@theartofmadeline
occasionally subtle
Alisa U Zemlji Chuda
Sweet Seals For You, Always
Misplaced Lens Cap
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Three Goblin Art
2025 on Tumblr: Trends That Defined the Year
titsay
he wasn't even looking at me and he found me
will byers stan first human second
DEAR READER
let's talk about Bridgerton tea, my ask is open
JVL
祝日 / Permanent Vacation
noise dept.
Not today Justin
tannertan36
Janaina Medeiros
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@ulcerycolon
INTRO
-Lottie, adult, they/them
-OG diagnosis of UC in 2023, changed to Crohn's in 2025
-On mesalamine granules & infliximab, lost count of steroids rounds
-Neurodivergent, queer, mentally ill
-Since this is a blog about a bowel disease ur gonna see stuff regarding stool/bowel movements & also blood. it comes with the territory tbh.
Throat hurting. Mouth hurting. Unreasonably tired. Mucus. Temperature wonky. Sinuses weird. This is like a fuckin horror movie
Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!
Forgive me if this is inappropriate but
So are
colostomy bags
Diapers
insulin pumps
Oxygen systems
Braces
You know what? You're exactly right!
Ok right yeah got that all drafted up, I just need 2 probably ask at the hospital if anyone can help refine it. Feel a lot better for it tho lmao
OH advance decision thats the term. ok i got the template ig how do i like. submit ?? enroll ??? it ?? HEH??
How 2 ask about drafting a will without making it sound like I'm about to kms
Okay bro
Alright ok ya plan is
- get back home
- do infusion because bleh fine whatever
- hold pred dose at 20 or 15 idk.
- find houses. Move. Etc.
- write a will ??????
- when I inevitably start going downhill tell them om absolutely fucking not going on steroids and WILL kill myself if they try to do it
- ???
- plrofit ? Or die
Consult appointment hasn't been made which means I'm probably not seeing them before I move which means no switching meds which means prednisolone wearing off and me flaring again and like. I mean. Was probably gonna flare while new meds kicked in anyways.
So either way I'm getting rehospitalized again except I physically and psychologically caNnot handle steroids and would rather walk into traffic than consent to them so. I'm fucked :D just gotta hope I move before I'm too fucked I guess. Idk
Bro I'm ✨ fucked ✨
news about pcos today
Decades-long campaign powered by patient perspectives results in switch from PCOS – a name that caused confusion and undue suffering – to PM
a health policy paper has been published saying the name is officially updated to polyendocrine metabolic ovarian syndrome (PMOS)
polyendocrine= multiple endocrine factors
metabolic = affecting/affected by metabolism
ovarian = from the ovaries
essentially, instead of using the symptomatic term (many people with PMOS do not develop cysts) the new term widens the diagnostic area and makes it easier to diagnose, treat, and do research on people with PMOS (even atypical types, such as no cysts).
it may seem like a waste of time to change a name instead of focusing on research, but for a lot of medical professionals a name can be associated with a hard set collection of symptoms, so the name needs to change to acknowledge that the disorder is not well understood and has a broader, subtler, and often missed set of symptoms. for example ADD is considered an antiquated/unused term, and now comes under the ADHD umbrella. in healthcare names and terminology changes all the time, and this is a positive change. your local healthcare professional may not know about this unless theyre really up on the news though!
in case you want to read about the name change process that was published in the Lancet (one of the most impactful and well respected medical journals):
Polyendocrine metabolic ovarian syndrome (PMOS), previously named polycystic ovary syndrome (PCOS), affects one in eight women. However, the
bodies should have crash logs. why the fuck did that just happen.
just identified a behavioral pattern within myself
Like I'm not gonna KMS but Something Will Happen In Manchester yk
and this isn't even getting into harm that's genuinely necessary! i read a book recently that was intended to educate people in healthcare about medical trauma, written by a medical professional who found that there weren't existing resources to help her cope with the aftermath of the extremely traumatic c section that saved her life. the whole tone of the book was "i know you've never thought about this before, but walk with me through this case study" and it's aimed at other medical professionals! it's aimed at the people who are doing this harm, and so many of them think that people aren't allowed to find it harmful just because it's necessary!
so many trauma resources assume that your trauma is from a specific person or people who treated you in a way that society deems unacceptable. if your trauma doesn't fit that profile then you're left sitting there like. idk i dont think most of this stuff applies to me. where are the resources for people like me.
if you were ever scared or in pain and were told that you had to grin and bear it because it's necessary for you to do the thing that scares and hurts you, you are allowed to say that that was traumatic. you are allowed to say that you were scared and in pain and that even if this was the least bad option, even if it was lifesaving, it still was not okay. something being necessary does not inherently make it okay.
I am running a marathon with a twisted ankle and it hurts but some pain is normal, right? Everyone says it's supposed to be hard. It is a marathon after all. I am running a marathon with a twisted ankle but honestly it could be worse, right? I heard someone once finished with a broken leg. The ankle is nothing compared to that. I am running a marathon with a twisted ankle but you can get used to pain, right? The body can endure almost anything. The problem is always the mind. I am running a marathon with a twisted ankle but I made it this far, that means I can keep going, right? Everyone says it's supposed to be hard. It is a marathon after all.
