You act like a disability authority and dish out life advice like a pro- you're a kid, and you have fibro. Not that it's not valid, but there are lots of people who have more experience with disability and medical stuff. I'm not articulating it well, but this blog just hurts, as somebody who is more severely disabled, seeing a bunch of teens using canes and whining about their parents. I wish I had those problems, you know? I just encourage you to be more aware of your privilege
Yes I’m a teenager. Yes I’m not “severely disabled” and yeah, I use forearm crutches instead of a wheelchair or other mobility aids.
But if you think I’m a “disability authority” or “dishing out advice like pro”, it’s not what I’m trying to do. Often times I get questions I can’t answer. That’s why I ask my followers, people who actually experience the problems in the questions, for their input.
I know damn well I’m not the most disabled person ever and I thank whatever may be out there every single day. I can walk, sure with severe amounts of pain, but I can. I know people who can’t. I know people who may never get treatment. I know people who may be living on the street because of being unable to pay rent because of severe medical bills. I know I’ve got it much better than many other people.
But I’m trying. And I’m sorry if it comes out as whining but as you said, I’m a kid. To me, this is the worst thing I’ve had to deal with. I’ve been suicidal, I’ve had an eating disorder, I have generalized anxiety and a panic disorder. I have fibromyalgia. And I’m a goddamn kid.
When my parents are unsupportive, I can’t do anything else. I’m a kid. All medical forms need my parent’s consent. When I cry my eyes out because I can’t walk without feeling like I’m being set on fire, I can’t do anything about it except push through and use my canes because my parents won’t let me do anything else.
I too wish you had my problems. I wish so many people didn’t have to deal with all the bullshit that comes with a disability, especially if it’s more severe than what I have.
Often times, I only get asks about canes. It’s what many people ask me about. That’s something I can give advice on.
I have privilege. I get it. But I’m trying. I want to learn and if there’s more information you want to give me, please, inform me.
I’m sorry for this rant, I just need you to understand that I never want it to seem like I’m an “authority”. I will never know everyone else’s experience and I try my best to educate myself on them. I’ll mess up. I know that. But I’m trying. And that’s what I want to convey with this.
Sure I’m just a teen with fibromyalgia. But I want people who have it too or have it worse have a place to vent and be understood. That’s all I want.