Monterey Bay Aquarium
JVL
Sade Olutola
Alisa U Zemlji Chuda
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#extradirty
Xuebing Du
tannertan36
Product Placement
wallacepolsom
art blog(derogatory)
祝日 / Permanent Vacation
Mike Driver
d e v o n
Aqua Utopia｜海の底で記憶を紡ぐ
Kaledo Art
noise dept.
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Cosimo Galluzzi
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@autistikisses
there are so many horrific ways for the body to break down and you may be lucky enough to experience any number of them at any point in your life
#reframing my disability as being able to experience a new thing. i could say shehecheyanu every time i get a new symptom. (via @alonewildbird)
I'm sorry WHAT
'lazy people don't feel guilty about not doing anything' is insane to me and I have been trying to make my brain believe it for a long time, it shocked me to my core when I first heard it
An important corollary to "if you were faking your mental illness, you could stop whenever you wanted."
Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!
Forgive me if this is inappropriate but
So are
colostomy bags
Diapers
insulin pumps
Oxygen systems
Braces
catheters
rollators
hearing aids
compression garments
prosthetics
FREEDOM AIDS
thinking about the time a former housemate said to me "hey I put these box fans in the living room because it's hot" while gesturing to the fans that I was actively sitting in front of because it was hot. and I said "okay thanks." and she kept standing there like she was waiting for something else so I said "am I blocking the airflow? do you need me to move?" and she said no I'm just letting you know they're here, in the living room, for circulation. and I said well yes, I did put that together. I am enjoying them. thank you. and she looked confused. so I asked "am I meant to do something with this information or are you just informing me?" and she said no I'm letting you know they're here because It's Hot In Here. she seemed a bit aggravated, and her emphasis seemed deliberate.
it took me asking three more times before she finally told me she wanted me to leave the fans where they are instead of moving them to my room or something. and I said oh! I had no intention of doing so but thank you for letting me know what the expectation is.
about a month later she brought up that conversation as the moment it actually clicked for her that I Am Autistic And Will Not Magically Intuit The Unspoken Request You Didn't Ask Me.
Non-binary people can't use they/them because they're only one person. Non-binary people can't use it/its because it's dehumanizing. Non-binary people can't use neopronouns because they're too confusing. Non-binary people can't use he/him and/or she/her because that's not gender neutral. Non-binary people can't use no pronouns because that's too hard to use.
No matter what pronouns a non-binary person uses somebody will get mad at them.
I am running a marathon with a twisted ankle and it hurts but some pain is normal, right? Everyone says it's supposed to be hard. It is a marathon after all. I am running a marathon with a twisted ankle but honestly it could be worse, right? I heard someone once finished with a broken leg. The ankle is nothing compared to that. I am running a marathon with a twisted ankle but you can get used to pain, right? The body can endure almost anything. The problem is always the mind. I am running a marathon with a twisted ankle but I made it this far, that means I can keep going, right? Everyone says it's supposed to be hard. It is a marathon after all.
sometimes it's OK to skip a song you like when u don't feel like it at that moment. u r not hurting its feelings
Unofficial Autism Post
Unofficial Autism Post
One thing about me is that I will do pretty much anything to avoid making a phone call
Unofficial Autism Post
is that simple task bothering you queen
Unofficial Autism Post
burnout is when you run out of fakin-it juice
Unofficial Autism Post
”Explain yourself” followed by “stop making excuses” has always baffled me because the fuck you think explaining myself is????
@unofficial-autism-post
Recovering from autistic burnout as a high-masking adult:
To recover, you literally need to manually learn skills that most people learn as a toddler
You need to learn what makes your body uncomfortable, and what to do to fix it
If you are high-masking, that usually means that you have learned to ignore every distress signal your body sends unless it is a distress signal that a neurotypical person would recognize. People have likely been unintentionally gaslighting you about your lived experience your entire life
If you feel bad or panicked for no reason, stop and try to pay attention to your body. Are you tense? You are likely feeling physical pain somewhere. If you've been gaslit about your pain your entire life, you might not be able to identify it.
Go through a sensory checklist.
SIGHT: Try closing and covering your eyes. If this gives you relief, the lights are probably too bright. You may also need differently-colored lights
SOUND: Cover your ears. Does this give you relief? If so, you may need earplugs or noise canceling headphones. You may also benefit from a neutral or pleasant background noise, like soft music or brown noise.
TOUCH: Are your clothes uncomfortable? Your chair? Your body? Do you feel greasy, like you need a shower? Do you need softer, sensory-friendly clothing?
TASTE: Do you need to brush your teeth or tongue? Would chewing on something help?
SMELL: Is there a strong or unpleasant smell in the room? Do you need to clean or empty a trash can? Would an air purifier help? Would a pleasant smell like a candle help?
INTEROCEPTION: Are you hungry? Thirsty? Tired? How is your posture? Are any of your muscles tight or sore? Scan your body slowly from head to feet, tensing and loosening each group of muscles. Going for a walk or doing a series of quick stretches may help a lot.
Learning how to do this stuff is not intuitive, if you've had an entire lifetime of gaslighting telling you that everything hurting you isn't a big deal and you're being dramatic over nothing.
This takes time, it takes work, it's not intuitive, and it's hard. Most people forget how hard it is, because they learned this as toddlers.
If you want to recover, you need to relearn your whole body. And get over your idea of "normal" and just wear the damn sunglasses and put on the headphones. If people stare, fuck em. You're disabled and they can deal with that.
Do yourselves a massive favor: practice asking for help BEFORE it's an emergency.
I am a social worker. I have worked in community mental health and in home-based healthcare. And it is much, much easier for me to help you when the situation you're in is not yet a full-blown crisis.
"I'm out of money and have been for a while and now I haven't eaten for three days." This is a crisis. A crisis where I'm likely going to have to put you in the car and take you to the nearest food bank--except food banks require appointments now, and the next opening is in four days, so you're staring down the barrel of a week with no food. That's obviously not going to work, so, let's call eight different food banks until we've found one that has an appointment the next day...except it's in the neighboring county and you can't drive. So now I'm calling your doctor to try and brow beat an emergency plan of care update out of him so I can come back the next day and drive you to the food bank. And we haven't even started on the "constantly broke" part of the problem.
"I don't think I have enough food to make it to my next paycheck. I have (xyz) in my house and that will only last until (date)." This is bad, but not a crisis. We have a few days. We make you an appointment at the food bank and contact your brother to make sure you have a ride there. Now we can spend our visit talking about what bills are causing you the most problems and make a jump on a long-term solution, like looping in a community action agency to cover your utilities and getting you an OTC card from Medicaid to cover some of your groceries every month.
"I'm ten months behind on rent, and my landlord said I have a week to get out, or the cops will throw me out. I don't have the money, and if I get evicted, I have nowhere to go." This is a crisis. Every single thing we do here is going to be some version of a Hail Mary. In Michigan, we have the state emergency relief fund for rent issues, but process time is well over one week. There are community action agencies that we can call to assist you with payment, but they are unlikely to have sufficient funds to cover nearly a year of back rent. We can contact legal aid clinics to try and prevent your landlord from evicting you, but they may look at your case and determine that too much "fault" lies with you. Most likely, I'm going to have to put you in touch with homeless shelters and the public housing office.
"I'm two months behind on rent and I don't think I'll be able to pay next month either." This is bad, but not a crisis. This is solvable. We have time to apply for SER, or put you in contact with community action agencies. We have time to review your finances and see if you qualify for a public housing wait list or other forms of ongoing rental assistance. We have time to talk about a million possible adjustments to try and ease the burden of your rent.
"I am the sole caregiver for my elderly parent who has dementia and is emotionally volatile and fully dependent on me. I have not slept through the night in weeks and I have not had an actual break for over a year. I am having screaming meltdowns multiple times a week and I am threatening self-harm unless someone comes to collect my parent and take over all caregiver duties." This is a crisis. This is a crisis where the ethical code of my profession demands that I call 911 and report the conversation to them. They will likely come to the house and interview you. If they determine your threats were serious, they will have you forcibly committed to a psych ward. Your parent will either be dumped into a random hospital or rehab center, or left in the house on their own. Upon release from your psych hold, you will be expected to resume caregiving duties as though nothing happened. Except, now, adult protective services is actively investigating you, because it was determined you may be an ongoing danger to your parent.
"I am the sole caregiver for my demented parent, and I have not had a break in a couple of weeks, and I feel angry and weepy most of the time." This is bad, but not a crisis. We can get you in touch with volunteer groups for respite, and apply for state funded programs to get more day-to-day help, and talk about long-term planning for when the dementia symptoms get worse. We can get you the phone numbers for crisis lines and enroll you in a support group.
Obviously, you can ask for help at any point. Don't use this an excuse to never ask for help. If you always wait until it's a crisis, fine, you have free will. But you are ALLOWED to ask for help BEFORE you're in a blind panic, and it is always easier to get help when you aren't screaming and sobbing because you think your life is over.
An important message!
Quote of the day
I’m seeing a lot of people saying this post changed their brain chemistry, and as a neuroscientist I wanted to say yes!!! Yes it does!
Wanting something requires dopamine signaling, but liking something doesn’t.
If you have a mental illness/disorder that affects dopamine, you might feel that you don’t want to do the things that you like. You do still like them. You will appreciate having done them.
Let your likes guide you.
(If you want to read more, here’s one experimental paper about it. https://pmc.ncbi.nlm.nih.gov/articles/PMC5171207/ This theory called the incentive-sensitization theory was originally created to explain behaviors in addiction but can be applied elsewhere as well)
Rewards are both ‘liked’ and ‘wanted’, and those two words seem almost interchangeable. However, the brain circuitry that mediates the psych
