Endometriosis Diary

The thoughts and feelings of someone who is enveloped in a chronic illness.

[endonow]

Endometriosis month, just a reminder painful periods are not normal and should be checked on. Any dr that does not take you seriously should not be your dr.

[endonow]

[endonow]

Hysterectomy at 26

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I can’t be angrier. I might miss my surgery because my insurance was signed up for only one month instead of the year. I have been contacting them for weeks and it’s still inactive

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I am really happy to find your blog. I can not talk about my problems with anyone. Noone understands me.🥺

My diagnosis was about a year ago but I am suffering more than 10 years. I stopped the antibaby pill bc me and my husband really want a baby. My doctor said it is okay to stop the pill and start to try bc my endo is so small there will be no problem. I am not sure. That was 4 month ago and I am so desperate. I had 2 menstruation in the last 4 months with so much blood and pain, it is worse than before I started to take the pill. There have not been any days without pain. Sex hurts, poopin' hurts, peein' hurts. Painkillers are just like candy. I am so afraid to go back to the doctor (but I know I should and I will). Any recommendation how to live with that pain? My mental health is worse than ever🥺

Pain management sucks more the time especially if you’re trying to convince. Most of our hormone meds try to stop period to “help” with pain. I haven’t gotten a proper period in year

The only thing I know “works” is heat some CBD creams work great. But honestly go to the doctor and just advocate for yourself.

Mostly it’s your decision if this path of kids is worth it. I am having to make the same choice my endometriosis is severe and I am looking into getting a hysterectomy. And it took a long time dealing with pain before I finally let go.

I truly hope it helps but know you’re not alone

[endonow]

Does anyone taking northindrone get restless leg syndrome?

And what is the best thing to stop it I’m having a hell of a time sleeping

[endonow]

Having a hard time. Need a hysterectomy because the pain has become unbearable. I have been waiting for the change in meds for 5 days.

The pharmacy says it’s a manufacturer issue and has no idea when they will receive it. I’m fucked

[endonow]

Painsomnia sucks

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Nope

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The pain and irritation when someone that you care about says something about something you can’t control. Now it just keeps repeating in my brain

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What people don’t get about “good days”

[endonow]

I’m so tired of being in so much pain

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Daily struggle

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So so much worse

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The amount of days I’ve gone to bed at 8pm

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[allsadnshit]

been feeling really self conscious about some of the biggest changes in my lifestyle accepting chronic illness. I remember promising so many friends I'd be in their lives again when I finally "got better" and figured out what was wrong with my body, not realizing at the time I would get a diagnosis that's lifelong. It's taken me over a year to forgive myself and the universe for what originally felt like losses to who I was, and is just now starting to feel like an important pivotal change to the person I am becoming. I just want to send a little extra love today to anyone who's on that journey too, and finds themselves feeling shame where compassion could be.

You don't owe anyone (even yourself) a specific version of yourself to be whole and happy. no hobby, career, favorite restaurant, or social standing disappearing from your life will ever diminish your value!