[corvidae-disability]

Updated my pfp to match my current hair

Here's the picrew its from

[astrodidact]

[intheheartofman]

[wonderwanda]

I reblogged this yesterday, but I want to reblog it again. Diabetic ketoacidosis turns your blood acidic and will essentially burn you from the inside out.

The stories you hear of people dying from rationing, this is what happens to their body.

Affordable insulin isn’t just a right, it’s a necessity.

No one should have to die like that when it’s preventable with access to proper medication.

[teaboot]

"Affordable" should be the lowest fucking bar. Pharmaceutical companies should be tripping over themselves to offer insulin at "affordable". That shit deserves to be fucking free

[callmemanatee]

The way most autism literature describes "literal interpretation" is often not at all similar to how I experience it. Teenage me even thought I couldn't be autistic because I've always been able to learn metaphors easily.

In fact, I love wordplay of all kinds. Teenage me was fascinated to learn all the types of figurative language there are in poetry and literature.

But paperwork and questionnaires are hard, because there's so much they don't state clearly. Or they don't leave room for enough nuance.

"List all the jobs you've had, with start and end dates." What if I don't remember the exact day or month? Is the year enough?

"Have you been suffering from blurred vision?" Well, if I take off my glasses the whole world is blurred, but I'm fairly sure that's not what the intake form at the optometrist is asking.

Or the infamous (and infuriatingly stereotypical) "Would you rather go to a library or a party?" What sort of party? Where? Who's there? I work at a library. Am I currently at the library for work or pleasure? Does it have a good collection?

It's not common figures of speech that confound me. It's ambiguity, in situations that aren't supposed to be ambiguous.

[againwithpurpose-reblogs]

Oh. Oh.

Okay then.

[myalgicencephalomyelitiscfstom]

This was very popular a few months ago so I thought I would repost it

Thanks to Laura Scheepers who has written out the text:

The white ring, with 'healthy individual' has

nonlimited ability to care for self and others

nonlimited ability to attend events

nonlimited ability to exercise and play sports

nonlimited ability to traven The yellowish ring with 'mild ME/cfs' say:

limited ability to work full time

limited abilty to be active

limited ability to tolerate loud/stimulating environments The orange ring, with 'moderate ME/cfs' says:

limited ability to work (may only tolerate WFH)

limited ability to leave house and attend social events

limited ability to complete errands The dark orange ring with 'moderate-severe ME/cfs'has housebound as subtitle and says:

limited use of shower

limited ability to prepare meals

limited ability to move about household The red ring with 'severe ME/cfs' says:

limited use of restroom

limited use of books and technology The poopbrown ring with 'very severe ME/cfs' has bedbound as subtitle and says:

limited tolerance of sensory input

limited ability to move and communicate. —- I believe the original source is or may be https://www.reddit.com/r/cfs/comments/1j0j5zt/new_mecfs_graphic/

[greelin]

“you’ll feel better after a good night’s rest” do i look like someone who has had one of those in the last two decades

[bebsi-cola]

there's something about how people talk about ableism online that feels somewhat divorced from the reality that ableism is a form of violent oppression that gets disabled people killed, assaulted, and brutalised in real life. that it causes medical neglect, abuse, and structural inequality. that disabled people are, on the whole disenfranchised. and it's not like verbal interpersonal ableism "doesn't matter" in the face of the "real stuff" because all forms of ableism contribute towards dehumanising and isolating disabled people, which in turn makes them more vulnerable to the violence i mentioned. but it's like, do you guys remember the violence exists? that it's not just people being upset over words "for no reason"? there's a glaring reason right in front of us if you bother to look

[corvidae-disability]

Ecofascist vegan on Instagram used leftist liberation terminology to promote eugenics at me for daring to express I'm disabled and compared owning animals to chattel slavery, also had "fascists fuck off" in their bio

[librarycards]

i think it's very important that people know how common undereating is, esp. for feminized people, and how the lower calorie requirements for "women" are bullshit. you don't need to have a restrictive eating disorder (a psychiatric disability in which your relationship with food + body image is dangerous to your health [sometimes deadly] and prohibits you from participating in your daily life, forming relationships, and so on) to not be eating enough.

you could go your whole life not eating enough and not die or get really sick, but just be tired and grumpy a lot, or perform worse, or have brain fog, or a million other things. like there are so many gradations between "should have a snack" and "has a severe eating disorder". maybe you don't have an eating disorder, but you should still start eating more than iced coffee for breakfast. try it sometime!

[transandrogyny--turtlebug]

Shouldn't large amounts of old and disabled people in a country be the sign of good? That means that your healthcare is at least good enough to keep disabled people alive and for a long time.

If all the people in a society are able bodied then you failed as a society because it means all your disabled people have died

[zmpl]

the psych industry and society as a whole is not normal at all towards people who self-harm. people view it as attention-seeking. mental health professionals view it as justification to send you to a “higher level of care” aka incarcerate you. it is seen as a bad/negative behavior that needs to be fixed.

in reality, the concept of self-harm is heavily socially constructed and an issue of bodily autonomy. as humans, we seek out physical pain all the time. we eat spicy foods. we get tattoos and piercings. we engage in BDSM. so why do we forbid self-regulation through pain?

when people are told to cover up their scars, when people are kicked out of DBT support groups for self-harming, when people are conditioned to lie about their self-harm to avoid getting sent to the psych ward, you are telling them that their body is not their own.

the last time i cut myself was roughly a year ago. ironically, after adopting a bodily autonomy mindset around self-harm, i stopped having urges to cut nearly as often because i’m no longer engaging in a power struggle with my own mind over trying to avoid doing a “bad” behavior. i don’t feel like doing it today, but if i do tomorrow, that is okay. because it is my choice to decide what i do with my own body.

[lastoneout]

I've complained about this before but ngl I hate how most gluten free food sold in stores is also vegan and low fat and low sugar and all that, bcs I think that people who are gluten free but not vegan or on a diet deserve food that's just gluten free, and vegans that don't have allergies deserve food that isn't gluten free, and people who can't have too much sugar or fat deserve non-vegan non-gluten free food.

Also as someone with POTs who needs a lot of salt so much gluten free food also being "health" food makes it less healthy for me. I need salt and sugar and fat!!

If there is any justice in this universe the diet industry will one day know my wrath.

[lonelyroommp3]

we give buzzfeed a lot of rightful criticism now that it’s not 2014 but that kristin chirico piece where she photographed herself in various different clothes shop fitting rooms to prove that the lighting in them is precision engineered to give you body dysmorphia still regularly salvages me from the verge of anorexic crisis ten years after its publication

[eldritchbauble]

Your therapist can't diagnose people you talk about in session, including confirming armchair diagnoses that you made.

Any commentary they make in response to you raising the issue of someone else's diagnoses should be something to the effect of "it's possible that they have x disorder, but it's more important to focus on how their behavior affects you / the relationship."

If your therapist says "you parents are narcissists" or "your ex is a sociopath," that either didn't happen, or they're creating an ethical violation.

They aren't allowed to diagnose someone who isn't their client, i.e. has consented to treatment.

Even if they were allowed to do that, your secondhand account of that person doesn't constitute an assessment.

Even if they were allowed to do that and could use your secondhand account, they wouldn't be able to tell you about someone else's diagnoses because of confidentiality.

Further, your therapist can't diagnose you with "narcissistic abuse syndrome" etc. because it doesn't exist. There are no legitimate diagnoses based on the (speculative!!!) diagnoses of an abuser; you're likely talking about complex PTSD, which commonly results from abuse (including emotional abuse).

I don't trust therapists who slap diagnoses on their clients' abusers. You shouldn't either. You should know the basics of clinical boundaries and the correct terms for things so that you don't feed into stigma or put up with a therapist who's willing to engage in unethical practice.

If they're focused on diagnosing your abuser, they've got blinders on and won't be able to objectively evaluate your situation to help you heal. Ultimately, telling someone that their abuser is a special type of person and they have a special type of trauma rather than focusing on behavior, impact, and symptoms isn't good therapy and it won't help you heal.

[storybookprincess]

being sick & miserable objectively sucks, but it has become significantly easier to cope with since learning that “sickness behavior” is a well documented part of the body’s immune response

feeling not only physically but also emotionally like fucking garbage is unfortunately an extremely effective way to force your body to prioritize fighting infection & keeping you alive. i don’t have to like it, but knowing why i get weepy & pathetic when sick does help at least a little

[autumn2may]

i just found out that this is not common knowledge and am reblogging so more people know

YOUR BODY DOES THIS ON PURPOSE

YOU ARE NOT A BAD PERSON BECAUSE OR "WEAK" WHEN YOU ARE SICK IF YOU CAN"T CARRY ON AS NORMAL

[headpainmigraine]

Laughing in chronic illness.

Sharing so my crip friends get a laugh

Seriously though, the impact of illness in the body is a creature all of its own, especially if your body is forced into that state in a chronic form.

[kaputtsolvi]

What I feel people frequently forget about autistic special interests is that they aren't always information based. They may simply be visual or mental

Someone may have a special interest in a show, but instead of that meaning that they will talk about that show often, it may mean they watch that show extremely frequently.

Special interests are ways of regulating, not simply encyclopedias we have in our heads. Sometimes it's watching something frequently. Maybe only listening to one genre of music, maybe it's a collection, maybe it's an action. I'm tired of it only being seen as autistic people's personal encyclopedias

[traumatizeddfox]

“omg peoples mental health is so bad they don’t shower??” girl some people have such bad mental health they kill themselves

[estrogenesis-evangelion]

my rule of thumb for this, for any behavior that you look at and go, "god, how can you not (X)?" is to ask myself: well. how bad would it have to be, for me? how bad would it be before i would stop doing that thing? how bad would i have to feel?

what would have to go wrong in your life, and how wrong would it have to go, for you to stop bathing? to stop eating? to let the garbage pile around you until you can no longer see the floor?

how bad would you have to feel, and for how long, before you would stand on the street screaming at anyone & anything? beating your fists on your head and crying? how bad would it need to be?

do you think there's some fundamental difference between you and people who suffer until their lives are unrecognizable to you? can you face the knowledge that if things went badly enough, you would be just like them? just like them? just like

[five-thousand-loaves-of-bread]

btw there statistic word for things like “research that only use autistics who lower support needs, verbal, without intellectual disability, english speaking, white / white dominant, cis boys or men, who can independently(!!) be part of (eg interview based) research that directly ask autistic people… n then draw conclusion say results represent all autistic people”

n it called extrapolation (take pattern you already have info for n then estimate/guess by go beyond what your info have) n it can be (for not have better word) dangerous n really shouldng do or at least need be very careful doing, because you assuming the same pattern keep going for the things you not measure info on, but it very much possible pattern not keep going and your estimate/guess wrong. (or this my best try on plain language, if someone have sth better)

it sound like have just listed like such hyper specific group of autistic ppl like look at how long the adjective modifiers be! but in fact this be majority of autism research

yes most likely even your [insert newest research that interview real autistic ppl that exploding in online autistic community for be affirming n thus truth]

it not mean research completely shouldn’t be used (results can still very much say bigger pattern abt group of ppl you use in your research). just that. caution. nuance.

read the methods section!!!!!!!!