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roma★
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let's talk about Bridgerton tea, my ask is open

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Jules of Nature

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More text posts I liked on Twitter
@qin-shi-huang-di lmaooooooo
[image id: a retweet of a tweet by @ Moningmeng on Feb 8. The tweet is a photo of two people dressed in presumably Qin Dynasty-style outfits sitting across from each other in a small cafe. The photo was taken through a window, which has a sign reading "luckin coffee" with a deer logo. The retweet is by @ JanezoviNasveti (display name "Legalism With Yugoslav Characteristics") reading "You’re telling me the Emperor is decaying in his carriage and Zhao Gao is using his seal to issue imperial decrees?" /end id]
hi peon, thanks for reaching out! his royal highness is alert, active, and very, very, alive inside his royal carriage!
there is absolutely NO cause for concern, i am the healthiest i have ever been and the reason that no one has seen me for weeks is that i am busy with my important emperor duties! as for the cartloads of fish surrounding my royal carriage, they are there for my convenience, so i may enjoy seafood at all hours of the day! no, the smell and flies do not bother me. in fact it’s a rare delicacy that you are all too poor to understand.
please respect my privacy during this time! all those who disobey will be swiftly put to death. address all queries to my loyal and trusted servants, zhao gao and li si, whom i have entrusted with my absolute authority.
how manual wheelchair users move (explainer for non-users)
frequently when i’m out and about with someone walking, they can’t anticipate what path i will take and therefore they’re in my way pretty frequently. this is fine! i can politely ask them to step to the side. but it makes me think about how little non-wheelchair users understand the way wheelchair users move. as someone who used to walk everywhere, it was an adjustment period for me to figure out how to navigate the world in a chair. here are some things that didn’t occur to me so that you don’t cut off your friend right as they’re building momentum to go up a ramp 😆
for context, i use an active manual chair. the world is very different in a power chair. even among active manual chair users, there is a huge diversity in physicality and strategies for getting around. this is a general guide that i think will apply to most manual wheelchair users. i’m starting super basic and getting more complicated as i go.
———
1. manual wheelchairs are a momentum game. it is very easy to maintain speed and direction. but speeding up, slowing down, or turning, is hard. one thing this affects is if we’re on a wavy sidewalk or other twisty-turny walkway, that is a pain in the ass and i am taking as straight a path as i can.
2. wheelchair users also have to pay attention to the slope and condition of the pavement, so our path somewhere will be different than yours, even if we’re taking the same route to the same place. for example, i usually have to go down slopes straight, not diagonally, to avoid tipping over sideways. one area this affects is crosswalks. many intersections have one curb cut for both roads you could cross, which means i will go down curb cuts to a crosswalk as if i am aiming for the middle of the intersection.
your path in orange, mine in blue. to you it seems indirect, but to me it’s the path of least resistance.
i also will be building speed in the second half of the crosswalk. this is a much easier way to tackle a ramp. if i approach with momentum, i won’t have to drag myself up the slope once i get to it.
3. building momentum and maintaining it is only half of the job. the other half is stopping. manual wheelchairs cannot stop on a dime if they’re moving with any kind of speed. if i tried to stop immediately when going downhill, i would fly out of the chair. so don’t walk right into the path of a wheelchair in motion and then stop! i will have to turn to the side very quickly and hope i don’t tip. i can’t tell you how often parents pushing strollers will stop their stroller directly in my path and then get offended when i am alarmed and turn sharply to avoid hitting their child. from their perspective, i was being careless and going “too fast.” in reality, normal walking speed takes a few feet to slow down from and stop.
4. in terms of slope. see this street in san francisco?
i can’t go down this street, it’s way too steep. i would give myself friction burns on my palms trying to control my speed. if i was in a situation where there was no avoiding this street, like in an emergency, i would be breaking my straight-slope rule and zig-zagging in the middle of the road.
this would require several zig-zags back and forth, more than the four that i drew. i also could not go up this road other than with this method. up or down, i risk tipping over sideways if i’m not careful.
4. in a similar vein, consider terrain. slopes with grass or carpet take huge amounts of energy to get up. this grassy hill isn’t insurmountable, but it would take me like thirty minutes to get up there. honestly i would probably go backwards, because it’s easier to pull yourself up a slope than push yourself.
other types of terrain can be completely immobilizing, though. this decorative gravel pathway is beautiful, and inaccessible to me. my casters (front wheels) simply will not go through that.
5. in terms of walkways and obstacles. if there’s a deep gap in the pavement lined up the way i’m going, and it’s, say, an inch wide, that is an obstacle for me. my casters are one inch wide, and my back wheels are an inch and a half. i’ll get stuck in it like a train on a track.
i have to straddle this, even if it means being too close to the middle of the sidewalk and preventing us from walking side by side.
similarly, if a crack is greater than an inch high, i’m gonna wheelie over it. at two inches, i have to. a wheelie may require a change in speed, either faster or slower depending on the person.
i have 4 inch casters, so a lip as little as 2 inches will stop me in my tracks. a lip as little as one inch, hit with any speed, can knock my casters out of square. casters can get knocked out of alignment pretty easily depending on the chair. i’d rather not have to pull out an allen wrench and a level, so i’m gonna wheelie.
this happened when i hit about a 1.5” lip on a pavement crack when i was going downhill at maybe 3mph.
6. putting it all together. see how diagonal this crack is?
this is another situation where i have to go straight relative to the slope. because that crack is wide, it will probably also require a wheelie. if i tried to approach that straight relative to the sidewalk, my left caster would get up the slope, i’d wheelie, then my right caster would land in the crack. i have to go this way.
(also lol at the trash can blocking the curb cut)
these are just a few things to keep in mind when walking about with a wheelchair user! ofc the best strategy always is just to listen when someone asks you to move out of their way 😆 but i think being able to anticipate movement a little better will help it seem less random. feel free to ask any questions!
[recommending something i sincerely love] ok so the thing about it is it kinda sucks
I do think it's kind of funny how john green wrote a book about tuberculosis that brought a lot of renewed attention to the subject and he's since become the darling of the tb world, speaks at tb conferences, my dad and every other tb researcher I know is absolutely smitten with him, and they'll be like "we love this guy! have you heard of him??" and I have to be like well yes, I have. for other reasons
brazilians, imagine you’re a famous futebol player and are about to hit the winning penalty kick at the world cup finals. accidentally, the referee tosses a christian baby at you. would you still kick the baby to the goal and win the hexa championship, and sacrifice the christian baby?
in grade 12 we were reading romeo and juliet and we were at the romantic-ass balcony scene and this hot girl in the class volunteered to read juliet’s parts and i put up my hand to volunteer for another part and the teacher goes ‘oh do you want to be the nurse, amanda?’ and i was like ‘no i wanna be romeo’ and the hot girl swiveled around in her seat to give me a Look™
she and i later ended up making out at a bunch of parties in university lmfao
in retrospect this moment was absolutely pivotal to my butch awakening but it was also just a lesbian power move
I too got a girlfriend over this play. In grade 10, I was reading the balcony scene to study with two other people (one guy and one beautiful girl) and I insisted point blank I had to read as romeo, because he had the most lines and I’m a dramatic little shit.
So the other two in my group are used to my antics by now. We’re all friends, so the pair of them decide that the one guy in our group gets to be the nurse. Now, my Juliet and I have been friends for a couple months by this point, so I decide to be a little more dramatic.
We put Juliet on a spinny chair, and pump it up as tall as it goes, and my baby, closeted lesbian ass crouches on the floor, ready to be as melodramatic as possible. Like, I’m about to do a rendition that makes William himself walk into the class and tell me to take it back a notch or twelve.
And then I look up.
And holy shit.
There she is, Juliet, haloed in the worst fluorescent light known to mortals across the globe. Light just streaming down around her, that weird off-green colour that it always is. And she’s the most beautiful girl I’ve ever seen. My little gay soul is barely holding on as the words barely leave my lips, breathlessly. “But soft… what light from yonder window breaks?”
And Juliet was the sun. Romeo was not exaggerating that line at all.
Juliet and I have also been together for more than 4 years now. She’s every bit as spectacular as she was when I was a lovestruck teenage Romeo, kneeling on the yellowed linoleum floor of second block english.
i hate dogs with blue eyes. why is fucking jeff the killer at my back door
Do you need something.
before this starts getting notes i have to add that this is not my dog. i dont know how he got in my backyard
someone made a terrible youtube video searching for the source of this dog picture like it's lost media and he on-screen scrolls by a live tumblr link to this post before claiming i deleted my account, pulling up a wayback machine archived page, and then lying about contacting my ex boyfriend for more information
i think we should be talking about the semi-recent advancements in cystic fibrosis treatment like all the time every day. there hasn’t been a drug like this since AZT medications for HIV infection it is truly fucking miraculous and very important
basically: cystic fibrosis is a genetic disease which makes the mucous a person generates extra sticky. it used to kill people in infancy, then with advancements in medical tech it killed people in young childhood, and until very recently cystic fibrosis patients could expect to live until about thirty years old with consistent painful lung infections and complications.
in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.
people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.
like isn’t that insane. isn’t that amazing. doesn’t that give you hope for the future of medical advancements and treatment. fuck. i think about it all the time……
There’s a WHAT.
For WHAT.
It's been amazing!
My ward is the respiratory ward - CF is one of the things we specialize in.
Since this med came out we haven't had a SINGLE CF admission to the ward
There used to always be a CF patient spending a couple of months with us at a time
There's a man who is 23 years old who I was sure would not survive his next admission (aim saturations 85% is end stage lung disease)
There's a set of the local frequent flyers that we all know so well
Except
No we don't
On the CF specialist ward (with reasonable staff turnover)
Half the staff have probably never even seen a CF patient
They are going to live
For the people asking "well how do we know people are living that long if it's so new????" Here's a page from the CF foundation about life expectancy.
Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.
But the fact remains that the odds are better now than they have ever ever been before, by leaps and bounds. It isn't cured, and many patients still need significant treatment in addition to Trikafta, but it is so much better than anyone could have dreamed of twenty years ago, and that is a triumph.
Yes! My sister has a serious form of cf and finally is living a more comfortable and active life. She was also part of many of the clinical trials leading to these breakthroughs due to the nature of her cf. It's been very exciting to see.
That's absolutely incredible. Don't get me wrong. It's miraculous from a clinical standpoint. But, uhh. Not to be a downer but I need people to see this so they stay angry and stay real about what medical breakthroughs actually mean for patients. When I call something "survival gatekeeping", this is what I mean:
That is per month with the most common coupon people are likely to use.
But don't worry, there's grants and patient assistance programs you can apply for. 🤞🫠 Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.
NEVER look at something like this and navigate away feeling better about things without asking how much it costs and who can get it. NEVER. It isn't revolutionary until poor people can access it without a struggle.
I wasn’t gonna talk about it but one of my parents died the other day and the weirdest part has been not talking about it, specifically because they sucked and I kind of don’t care and that’s not a very hashtag relateable thing to bring up around the office so I’m just walking around at work rn like “nah not much going on hbu”
As a “dark humour is my coping mechanism” person I would describe this feeling as “children’s birthday clown with a flashbang grenade” and I gotta say, the deeply fucked up power is intoxicating
Man with the power to end any conversation
[OC] SOMEDAY A MORTICIAN GETS TO SUPERGLUE HIS LIPS SHUT, Seen in Cleveland
Does anyone know what to do about the temperature and also the prices
i have a suggestion