☆hirundinidae-aac☆

Silly aac and disability blog

[hirundinidaeaac]

My name is Milo/River and this is my aac and disability side blog!

I interact from @theecathartidae

I currently tag posts with the main disability/aid/topic of the post. Ex: aac, disability aids, accommodations, ocd. My original posts are tagged with hirundinidae posts, and reblogged symbols/emotes are tagged with hirundinidae archive. might make some other custom tags later on.

Trigger warnings will be tagged tw death, tw blood, etc. Im trying to get better about tagging trigger warnings, if I miss one, please tell me.

I'm really trying to get better about writing image descriptions, but my low spoons and memory issues make it hard. Feel free for ask me to write one, you can also write a description of your own for any of my posts if you want.

There will be no flashing gifs or videos on this blog.

Info about me under the cut

Im a minor, so dont be weird.

My main pronouns are it/he/they. Im transmasc, agender, and oriented aro ace.

I have multiple disablities/mentl illnesses, but the ones that come up the most are ocd, POTS, joint issues, and autism.

No specific DNI, if I don't like you I'll block you. That being said, bigots and haters of any kind have no place here.

I don't do discourse. That doesn't mean I don't have an opinion, but I'm not going to argue with you.

Sometimes I dont know how to tag something, so I'll reblog it without tags and then go back and add them later.

My url if from the scientific name for one of the swallow families! And my pfp is of a barn swallow! (A white bellied morph specifically)

[sapphling]

i think it was kind of a major failing to frame the self diagnosis issue around whether it's "valid" or not rather than the fact that unless an official diagnosis is necessary for you to access actually beneficial pharmaceuticals/treatment, accomodations or disability benefits, you should actively avoid on-paper diagnosis for your basic safety and access to care

[hirundinidaeaac]

Sometimes I forget that growing up with disabled family members, with varying support needs, is part of what has made me aware of and normal about so many of my fellow disabled people. And that not everyone is like that.

When I was a kid and learned that some people still believe that deaf people are stupid/incompetent it was so fucking wild. I didnt know that people still thought that, or why they would still think that.

The fact that some of you forget that bed bound disabled people exist, people on oxygen exist, etc etc is so wild to me.

What do you mean you dont know someone like that? What do you mean you dont know any moderately-severely disabled people? Who are you?

[wheelie-sick]

I always think it's very interesting that there are so many mildly disabled people who would classify me, another mildly disabled person, as severely disabled just because I use a wheelchair. even when I needed my wheelchair more often than I do now I was still able to complete all ADLs and most iADLS (though the iADLs I was missing were because of my autism, not my physical disability).

it just shows that a lot of disabled people, and particularly newly disabled people, don't understand the depth of disability. their idea of maximum disability is often "can't walk" and they don't realize that some people's disability is can't walk, can't breathe, can't eat, can't sit up on their own, can't talk, and more all at once. being an ambulatory wheelchair user is being in the 12ft deep section of the pool while other disabled people are out in the ocean.

[affectionatealbatross]

people need to understand more that some disabled people will never be “carbon neutral” or plastic free. A lot of people need plastic or other manufactured goods to STAY ALIVE. “oh we can bare to lose a few more humans on the earth” okay how about the leaders of countries who are responsible for killing millions and damaging the ecosystem beyond repair. How about you think about why you are targeting a minority already so very targeted for something they have very little effect on.

[headspace-hotel]

Plastic is actually essential for a shit ton of medical technology/equipment. it's a magical material

[disabilitywaltz]

I see lots of positivity for people who had to drop out of higher education for one reason or another. But so little for friends who are unable to have a high school diploma, or GED! (Or whatever your area's equivalent may be)

So shoutout to those who were unable to complete the "basic" education, you are important and loved and your level of education should not dictate that!

[five-thousand-loaves-of-bread]

when people w intellectual or cognitive or language disabilities ask “what does that mean” please like. actually explain what it mean to us.

even when it like. most ridiculous wild thing conservative say, for example. when we genuine ask what it mean please not respond with “oh it just some ridiculous stuff don’t worry abt it”

that not help. that leave us out of information.

you able read it, understand it, n then make up own decision about it. we struggle with first thing, so we ask for help, but by respond that way you take away our chance do the next two things.

we deserve same right as you we deserve have access to same information and make our own mind n opinion about it.

[she-is-autiblogging]

support cognitively disabled voices with limited understanding of ableism.

support cognitively disabled voices who don't notice when they're being discriminated against.

support cognitively disabled voices who want to be told when they're being discriminated against, and support cognitively disabled voices who don't want to know. support cognitively disabled voices who only want to know if they ask.

support cognitively disabled voices who notice that they're being treated differently, but can't communicate how they feel about it.

support cognitively disabled voices who do understand and notice, but others incorrectly assume they don't.

support cognitively disabled voices who don't know ableism exists at all.

equal rights and treatment shouldn't only be available to those who understand it and can fight for it. don't leave cognitively disabled people behind.

[frog-sorta-speaks]

Words in our heads

The big idea in society is that if word disable, if have problem mouth word or write or general communicate, no have thing say. If no can use word "good normal", no understand words at all. This not true, but this what people no disable think.

But, when people no think this, when try to show support people word disable, hurt in other way.

Lot time, in space for disable people but no specifically people big word disable, Frog is see idea of person with little or no mouth word, who "trapped inside own head". Who, once have good way communicate other than mouth words, have so much to express. So many words that stuck in head that now can use. Now that can communicate, can sound "normal" or close normal.

Or, see internet talk about people who, have little or no mouth word, and no can write or use AAC to sound "normal" too. And is talk of as "horrible bad bad tragedy", that no have way use words. But still, see idea express that have words inside head that "good" that "normal". And is sad because no can share the good words.

Is one or other. People word problem have no words in head at all, have no to say. So no listen to them. Or, people word problem have lot words in head, all perfect, and only problem is how get word out head. So listen- when sound good perfect.

This no real life for lot people.

Frog think how Frog write. Simple word, little grammar. Frog no have word trap inside head that no can use outside. For Frog, all word like this. And Frog have lot say! Frog like use word- they hard, they no good perfect normal, but that okay.

Frog word no trap inside head. Are out in word, people can see! But only if people look. If people no ignore Frog, because word no are perfect.

Frog word no trap because Frog. Frog word trap because people no care.

(this no is as well write or edit as normal try to, but Frog no have energy. Think is okay for topic of post)

[suchusoid]

Tumblr is an absolute nightmare for people with moral ocd and I'm tired of pretending it's not.

[talkethto-thehandeth]

Saw a video today of someone with ME saying “when I see a video of ME/CFS, I scroll. Because it’s too triggering”. Because it’s “a realization that— shit— I have that disease”. The comments were full of people saying when they see bed bound patients, they also scroll.

I am someone’s biggest fear. My life is so bad to them, that people are afraid to look at me and people like me. To engage with anything associated with M.E. Because it is too scary to imagine yourself as severe. To imagine yourself as bedbound and this sick. Too terrifying to see yourself in my position. So you just don’t look.

Do you not realize this is why we speak out? Why we warn people who are mild/moderate to stop overexerting yourself before you become like us?

And I am not here to bash on anyone who does look away. Because I know why they do. I know I’ve looked away too at times. It’s human nature to want to try to protect yourself. There is no anger on my end from that.

However, avoidance, though natural and morally neutral, won’t save you, or anyone else from becoming severe. Actual knowledge about your disease might.

What is ME/CFS?

Treatment suggestions- Bateman Horne Center

ME/CFS clinician coalition

[cloni3boyz]

Things that people without disability do that inspire me because apparently im so fucking inspiration ive got a list for you!

You walked! Without support! Without pain shooting down your legs! And you opened a door while still walking!

I saw someone... and they just got up without holding something. Shocking

Someone didnt have to fight to be allowed into a shop! Not just that but someone got on the bus and sat down without comment!

Stop calling me inspiring for doing normal things. Its annoying and frankly just feels belittling. Yes I'm on crutches, yes I have audhd and yes I'm young and disabled.

I'm not some magician. I'm human and just trying to go to college or go to the shop or go out with my friends.

[goldencamelias]

So a random thought came to me

Ever think how weird/ironic it is that barely any people have ocs or characters with dwarfism?

Like I was sharing my own character who has it and every single time people assumed she was either a gnome, halfling/hobbit, or a fantasy dwarf, even though I always preface that shes from a world with no fantasy races or species.

This isnt shaming or pointing out anyone, but just an interesting observation how this is one of main disabilities I almost never see written or drawn

[goldencamelias]

Since we're on that topic, here's my two characters with dwarfism.

Nasar ibn Lubb with Achondroplasia (left) and Khadija bint Ya'ish with Proportional (right)

Art by: Rubidgea

I really want to get/comssion character sheets for them, and while I'm usually super lenient when it comes styles, tyring to find an artist willing to draw short, dark-skinned, and hairy (for both), characters well into their 40s is harder than it honestly should be imo

(Note: both are human, the setting is low fantasy with mostly plant and animal being the fantastical parts, the reason she has pointed ears is because od body modification along with the traditional scars upon her face!)

[inaccessiblitykilledchaoticbuggy]

hate how I will have a very simple thing (tagging flashing lights is a bare minimum of accessibility) and people crawl outta the fuckin woodworks to tell me how stupid that is like bro

[inaccessiblitykilledchaoticbuggy]

Banging my head against a wall literally you’re correct and it is blatantly ableist to say otherwise

[morning-stars-avenue]

[Image ID: Two Tumblr hashtags which read "like hey guys. people can die from that." and "it isnt stupid people can fucking DIE if you dont tag for it". /End ID]

[inaccessiblitykilledchaoticbuggy]

reblog this version please

[inaccessiblitykilledchaoticbuggy]

Tags: please remember epileptics like me. Seizures can kill people at any point and not just from injuries they cause. Literally it’s called sudden unexpected death by epilepsy. additional tag: disability awareness

[bunnylikearabbit]

Some people just want to leave poison un labeled at the bar and then criticize those who die from the drink

[inaccessiblitykilledchaoticbuggy]

well put.

Addressing other things I’ve seen in the notes here:

“wtf, why would anyone not care about this?”

Ableism. People do not care about disabled people. 

“I didn’t know xyz! D:”

Now you do! Yay! Go forth better educated and more accessibly!

“Why is this not common knowledge/practice!?”

Ableism. 

“Why don’t devices do this automatically?”

I honestly don’t know enough about computers to answer this thoroughly. All I know is that my phone has a “dim flashing lights” setting and it does not help me. 

Tags from @23andtiredofbeingme :

“can we also add epilepsy and epileptic disorders don't always look like the classic falling on the floor and convulsing. It can manifest as repeated movements/vocalizations, confusion or dissociation, and as gaps in memory or perception. Learn the types triggers and signs!”

[reformatted tags for screen readers]

I always encourage people to learn basic first aid, and diagnosing different types of seizures is part of that. If for whatever reason you can’t get formally trained in first aid, there’s tons of resources online. Red Cross has a first aid app which is really great, I have no idea about its overall availability tho. 

Regarding tags! There are a LOT of different tags that are used. My philosophy (I saw this in the notes somewhere as well) is that it’s better to over tag than under tag something. Do NOT use any variation of “epilepsy” or “photosensitive” in the tags! These tags are places for disabled people to talk about their experiences not to be met with hazards! 

The current way that tumblr works is that if OP tags something, it will filter in every reblog. If not, then it’s up to each individual reblogger to filter it every single time. 

Some that I have filtered (I also have these filtered as content not just tags btw) 

flashing

Tw flashing

Flashing Tw

Fw 

Strobe 

Strobing

“This is literally so easy why are people still not doing this”

Ableism. 

@silverislander “hi arcane mutuals. This one’s important 👍”

Real as fuck 

Anyone who mentioned tiktok:

Yep. I do not have tiktok, in large part, because of this. The reason I feel safest on tumblr and mobile tumblr specifically is bc not only is it a text based platform, the app allows me to turn off autoplay for gifs. 

“Tumblr should have a filter for this like the mature content filter”

Yeah. Yeah it should. Ableism. Tags are the next best thing. 

“I don’t have epilepsy but I have problems with flashing lights”

Yep!! There are lots of causes and severities and effects of photosensitivity. I have chronic migraines and general photosensitivity. My pupils don’t contract properly, so the world is literally like an overexposed photo for me. I have to wear sunglasses most of the time to avoid migraines and flashing lights can cause migraines in under a minute. Photosensitivity is often related to sensory issues and I’m sure there are other photosensitivity thingys. As far as I know, epilepsy is the only one that can *directly* kill people, though migraines (especially sudden ones) can put people in danger via being unable to react properly to environmental conditions and impairing cognitive function, and sensory overload can cause meltdowns which may lead to physically harmful behaviors. Epilepsy is definitely not the only form of photosensitivity but it’s the most directly dangerous one. Seizures can cause brain damage and death. 

“Flashing ads are evil”

YES!! They are! Tumblr lets you report them, other platforms don’t because they are also evil. I have had to block MCR’s official instagram account because I was unable to use instagram when I kept getting ads with flashing concert footage. 

that’s everything I saw from recent reblogs, but one additional thing before I fuck off into the void again!

If you are not photosensitive but you notice someone (whether it’s a gif maker, a moot, big fandom blog, whatever) not properly tagging things they’re posting, PLEASE tell them!! It does not have to be big scary and you can do it without talking over us! Reblog with a comment saying that this is dangerous for people, heck, send them this post!

[innerchildabortionclinic]

wish online communities discussing autism in women weren't like, doing their best to contribute to the false perception there's a distinct Autism For Boys and Autism For Girls, when the whole time it's just social enforcement of gender roles influencing behavior

[hadesborn-emotes]

Joint pain emotes. Reminder to credit with HB at the start or end of emoji name. Thank ! ! !

[pleaseletmeexist]

When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”

I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.

Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”

[acespartypoison-deactivated2026]

school's attendance policies are complete fucking garbage.

i got covid recently and it killed my immune system for like a month and a half. i kept getting sick back to back or every other week, and not only was i sick, but i also have a close friend who is immunocompromised so i really couldn't go to school. and yet they didn't count some of my excused absence notes from doctors. so now i am pushing 10 absences. and this is coming from someone who has urgent care covered by medicaid! im fortunate enough to be able to get a drs note when needed and im still on the edge of failing my classes, as when you get 11 absences in a course, you fail it. and if you don't want that, you have to do community service.

and then suddenly my calf decided not to want to fucking work (i believe it was an overuse injury?) and so i could not really walk for a day, and when i got to school the next day walking was so damn painful. but i had to suck it up cause i have 10 absences!

this is not even considering the fact i had to get checked out the first day of my period every period and potentially miss school the second day due to just how fucking painful it is. but nope! not excused. it only took until the fourth time this happened for me to get on bc. so this whole compulsory attendance thing is fucked.

and this is coming from someone who is able to go to the dr because of medicaid. this isnt even the worst of the worst. this shit is rigged and people with perfect attendance scare me actually

another thing with schools is that teachers are all-too-willing to completely spray the whole room down (or get a student to) with very strong smelling perfume/cologne/other smell sprays when it smells mildly unpleasant (such as if someone farts). and they NEVER have asked at all if anyone in the class has asthma or another breathing issue. so im like getting hotboxed in a classroom and it actually makes it 20x harder to breathe than whatever fart there was on the other side of the room. they really need to make asking this kind of thing mandatory

sorry for the rant this shit just irritates me