Being brave here, so here goes. Caution, in this post, I mention a few things that COULD contain triggers, so this is a warning just in advance. I needed to write today, it helps clear my head, and it helps me breathe.
This piece of writing I'm gonna call "Living my life with chronic pain & mental health."
First things first - My name is Meghan, I'm 23 years old and I am a chronic illness and mental health warrior. I begun struggling with my mental health when I was at school. I was bullied a lot, for my size, the way I look, for wearing glasses, for having spots, I was constantly pushed around and came home with bruises. I was a mess. I begun self-harming. Not a bad self harm, just a surface scratch when I was about 13. I hid this until after 3 years, my father hit me. We had an argument. I didn't know then I was suffering with depression. I was always the misunderstood, people didn't understand me because I was different. But I was taken by child protective services and moved back to my mums. I would get angry, frustrated, I'd have panic attacks but I didn't know they were panic attacks. I was really depressed but this wasn't acknowledged until I was 18. I finally caved in, wrote a note and took a bunch of pills. Because of that, I lost my job, I lost my life. I gained a lot of weight through antidepressants and I was told I was suffering with severe anxiety and depression. Since that, I've been on a rocky road. I started feeling a lot of muscle and joint pain, and it spread across my whole body and it was constant.
After that, I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome and Borderline Personality Disorder, so I'm gonna explain about these illnesses, and how they affect me every day. I have nothing to do with my parents anymore. Mostly because my Dad hit me and my Mum doesn't understand my illnesses and isn't willing to. I do apologise today by the way, I'm having a really terrible brain fog day. When you’re struggling with your mental health, it can be so easy to mistakenly believe the people in your life hate you. For example, it’s hard to remember when that person you haven’t spoken to in a few days doesn’t reply to your texts, they aren’t ignoring you out of spite, they’re probably incredibly busy.If you can relate to this struggle, you’re not alone. Thinking the people around you secretly hate you or don’t want to be around you is a common experience for those dealing with mental illness. When your brain is being cruel to you, it doesn’t just affect you, it can often extend to how you interact with others. If you recognise what your disorder does to you, it’s a new stepping stone to greater skills and extra peaceful moments sprinkled throughout your day. I feel exhausted and weak at the end of the day, whether I let everything out of hell’s gates or I attempted to find peace. The goal is to make it to the end of your day with the knowledge you are worth it and it’s possible to make it through your misfortunes, even if finding peace hurts.
Now imagine you experience losing your best friend, or thinking that's the case when they're just busy, you'd get panicked and upset - imagine that exact emotion at that level of intensity every single day. The gears start spinning your head. The truth starts to be less and less relevant when you experience this level of emotion. Do they even like me anymore? Did they ever? Have they been doing everything they can to show me they don’t want me around, and I’ve just been missing it? I hurt one of them the other day, saying or doing something careless based on too much emotion, like I usually do. Was that the final straw? Are they finally done being able to forgive me like I always knew they would be? You start to push them away to protect them from yourself and from all of the huge feelings. If one of them is your “favourite person,” someone you have become enmeshed with and have taken on their emotions as if they were your own in a really unhealthy fashion, it gets even more intense and complicated. This is the fear of abandonment someone with Borderline feels, on some level, every single day. It’s not them being dramatic. It’s not them looking for attention or trying to isolate you. It’s a level of emotional pain most people will never experience or will experience so infrequently that it stands out in their mind as a terrible day in their life. I suffer with quiet borderline, in which I keep it all in and internalise the feelings, but blame myself for it.
With anxiety, I do little things that normal people living a normal life wouldn't do. I start to obsessively clean and organise things. I rearrange things. Something as small as the order of my bathroom, taking everything out of the cupboards and putting it back in different places, or even my furniture. Sometimes it stays, sometimes I move it back the way it was. I guess I feel like it’s in a better spot than it was before and if I’m moving while doing it I’m putting myself in better place also. I blink. A lot, And clean like a madwoman. Sometimes, it’s the only thing I can do that allows me to feel in control of something. I also twist my hair, shaking my legs unintentionally, and click my nails. Anxieties lead me into a state of thinking I’m worthless, not doing enough or being good enough. Then that leads me into my depressive, no motivation isolation state. I ask my fiance why he loves me and why he chose to be with me. I often don’t feel like I’m ‘enough.’ If I’m anxious I try my best not to bombard him with messages especially if he's out, but sometimes it's the only thing keeping me sane.
Anxiety makes me feel that I’m always bothering people. Even close friends. Just trying to start a conversation with them makes me feel that I’m just being a big bother, so I tend to isolate myself. Since feeling lonely is better than feeling like a bother in my eyes. I see myself mentally retreating and feeling myself go down the spiral, while being able to maintain a good outward appearance. Nobody notices the change. Having to deal with the constant depression and social anxiety along with Borderline, people think I’m ‘doing better’ whereas I’m just good at hiding the hard things. I internally attack myself. Whereas someone with classic Borderline acts upon other people, I attack myself because I prefer to deal with things internally, if I've done something wrong, I internally attack myself then over-react in situations because I feel like the worst person on the face of the earth. It's been described as being a quiet Borderline. I get attached to friends almost immediately and I spend 90 percent of my day trying to make them like me. If I think they are a little angry with me or dislike me, then my world crumbles and I feel like the worst human being alive, like I'm not good enough. If me and Jonny have a disagreement, I dissociate completely which in turn causes over reactions I'm unaware of being I'm not fully aware of what I'm doing. It's easier to dissociate rather than deal with things.
Dissociation takes me to a peaceful place but on the outside I'm saying and doing things I'm unaware of. It scares me, and it makes me scared of myself. I'd never hurt anyone else, I'd only ever hurt myself. Little things can set me off, which then can cause me to feel really depressed. I internalise things then hurt myself, though I'm 2 months clean of self-harm now. Before that I was 4 months clean. I fear abandonment, but I also fear getting attached to people because I always end up hurt, then feel even worse. Vicious cycle of mentality. I find it easier to shut down than blow up, so I self-sabotage myself. All these flood gates of emotions in my head build up, but I can't let them out, I hold it all in.Then we come to the chronic pain side of things. People who don't understand just think "oh it's just pain and tiredness, get over it." But it's so much more than that. It isn't just pain and fatigue. We can't just take painkillers and hope it goes away. However, those living with chronic pain/Fibromyalgia/M.E know it can cause so many more symptoms than that. Sometimes these illnesses can even cause symptoms that others may see as “taboo” or off-limits. The first thing we cross is sensory overload. It’s hard to handle too much noise, movements, lights, smells, etc. It makes socialisation extremely hard because if there’s more than one person there, there’s already extra movement and sound going on. Add a public place to it, and it makes the system go haywire with brain fog, indecisiveness, anxiety and pain. A lot of times it can come off as rude or antisocial, but I don’t think you could ever understand how hard Anglicization with sensory overload is until you’ve experienced it. I struggle to regulate my temperature a lot too. Some days it's not even hot, or sweaty but I'll be drenched even when I haven't been out. In Summer, unless there is water involved, I try to avoid going out which is a downfall because I have a vitamin D deficiency, so I can never win. It's really embarrassing and I constantly feel like I need to explain myself if people look at me because I'm so sweaty.
Now we move on to the sudden fatigue… I AM NOT LAZY! I’ve learned that I have to pace myself to ensure that I have the right energy to get through the day so if I say no to something or ask you to help with something that seems like an easy task, I’m not being lazy, I have hit an energy wall. Some days I still over do it and I struggle to cope with the pain. It's almost like constant exhaustion, and the fact that no one wants to understand or comprehend makes it more difficult, especially because we're in pain 24/7. I’m sometimes a little sensitive, irritable and snappy. I don’t enjoy being around people (partly due to sensory overload) and I have closed myself off so as not to hurt anyone’s feelings with my callousness. The constant pain makes me so angry with everything that it’s hard to function.
The worst thing for me living with this is the migraines and the brain fog. I can't describe exactly what it feels like, but what I can tell you is when I get a chronic migraine, I get severe brain fog. Some days I get just migraines, some days I get just brain fog. When this happens, it's almost like I feel disconnected from life, like there's a huge bubble around me. It's like I'm in a slow motion picture, I forget words, forget where I am, and I forget what I'm talking about mid-sentence. Conversation with Brain Fog is difficult. I accidentally zone out while listening to my fiance and sometimes I drift into a different thing entirely whilst still trying to listen to him. It's like I'm walking through jelly, everything just feels heavy, like there's a weight pressing right on the front of my head. My eyes don't focus. I'm trying to function but it's difficult to coordinate physical movements as you try to go about your day. Some days, you can see straight but everything seems distant. You feel exhausted mentally, everything exhausts you mentally and though you're seeing straight, the world just feels blurry. It's hard to put sentences together, or to think of certain words. It's hard to do little things because you've sort of forgotten how to do them. I struggle with my weight. I fluctuate a lot. I can't help it, I can lose weight but I'll end up putting it on. I struggle with my tummy, and find myself needing to go to the bathroom because something I'd normally eat just upsets my tummy on that day. I sometimes have issues with my bladder. My bladder is overactive, but I have to drink a lot as I get dehydrated quickly and I get a dry mouth as a side effect from medications. I find myself waking 2-3 times a night to go to the bathroom.
Something less talked about with chronic pain, is genuinely anxiety and depression. Depression is a factor, but it's not the cause of chronic pain. My pain is medically unexplained. Depression doesn't go away because the cause of it doesn't go away. You can keep it under control with medications but people don't want to, or aren't willing to understand invisible illnesses. People will see you laugh, and smile so they assume you must be happy. But they don't understand the true feelings of what goes on deep inside your brain.My life has gotten slowly better over the last few months. Whilst yes, I've been on a low, it's nothing to do with my fiancé or anything. It's just the vicious cycle of emotions and pain that drags me down.
I love him so much. I know there's times when I'm selfish unintentionally because I don't think, I'm always apologetic if I've upset him for whatever reason. I've always placed him first, even though he never asked me to, but I love him that much I'll worship the ground he walks on. I'm always apologetic if I've ever lashed out and caused him pain. All these little apologies I need to make, because I know there's times where he's doubted my love and affection. I'm just so lucky to have a guy like him in my life, while he doesn't understand my illnesses, he does his best to support me. I know we have our arguments, and our disagreements, and there's been times we've pushed each other away. But being able to look him the eye, and apologise, helps us grow even stronger despite the blips. How do I tell him how much love I feel when I look into his eyes and hear him telling me he loves me? How do I express my feelings for him as there are not enough words to tell him how much I care? If he wasn't here for me, I would be nothing but with him by my side, I feel like I can do anything and be myself. I'm the luckiest girl on the planet to have a fiancé like him, I really am.
So yeah. I'm sorry this has been long winded. I just needed to get a lot of things off my chest today. I hope you all have an amazing day.