Battling Chronic Illness

I'm 16 years old, I love drawing and crafty things, and I have many chronic illnesses. My main diagnosis's are myasthenia gravis and the autoimmune form of dysautonomia. I have had celiac since I was 7, and these are all my side diagnosis since September: POTS, Raynaud's, gastroparesis, GERD, costochondritis, chronic basilar migraines, and occasional hypoglycemia.

[jetchickwithmctd]

What the Hell is POTS?

[chronicallyrecovering]

today i am very sad about being sick

i feel overwhelmed about not being able to tell where one illness starts and another ends

i can’t tell symptoms from my illnesses and symptoms from my meds apart

i don’t know what is making me feel miserable, and i don’t know how to make it better

i just want to get back to feeling like myself again.

[wheelchair-vans-of-new-engl-blog]

Myasthenia Gravis Awareness

Myasthenia Gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning “grave muscular weakness.” The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. The prevalence of MG in the United States is estimated to be about 20/100,000 population. However, MG is probably…

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[daniellebmcmanus-blog]

Yay for the triumvirate of headache, nausea, and heartburn. *feebly waves pom poms*

[chronicallyill99]

I am prepping for my EMG, I've been off my mestinon now for 30 hours. I feel like absolute crap without it. Only 18 more hours to go!

[takeawaythepain-spoonie]

Am I right?

[just-spoonie-things]

#032 - When you get excited because your new prescription pills are a pretty color (by lenamazz)

[chronic-illness-cat]

from the amazing one-spoon–at-a-time.tumblr.com

[picture of a Siamese cat’s head against a triangle-sectioned background with many shades of blue. Top line of text reads: Dream Boyfriend: He comes from a family of  || Bottom line of text reads: Competent/ Understanding / Learned / Up to Date on Medical Treatments Doctors.]

[purpleschnauzer]

#MigraineAwarenessMonth #June #migrainefacts #migraine #awareness #spoonie #invisibleillness #chronicillness #chronicheadache #chronicpain #chronicmigraine

[spoonies-thoughts]

“You’re too young for that.” “It’s all in your head.” “Your pain isn’t real.” “Everybody gets tired, sometimes.” “Aren’t you better, yet?” “You’re blowing me off again?” “I would like to lay in bed all day too, but some of us have to work.” “You don’t look sick.” DO NOT JUDGE THAT WHICH YOU DI NOT UNDERSTAND.

[love-your-bible]

Your hardships may be blessings in disguise. Have faith.

A child of God (via love-your-bible)

[chronic-illness-cat]

from the amazing androgynistic.tumblr.com & elidyce.tumblr.com

[picture of a Siamese cat’s head against a triangle-sectioned background with many shades of blue. Top line of text reads: Is there a word for “I’m ok but it’s a fragile kind of okay, so be gentle with me?” || Bottom line of text reads: I nominate: “I’m eggshell fine.” Currently whole, but easily crushed again.]

[spoonies-thoughts]

You never know who has a disability that you can’t see.

[spoonies-thoughts]

Understanding Invisible Illnesses

This is what you see: Socializing, working/school, grocery shopping and household chores, living, smiling

What you don’t see: Chronic pain, insomnia, financial burden from medical bills, depression, abdominal pain, vomiting, nausea, debilitating joint and muscle pain, loneliness and isolation, sores in the mouth or nose, chronic fatigue, hair loss, rashes, unexplained fevers, crying

[chronicallyill99]

Hello everyone, sorry I haven't been on tumblr for a while, like 2 months😁. Well school starts tomorrow for me and I'm terrified! I haven't been to school in 1 year now and my school won't approve half day schooling only, so I will be in school all day. I'm not sure I'm ready for that. I'm supposed to ease myself in as my doctors have said and I'm jumping in full force. I'm so excited to go back, but I just keep thinking about how awful this past year has been and how far I've come, I don't want to go back to that!

[cat-potatoes-deactivated20470604]

going to the doctor when you’re chronically ill is weird. 

It’s like imagine everything in your house is on fire, and you’re standing there and the fire department come in like, describe the fire to me and maybe we can find what caused it and put it out. 

and you can’t just say everything so you’re like… well the fire in the curtain is the biggest but the fire in the photo albums might be doing the most damage also the fire in the couch is really inconvenient 

occasionally the fire guy is like, well your tv is on fire so it might be electronic-fireitus but that would cause other things like fire in the dvd player 

and you’re like, oh yes. that’s been on fire for years. I forgot to mention it because it’s always been a relatively small fire. It’s right next to the bookshelf which has much more fire. 

and then the fire guy is like, oh. I wouldn’t worry about that. book shelf fire just happens sometimes.

[pleasetakecareofyourself]

THIS IS SO ACCURATE

[ph4u57-deactivated20150502]