My Pain Diary @chronicpayn - Tumblr Blog

I love vintage stuff but I’m so glad I can enjoy them in the 21st century with my iphone, wifi and slightly more human rights

sunflower-cane

How chronic pain affects the senses

When you need to put captions on the tv, and cant hear what people are saying because the pain is “too loud”

When you need to close your eyes, or look away because it physically hurts to see, or youre too tired to use your eyes right now. Or the pain is “too bright”.

When you cant be touched, brushed against, wear clothes or blankets because the pain makes you too sensitive, and “even air can hurt”

When you cant enjoy eating or the taste of things because you cant ignore the pain and fatigue that comes with chewing/swallowing/after affects of eating/picking up and putting down utensils. So pain literally makes food “hard to taste/hard to eat”

When smelling things immediately make you sick, migraine, make the pain worse because inhaling and exhaling are actually too much and the smell makes you overstimulated and thus makes it so “youre in too much pain to handle that smell”

We need to talk more about how pain affects our senses, these arent anything to be ashamed of. If you suffer from this, im sorry but i want you to know what youre going through isnt fake, it is very very real. And it sucks.

Your valid, your struggle is valid, i believe you and i believe in you.

trashmenagerie

50 Cute This or That Questions

cacti or succulents

butterflies or honeybees

typewritten or handwritten letters

flower crowns or oversized sun hats

polaroids or film

road tripping in a VW bus down the coast or camping in the woods on summer nights

cozy beanbags or breezy hammocks

oversized jumpers or fluffy bathrobes

banana bread or pumpkin spiced loaf

the smell of old books or the smell of petrichor

chapstick or matte lipstick

macarons or eclairs

a candlelit bath or a naturally lit reading room

a matinee at a musical or a evening at the art gallery

creamy hot cocoa with marshmallows or dippable hot chocolate with churros

poetry or prose

vinyl or cassettes

antique shops or second hand stores

a heavy, rich chocolate cake with ganache and caramel or a light, summer sponge cake with cream and fruit

purikuras or photo booths

cozy scarfs or warm beanies

rose gold or copper

watching the sky at sunset from the beach or watching the city below from an airplane at night

mason jars or coffee mugs

puffy clouds and blue skies or thunder and lighting on rainy days

a cup of hot tea or a bowl of warm soup

picnic on a grassy hill or tea in a flower garden

silk or lace

sketching in a museum or journaling in a café

converse high tops or beaded summer sandals

sweet crêpes or fluffy pancakes

galaxies or nebulae

cuff-chain earrings or full finger rings

knee socks or leggings

in bed or out in the rain

the muted colors of winter or the vibrant colors of summer

autumn leaves or spring flowers

summer fruits: peaches, berries, cherries, and apricots or tropical fruits: pineapples, mangos, papaya, and grapefruit.

malt shakes or ice cream floats

smooth jazz or lo-fi

waves lapping at the shore or wind rolling over wheat fields

sunflowers or lavender

enamel pins or embroidered patches

fresh cheeses and cured meats or fresh bread and homemade jams

fireworks or sparklers

bath bombs or scented candles

library borrower cards or vintage postcards

singing and playing the ukulele while walking or singing in the car with the windows down

filling your passport with stamps from each place you travel to or collecting souvenirs from every place you’ve traveled to

_____ or _____

veliseraptor

when you can sense a Mood incoming and feel like a farmer standing in a field looking out at the horizon as the storm approaches like “looks like it’s gonna be a bad one, boys”

backtoblackxxxx

Had a IBS flare last night . It did not last long but it hurt and it’s the type that makes you have that IBS hangover . Blech.

chronicpayn

Reblogging something I posted on my main.

Me

My personal blog

chronicchillpill-blog

@ disabled people who need wheelchairs but are not wheelchair bound

your struggles are important,

they are valid, your issues are valid.

you are valid.

just because you dont always need a wheelchair, doesnt mean you have to feel bad when you do need one.

just because you dont always use a wheelchair, doesnt mean youre faking it when you do use one.

when you use a wheelchair, it doesnt mean youre overreacting, it means you need to use a wheelchair that day.

do not feel ashamed for needing a wheelchair, a wheelchair isnt something you should feel shame for, it is a mobility aid, its something you need.

if someone gives you attitude when they see you get out of your wheelchair, you can come right @ them, its not your fault they assumed your limitations, and if they then assume youre faking/overreacting/not really disabled, you have every right to come @ them and educate them.

dont be ashamed to get out of your wheelchair in public.

dont be afraid to get out of your wheelchair in public.

dont be afraid to stay in your wheelchair until you feel you can get out of it and be okay, dont let any pressure youre given make you push yourself harder than you can go.

its okay to get out of your wheelchair and walk.

its okay to stay in your wheelchair.

yes, you are still disabled even if you are not wheelchair bound.

yes, you are still disabled even if people think youre not because you can walk sometimes.

yes, you are still disabled.

and you should never have to feel shame for not being as “disabled enough”

because you are disabled enough, because anyone with any disability is disabled enough.

sorry if this didnt come out well, im v tired.

impotsiblelife

“Everybody deals with something” isn’t an appropriate response to disability. Having a disability doesn’t preclude us from facing other obstacles in life. We still might grow up poor or in abusive households. We still might face discrimination based on our race or sexuality. We still might have to face any and all of the challenges that abled people face, but with the added limitations of our disabilities. It’s time that this reductive and problematic saying is retired.