!

librarycards

Hi- I love your post about being a safe place for mandatory reporting and suicidality, and I have a question. I know you may not be able to answer this fully but a question that troubles me a lot is what do you actually do if someone is actively suicidal? Aside from being open/listening obviously, i mean assuming you are already doing that and someone is actively getting ready to kill themselves or is very much headed in that direction..

I promise I’m asking in good faith and not just as a justification for calling EMS. And I know it’s a big question that probably has a complex answer. I just could use any resources or thoughts, and I have had a very difficult time finding actual material advise or answers to this question on my own.

well, i agree with you that there are no complete or perfect solutions. in my experience, if someone is acutely suicidal and actively making plans, the best thing you can do is put yourself in a position where you're 1) sharing physical space with them, 2) are able to do basic first-aid if needed, and 3) (this is risky) able to remove potentially dangerous items -- blades, guns, pills -- from their vicinity. the third one i say with some trepidation as it is both dangerous for you and ultimately restricts their autonomy. however, as someone who has made attempts before while in a state of, well, Not Being Rational, i think it stands to reason that a good friend should be able to at least forestall someone killing themself until they've had the chance to consider all their options.

if you're far away from someone physically, there is less you can do without snitching to someone. i've been in situations where i've been in contact with a trusted friend or family member to receive updates about a person in crisis, but this can also run the risk of leading to institutionalization (or more accurately, it can result in institutionalizations that i really have no control over, bc i'm not there). sending regular texts at specific times per day can create a sense of security & schedule for both you and them, as can making concrete plans to, say, watch a movie or call on discord tomorrow or next week.

ultimately, if someone wants to kill themself, and really really wants to, there is very little you can do to stop them from attempting at some point. but the above measures can help buy you more time to support them/talk them out of it without jeopardizing their freedom. it can also very easily become a full-time job that you as an individual are not able to do on your own, though –– staying up all night, always being on call/text, keeping track of the whereabouts of xyz thing. i think the stronger the community is around the person, the more possible it is to preserve their life while also ensuring you don't get burnt out or resort to carceral measures, so maybe my biggest piece of advice to this ask is to cultivate community before and beyond someone wants to die, so that that community will be there to act when someone does.

beetrans

i love this. also want to pitch tinylantern/Carly Boyce's

SUICIDE INTERVENTION (FOR WEIRDOS, FREAKS, AND QUEERS)

aka "helping your friends who sometimes wanna die maybe not die". exists as a zine, webinar, workshop, & more resources.

it's not perfect, but it has been a balm to me. it also can't stop someone from dying. no one and nothing can. we can strip people's autonomy, inflict violence and trauma, institutionalize them, but we can't stop them from dying.

anyways. carly's resource helps you focus on what you can do and reminds you that people want to die when their life feels unlivable.

also I absolutely second Cav's advice. the best suicide prevention, not intervention over "means/plans/intent", is building communities that make our lives worth living.

finally. you shouldn't be the only one who knows someone wants to die. interdependence and pod mapping (another version) are crucial. it's not always possible, but please try to find even just one other person who shares your values, who won't institutionalize or further harm the person experiencing suicidality, who can be there with you.

akajustmerry

also, as Black disability communications activist and author Imani Barbarin routinely points out in her work, there is no system of oppression like patriarchy or racism or colonialism without ableism. Ableism is the toolkit used by all systems of oppression. disability is both the core assertion of oppressive systems and the inevitable result of these systems. racism is the assertion that an entire ethnic group is less able than another due to their ethnicity. Patriarchal sexism is the assertion that men are more physically and mentally capable than women. transphobia at its core is the assertion that trans people's bodies are different and therefore bad and that there is an ideal "body" people must conform to (among other intersecting assertions that all denote ableist ideology). then, of course, there is ableism against disabled people, which is among the oldest forms of discrimination in the world. there is not a single form of oppression that does not boil down to the weaponisation of ableism. there is a reason why it benefits oppressors to invisibilize ableism as a system, and make huge efforts to disappear those most affected by it from participation in society. That reason is that, as long as people do not comprehend how much ableism is deployed to divide every aspect of society - from race, to class, to gender, to weight, and so on - not only are we too sick to fight, but we do not form true solidarity, and cannot address every oppressive system's root tool: disability.

cripinpain

hello physically disabled person reading this. it is not your fault that your medical supplies are made from a lot of single use plastic and you can continue using them guilt free. your health comes first. thank you for existing.

crippled-peeper

if your insulin pump has lithium batteries and the tubing is plastic,

if your ostomy bags, incontinence supplies, and sanitary wipes are single-use,

if your joint replacement, bone plate, pins & screws, or spinal hardware is cobalt & chrome,

if your meds come in a plastic container you can’t recycle or reuse for sterility,

you are still innocent. you didn’t choose this particular life. we all must do what we can to survive and that includes using technology and consuming resources. it is only human and we all do it.

some people out there own several yachts and don’t ever consider the impact it has on the world. there’s nothing to be gained by beating yourself up for doing the bare minimum for a comfortable, livable, safe & long life.

weirdstrangeandawful

Just want to add, don’t cut corners. Don’t risk your life when there are people who could do a lot more without risking theirs.

Don’t reuse the syringe. Don’t use cloths over alcohol swabs. Choose the battery powered device over the rechargeable if it means you can carry spares. Don’t use the reusable container if you can’t get it open. Don’t choose the reusable option if you can’t keep it clean. Don’t overfill the sharps container. Don’t improvise the tourniquet. Don’t eat the expired food if you can’t afford to be sick. Don’t choose the sustainable option if it doesn’t meet your needs.

Your life is not others’ priority so it has to be yours.

cephalopodvictorious

Hi I work in sustainability, specifically with regards to rules and regulations around waste disposal and recycling and the #1 rule is that your health and safety as a human person comes first

There’s a lot said in the news and in activist circles about your personal carbon footprint but BP came up with that to deflect responsibility for their various and horrifying behaviors and to make us turn on each other. You know what’s more dangerous to marine life than straws? Literal tons and tons of commercial fishing nets abandoned in the ocean, and the microplastics and forever chemicals dumped by corporate manufacturers and oil companies

YOU the person, the individual, have to live, and whatever that takes? That’s good. That’s a good thing, because it means we get you in the world. Use your medical equipment, your medications, your AC, whatever you need

You physically cannot do the damage of a fleet of oil tankers or a fracking company, even a thousand or a hundred thousand disabled people cannot do the damage of someone with a personal jet

You aren’t doing anything wrong, something much bigger than you is trying to trick you into hating yourself so that you don’t hate them

Please don’t fall for it. We need you.

overqualifieddog

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the writ. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]

Happy EDS awareness month.

mamoru

there are so few studies on the long term effects of taking daily antihistamines and it really is such a shame because I can talk to bugs now and have not yet decided whether to use this power for good or for evil

mamoru

whatever the long term effects are, we are in this together. I have been taking several every day for years. sometimes my eyes glow blood red and my family does not recognize me anymore but I still think antihistamines are worth it.

wizardarchetypes

once again i had a complete stranger tell me she thinks it's unfair that i bring a service dog into public spaces because someone might be allergic to dogs. not her, mind, but "someone."

this has happened several times and i've seen entire articles and think-pieces about "the service dog problem." i've argued with college professors for my right to be in classrooms, because "someone" might be allergic. not the professors, but the ever-looming, hypothetical "someone."

these people may genuinely believe they're "just being fair" accommodating allergies, but the issue always comes down to the fact that in conversations about outlawing hazardous allergens from public spaces by banning service dogs, no other allergens come up.

i've never had a professor ask someone to leave because they're wearing too much perfume. perfume causes me potentially life-threatening asthma attacks. but i live in a world where people wear perfume in public. i can't change that, so i sit away from people in heavy perfume. i wear a mask.

i've never seen a think-piece for a major news publication discussing whether it's unsafe for people with cats at home to sit on bus seats in their clothes that are visibly covered in cat hair.

i'm terribly allergic to cats. even dander from someone's sweater could affect me. but i live in a world where people own cats and wear clothes and go outside. i can't change that, so i take allergy meds and assume my risks.

we don't ban peanuts, an extremely common, life threatening allergy, from movie theatre snacks or shopping mall food courts.

an article arguing why we should ban cat-owners, cologne, and peanut butter sandwiches from public spaces would be met with utter dismissal.

yet the conversation around banning service dogs comes up again and again, because disabled people are always assumed as and upheld as burdens at every possible turn. and if everyone can pretend it's not that they hate disabled people, they're actually trying to accommodate other people's health needs (how consider and innocent!), it's much easier to sell to consumers who just haven't thought that hard about it.

and here's the thing, if someone beside me in any of these spaces told me that THEY, not "someone," were allergic to dogs, i would happily move to accommodate both of our needs.

i experienced this same thing in 2020 when articles about plastic waste began targeting asthma inhalers, instead of, you know, the many actually useless plastic uses in the world that are actually causing the problem.

if you ever hear a "reasonable" argument that pretends to be good faith, but the bottom line is that accessibility aids and medical devices are burdening the world, please think critically!

mamoru

if I could simply retire to my family's seaside estate where everyone takes care not to deliver me alarming news and the staff assists me in all manner of life and rest and preparing nutritious meals using fresh local delicacies for a number of months or perhaps years I would be able to recover extraordinarily and rejoin society reinvigorated and with new business plans that would transform me from a hushed and whispered tragedy to the subject of much intrigue and celebration

an--artistic--autistic

i am unreasonably proud and excited about this

my heating pad broke. devastation. sorrow. horror. i am… so cold without it.. forsaken in my time of need.

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