I wanted to give a little health update.
I got in to see the cardiologist, and he referred me to get a tilt table test, echocardiogram, and to wear a monitor for two weeks. I have done the first two.
During the tilt table, I experienced a syncope episode at the very end of the test. They called me and let me know I had Vasovagal Syncope, a type of dysautonomia.
My echo looked normal according to the sonographer, so Iâm grateful that thereâs nothing wrong with my heart! My EKGs have all been normal too.
I have called the office three times, and every single time I have been sent to voicemail. I have not received a call back. Iâm trying to get this freakin monitor, but they are not being helpful! I really need them to move it along so I can get the rest of this over with.
I see my primary care next week, and Iâm going to pony up and ask her for a referral to a physical therapist to be evaluated for a wheelchair. Itâll be a lot insurance wise, but I feel that with my cases for fibromyalgia and vasovagal syncope, I will be able to get it taken care of. I simply canât do the things I used to do anymore, in my home or outside of it.
I plan on asking for a manual wheelchair with power assist. Wish me luck!
My prior authorization hold has allegedly been lifted for Nurtec, so hopefully I can get my migraines under control. Iâm not sure if the pharmacy will be able to fill it yet, but weâll see.
Celebrex is okay. I am still in daily pain. Iâm also just completely fatigued. I didnât get out of bed until 7:30 pm today⌠my body simply does not feel rested no matter how much I sleep. And I am sleeping, Iâm not just laying in bed. What I wouldnât give to feel wide awakeâŚ
I will have to repeat my thyroid levels soon. I want to ask for a repeat ANA and an A1C to check for lupus and insulin resistance. I would like to check my cortisol too, but that might take a while. Itâs really hard to read consistently.
Iâm shying away from Ehlers Danlos. I donât think I meet the criteria, but I do know that Iâm hypermobile. Itâs just hard to tell if thatâs whatâs causing my pain or if itâs something else (like lupus).
Thatâs all I have for now, just dumping it here for my records really 𫶠thanks to those who read this silly little blog. I hope youâre doing well.