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chronic illness rants

[chronicallyillsoup]

Here's your reminder that nervous system regulation techniques aren't meant to make the uncomfortable feelings go away but rather grow your capacity make space for them (because they deserve to exist and to be seen too) without letting those uncomfortable feelings take control of who you are and your life and your choices.

[chronicallyillsoup]

Here's your reminder that nervous system regulation techniques aren't meant to make the uncomfortable feelings go away but rather grow your capacity make space for them (because they deserve to exist and to be seen too) without letting those uncomfortable feelings take control of who you are and your life and your choices.

[naareblogs]

I think something important to recall is how digestive issues are a major health problem and a disability. They usually come with chronic pain, difficulty absorbing nutrients, major life style changes, diets, difficulty to find places to eat, mental health issues and a risk of developing something else due to the chronic inflammation and low nutrients.

As someone who has IBS, bile reflux, chronic gastritis, has been on treatment for Helicobacter pylori, SIBO, might have food intolerances, and due to this all have struggled with low weight, anxiety, and now muscle and joint pain and tendinitis, I beg you to take people with digestive disabilities seriously.

[chronicallyillsoup]

TW: mention of death

People often say that it's important to celebrate your wins, no matter how small. To occasionally stop and look back at everything you survived you didn't think you'd make it through and I whole heartedly agree with the importance of all this and yet, as a person with chronic illness I have to say, it can be so difficult to want to celebrate everything your survived because for so many of us the things we've overcome probably don't bring back fond memories and may not even help us feel confident that we've done something amazing by overcoming those hardships. It can instead serve as a reminder what kind of life we are living and how everything we survived we had to because our only other option might have been death. This post is not to say that we can never celebrate our wins and have to be miserable forever, absolutely not! But just like everything else in life, this too is a nuanced topic where I think we should allow ourselves to experience whatever experience is coming up at the moment. We change as life goes on and whether you are in a space right now where you can look back and be grateful or you're in a state where looking back only fills you with anger, sadness and grief, I just wanted to leave a reminder I suppose that both is ok and I hope you never judge yourself no matter what part of your journey you are currently on. Sending hugs to whoever needs it. Please be gentle with yourself. Love you guys.

[chronicallyillsoup]

Me when my disability actually disables me:

[dissociacrip]

gonna be come a disabilityfluencer. grwm while i stumble and stutter my words then choke on a drink that spills all over my shirt. men fear me, fish want me, etc.

[myjourneywithfnd]

Little things I do to help my body and to keep it more comfortable.

Showering seated.

Not too much pressure on nutritions! Just getting food in, in any way, shape or form.

Trying not to have more than two (hospital) appointments a week!

A few nice/fancy looking pyjama's and or tracksuits (to still feel a little good about myself)

Light stretches (mostly in bed)

A weigthed blanket for some pressure (my muscles are thankful for this)

Feel free to add to this

[chronicallywilled]

i second all of these!

if you have access to a bathtub, it can be really nice to take an epsom salt bath for nerve and muscle pain. i often just wash my hair in the bath, as well. just make sure to be drinking water and/or electrolytes if heat can be a trigger for you.

[chestersbraincell]

Having a dynamic disability is not being able to enjoy the good days fully because of the threat of bad days looming over you warning you against getting used to it being like this. Also the evil voice in your head that invalidates you and makes you feel guilty for even trying to enjoy the good days without being productive somehow

[chronicallywilled]

it’s a constant battle and it’s not fair.

i hope we can all find spaces where rest is not shamed, not discounted.

[chronicallywilled]

february wellness for tired bodies

reminders:

- your body is not behind

- rest is not a failure

- healing isn’t linear

- you are allowed to move at your own pace

- surviving this season is enough

things to try:

- gentle stretching first thing in the morning

- find something that brings you joy and make it a routine

- try a new drink: an herbal tea, an electrolyte mix, etc

- practice strength in whatever capacity your body allows

- notice the sunset changing as the days grow longer

prepare for:

- fluctuating temperatures as we approach spring

- valentine’s day and the joy or grief it may bring

- changing sights and sounds as the earth slowly wakes up

this is a space for softness, not solutions.

hold onto what feels right for you, and let go of what does not.

[nokias-nonsense]

*grips you*

your symptoms dont have to be the most severe to be valid. your symptoms are real, and others having worse symptoms doesn't mean anything about yours. its real, its valid and it deserves treatment

[chronicallywilled]

Chronic illness has asked me to relearn my body, my pace, and my expectations.

I find hope in the idea that I’m in a “during” phase — that my old self isn’t gone, and my current self isn’t a finished product.

If you’re there too, you’re welcome to linger.

[rynnitheepooh]

[chronicallyillsoup]

Me when I've been telling people around me all abt my health issues for years and they only start showing consideration and understanding when years later a health professional says the exact same thing I've already been telling them for years

[chronicallyillsoup]

May you receive the strenght to speak up and advocate for yourself and your needs this year. Your struggles deserve to be taken seriously. By yourself, your environment AND by your doctors!

[chronicallyillsoup]

You're not a failure btw for resting when your body is literally dealing with sickness.

[chronicallyillsoup]

If you're chronically ill and you feel like you're being a burden on others because you need their help here's your reminder that kind people do exist and they love to be helpful. Don't you love to be there for your loved ones? Doesn't it make you feel special when a good friend trusts you with something important to them? I promise you that the people who truly, genuinely love you WANT to help you, they want to be there for you in the best way they can. You're not a burden for needing help or assistance from other's. You're human. Even people who are not sick need to rely on one another. That's what makes us human. That's what community is for. Love you.

[chronicallyillsoup]

Having gastrointestinal issues is wild cause you can eat smthng but then you'll be bloated, be in pain and nauseaus and have acid reflux or you can not eat anything and you'll still be bloated, be in pain and nauseaus and have acid reflux

[chronicallyillsoup]

What's one thing you did today you could be proud of? It can be something small, something that perhaps even may sound silly at first. Like you set up a boundary with a person in your life who's dismissive of your experience. Maybe you didn't beat yourself up over not being able to do something? Or you drank enough water, managed to go on a little walk, remembered to brush your teeth, listened to your body and rested instead of pushing yourself, etc. Shall we take a moment to celebrate that? Just a little pat on the shoulder and a "hey, I'm proud of you, you did well." Maybe even put down your phone for a minute and give yourself a hug. Go on, you deserve it (if it feels comfortable of course, no need to push yourself if you don't like how it feels!)