One of the most important ways to manage EDS-related pain is through exercise. It can be challenging to know which activities are okay to pa

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@ehlersdanlosboy
One of the most important ways to manage EDS-related pain is through exercise. It can be challenging to know which activities are okay to pa
Until recently, Ehlers-Danlos Syndrome (EDS) was a name that elicited little relevance or urgency in the pain world.
when people ask me how i'm doing
https://ehlersdanlosboy.wixsite.com/website/post/safety-tips-for-living-with-ehlers-danlos-syndrome
When you say the following things to someone with a chronic illness, you probably don’t mean to hurt their feelings. A lot of the time you a
How would I describe chronic illness in one sentence?
When they say
"But you don’t look sick?“
"Do you 𝙧𝙚𝙖𝙡𝙡𝙮 need to use a cane?”
“You don’t really need that wheelchair, you can walk”
“You totally talk about your illnesses for attention”
“How can you be in pain? You were fine yesterday”
When I'm VERY symptomatic but the scans come back as normal...
They always come back normal, and I'm far from normal 😂
When I find a new bruise...
Vascular EDS is a life-threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile, it is estimated to affect 1 in 90,000 people. Patients are at risk of sudden arterial or organ rupture. Vascular EDS (previously known as Ehlers-Danlos type IV) is a rare t
#Good Omen #Ehlers danlos #wednesday #humpday #love #instagood #wednesdaywisdom #instagram #wednesdayvibes #like #motivation #follow #happy #wednesdaymotivation #music #photooftheday #picoftheday #fitness #fashion #christmas #fun #photography #goodmorning #food #december #life #winter #smile #instadaily #wednesdaymood #january #bhfyp
Stop using labels as an excuse! Teach disabled children to read and write #TeachUsToo
Stop using labels as an excuse! Teach disabled children to read and write #TeachUsToo
Your chance to gain knowledge about an amazing Girl who has Chronic Illnesses Click on the link to know more about this strong woman.
Learn about the story of Micheal who was born with an incurable cancer watch Micheal motivate millions of people telling his story of being given 94% death rate and only 4% hope of life but overcome every adversity thrown towards him. I learned that in life hope is the only way to overcome your challenges
Zebra Community
To be honest my confidence was Low but the Zebra Community Lifted my Spirit and I learned that I have so much to live For 👊 Pain is here to make me stronger💪