Frog

Semiverbal autistic | He/Him | Minor

[frog-sorta-speaks]

Am make new intro post, because no have use blog in lot time

Hi! Am Frog, It/its and He/Him pronoun. Am semiverbal autistic teenager. Also have lot other disability, sometime post about that.

Frog type the way think, word and some grammer hard for Frog. If no understand thing Frog write, can nice ask Frog write different, and Frog will try.

Ask always open! Am love love love to get send thing or ask question. But still, Frog might time take lot answer.

Tag '#frog.txt' is post Frog make, or reblog where Frog add lot write

[frog-sorta-speaks]

"would you still love me if I was a worm"

what about would you still love me if I was disabled

would you still love me if I couldn't talk

would you still love me if I didn't understand "simple" things

would you still love me if I had bad personal hygiene

would you still love me if I could never live alone

would you still love me if I couldn't walk

would you still love me if I needed mobility aids

would you still love me if I couldn't respond to your messages

would you still love me if I was disabled?

[frog-sorta-speaks]

Unique AAC user challenge: Put talker on floor next to chair while eat dinner, so not get food on it. Then dog try and lick talker.

[frog-sorta-speaks]

have be deal with more physical health problem recent, some new thing, some old thing that get worse

and, all is bad annoying upsetting.

but one of worst part is the health problem that interact with stimming (or. is worst part in Frog brain)

Flap hand hurt wrist bad bad, just as bad as write hurt Frog wrist, but not have other stim that get same movement feeling, so just do anyway and deal with pain (and then pain make more overstimulated which make need stim more and it cycle)

Other big stim for Frog is pace, do almost all time constant when at home. But walk hurt Frog leg so bad! And again, when in pain, more overstimulated need stim more, but then just make more pain!

Am try find other way stim that get same feeling to do instead of stim that hurt, but is very hard. Not a lot work.

(If you have same or similar problem and have find other way of stim that work for you, please share! But if you not physically disabled, please don't give advice.)

[tykedpupp-deactivated20260526]

I don’t know what board to use. I use snap core first for now. It’s work good.

But I like TD snap it let me change my skin color.

I don’t know what other apps do that. But I want more to do it. I am not white I don’t want words that be like “me” “I” “my” to be white person

[post made with aac]

[frog-sorta-speaks]

The reason why some programs let you change skin color and some dont is because of the symbol system the program use.

SymbolStix and PCS symbols both let you change skin color (PCS is what TD snap use, Frog think). AAC program that use these include Proloquo2go, Proloquo, and Touchchat.

Minspeak is other common symbol set, and it have two skin color, but both very light, not have option for dark skin. It use most in LAMP wfl.

If there is specific app Frog not talk about that want know if let change skin color, most of time can look up, but if not can tell, can look up what symbol set app use and then check if that symbol set let change skin color.

Hope you able find good app- all program should let you change skin color, really bad that some super big company not have that option.

[frog-sorta-speaks]

for the ask game: 3, 6, 9?

3. Which part of autism do you wish was better understood and more well known about the general populace?

Hard question! Think would say, when think about all autistic people and no just one group, would want people understand what is called "context dependent ability". This mean that how much person is able to do thing change because of lot of outside fact.

Just because can do a thing in one place at one time, no mean can do all the time. And just because not can do thing at one time, no mean never able do other time. This happen with big ability and small ability, and happen with almost all autistic people in some way no matter where on spectrum, but so many people not believe or understand is real.

6. Which aspect of being autistic is most frustrating for you?

If was honest, part of be autistic most frustrate is sensory problem, specific with sound. Not most big problem be autistic cause (that be problem communicate), but most frustrate.

Frog not can leave bedroom without ear defender, and even then still get overwhelm by sound so easy. So many time Frog want wear earrings, or do fun hairstyle, and not can do because Need wear ear defender. Also very hard make hat fit under, and in heat get so hot and sweaty, so extra not fun in summer. It also mean Frog no can go to place like concert, but also just place like school event in gym. Any place with lot people not can go at All. So frustrate.

9. Do you collect anything? If you could collect an unlimited amount of anything, what would it be?

Frog not collect anything, loose thing way too easy! Want to often, but is hard. If could collect anything, would want collect sticker. Specifically, would want collect space sticker, with planet or moon or astronaut or other picture from space. Frog have lot on wall, but never enough, and no in other places.s

[bebsi-cola]

autism cataclysm: chill ask games to answer invasive questions to

[note: this is not an extensive representation of all of autism. have fun but remember to copy the whole question out when sending asks for everyone. short term memory is a fuck]

1. If you have a diagnosis of autism would you choose to get that undiagnosed, if you have no diagnosis would you choose to get a diagnosis? Would you like to change when you got a diagnosis? Do you want a diagnosis off-record?

2. Are you able to maintain a routine by yourself or do you need someone or something to impose a routine upon you in order to follow it?

3. Which part of autism do you wish was better understood and more well known about the general populace?

4. Have you ever been in any in-person autism support groups? What were they like?

5. Have you taken part in any autism research as a participant? What was it like?

6. Which aspect of being autistic is most frustrating for you?

7. Do you experience The Rage? How is it for you?

8. Imagine a society that is geared towards catering to the needs of autistic people. What sort of reforms would you implement if you got to be in charge?

9. Do you collect anything? If you could collect an unlimited amount of anything, what would it be?

10. Money is a lie. True or false?

11. When people say "autism stereotypes" what do you think they mean by that? Does it describe you or anyone you know?

12. This will determine if you're in the clubTM. Did people joke about you becoming a serial killer/mass shooter just for being slightly different on account of being autistic?

13. Do you have autistic family members? Could you take them in unarmed combat?

14. What co-morbidities of autism do you have? How are they treating you? You deserve 500 in money.

15. Is there a topic or activity that just lives rent free in your head? Like it comes up and everything else fades away.

16. Autism on autism violence. Describe a bad interaction you had with another autistic person.

17. Autism plus autism alliance. Describe any good interactions you have had with another autistic person.

18. You get to direct the new upcoming research in autism studies. What are you researching and why? Feel free to lay out your whole methodology and write a literature review but I only accept APA, APSA, or ASA citation style. You can use Chigaco author-date but anything else is pushing it.

19. Do you observe occasions such as autism awareness month or similar? Why, or why not.

20. Imagine I am a 19 year old psychology student. You've just told me you're autistic/have autism, and I ask you what that is and what it's like? How are you going to explain.

21. Who is the best autism icon? It must be someone from death note. If you haven't read death note people go read it first and come back to me.

22. Autism is getting a slogan! What is it? You get to decide.

23. What does being autistic mean to you? It's an open ended question so write a lot.

24. How are you with mouth sounds? Do you make them? Repeat them? Are mouth sounds simply out of your reach?

25. I would like a funny or strange interaction with a healthcare professional that happened because you are autistic or they learned you have autism.

26. How do people understand autism in the country you live in, are from, or parents are from? How does it differ to what you experience online on this website? Do they call autism something else? etc.

27. How has your relationship with food been affected by autism? Any co-morbidities or other background information can be included as is relevant.

28. Where have you learnt the most about autism from? What things about autism did you learn that really made an impact on you? Are there any information sources on autism or autistic people that you recommend?

29. What support do you desperately need? Are you getting it?

30. Hahahahahahaha there's no thirty. Read them and weep. Or something.

[frog-sorta-speaks]

many thoughts, hard to get all out, keep want make big long perfect post with all want say all at same time. but not is possible. so am try make self remember it okay make little post.

like proloquo2go, and have lot reason why choose instead of other app. and most problem it have can be fix with edit.

but really really really wish it had way change button size like in TD snap. so many times wish this.

[frog-sorta-speaks]

30 days of autism acceptance, question from this post.

April 26th: Lets talk about food. Are there certain foods that you cannot eat due to sensory reasons? Do you tend to avoid spice? Do you eat a lot of the same foods over and over? Do you have a same food that you tend to eat often because its safe or familiar?

Frog have lot sensory issue with food.

Only eat very plain food. No spice (even pepper way too much). Like sweet and salty food, but only some, no too much. And no sauce- can only have one taste on food.

Also texture problem. Like mash potato plain, but hate texture. Mushy is bad bad.

Frog eat same cereal breakfast every day. And same pasta mom make for lunch. Dinner is from very short list of food. Snack is more cereal, or one kind of bar.

Some month ago, the company make Frog safe food (kind of granola bar) did change recipie. Was bad bad bad. Multiple meltdown. Did find new food, but did take time.

Frog also have food no can eat because allergy, so that make find food more hard.

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 21st: Do you have trouble keeping up with personal hygiene? Bathing, brushing your teeth, flossing, etc? Is it because of sensory reasons? Is there anything you've found helps with this?

Yes yes yes! Frog have big problem with them. Some is because Frog other disability, but will try focus on what is most from autism here.

Frog shower most every 2 week. Is hard. Sensory problem, autism inertia (unable move from one thing to other), remember need shower, make self care about shower, and more.

To help sensory, Frog turn fan on after done shower, when no am in room, so no need hear. Also shower with no light, so only bad sensory is sound and feel of water.

Frog also have big problem brush teeth. Use kid toothpaste, that no is mint, and make possible do. But still, is only one time every 2 month mostly. Similar problem to shower. But no know how make more easy.

Am think of maybe make visual schedule for weekend morning with brush teeth, and then make specific one for brush teeth in bathroom. Weekend morning same all day, so is more easy do hard thing. Maybe, if figure out good way do for Frog brain

(If have own way of help brush teeth with autism, Frog want hear if okay share!)

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 19th: Talk about speech. Are you nonverbal? Do you use AAC? What is it like if you are? If not, do you have trouble controlling the tone of your voice? Do people often misread you based on your tone (thinking you're angry when you're not for example)? Do you have trouble controlling the volume of your voice, especially when excited about something? Do you tend to speak in a monotone?

Frog have lot issue with speak. Not all life, but in past years. Can speak, but not enough to communicate what need.

Sometime Frog loose speech, not can talk at all no matter how much try. Most time, Frog can only speak with prompt, like answer question. How specfic prompt need be change. Also have verbal script, that happen without think, not can control (unless complete not can talk then). Have be lose some recent though, so not as many happen.

Even when Frog feel like have no problem talk, is just "later problem". Feel okay when is talk, but after done talk realize that took way way more energy than is okay. And when happen, lot time is just word get speak without think. Not can control, and not is communicate what actual want. Think this worse than just Frog normal need prompt, because make have no energy, not can handle anything. Meltdown or shutdown. And lose all mouth word for long time. Every time, Frog worry that will make Frog baseline- Frog normal amount of speech that can do- even less forever.

Frog call self semiverbal, because always have problem talk. Always struggle, never can do normal speak, never can speak enough for normal communicate.

Frog have some sound make that Frog mom understand meaning of. Yes, no, thank you, and okay. So with her not need use any word for those. Sometime recent, Frog accident make those sound instead of say word with orher people, but not realize they not understand. That part frustrate.

Frog have be start use high tech AAC recent. Use proloquo2go on ipad (if people curious on why choose app, could make different post on). Frog did know would be hard, but not expect how hard. Frog spend so long without good way communicate, that lot time forget have way now. Forget can communicate, that thought can leave head. Also need customize lot, and no have person to help, is just Frog. So, lot work. But think once can get used to will be big help.

When Frog do use mouth word, people lot time think is be rude. Not understand why, not understand how tone work enough to know what part of talking is make them think that.

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 18th: Have you had trouble, now or in the past, with people not respecting your boundaries as an autistic person? For instance, people not listening when you don't like hugs or being touched etc.

(Did skip 17)

Sometime. Frog know when child, never aloud say no to hug. Was be bad, never allowed say no even if scream or run or hide.

Frog not mind hug now, like squeeze pressure, but not know if people would listen if Frog did say no.

Still have issue with other touch though. Frog history teacher pat people on back or shoulder, and Frog Hate. Make so upset, not know her, not want be touch. And always scary because not expect it, not know it going to happen. But every time it scare Frog, she never say sorry. Hate it.

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 16th: What are some accommodations that you would either like to have or already have to help you in your everyday life as an autistic person? If you could change an aspect of society to make things easier for you as an autistic person, what would you change?

Frog wear ear defender whenever not alone in room. Also have glasses that become sunglasses when outside.

For school, Frog get seperate room for test, and more time. Get for all test because ADHD, but it super good for test with question that are open response (not multiple choice). Frog get overwhelmed by options and not understand instructions, because lot time multiple way to answer question, so have extra time help process.

Not official accomodation, but all Frog teacher let Frog type on computer not write by hand because nobody can read Frog handwriting- not good enough fine moter control to hold pencil "normal" way. Not is perfect though, because Frog can only use 2 finger type, so is more slow.

Accomodation that Frog not have is any help take note, but think would help lot. Is hard understand what is important write down and what not important, and when Frog do write thing down, is so unorganized that not helpful. For college, Frog want see if can either get help- maybe teacher note for lesson, so know what important. Or note template maybe. Best best way help would be person take note for Frog, but not know if could get. Will do more look into when more close to college.

One accomodation that Frog not have but can make for self is visual schedule. Take energy plan, so am wait until after school done, but think will help. Would be more better if get other person help with, but Frog can do some alone.

If Frog could change society to make thing more easy, would want people be more patient. Understanding. Help people if confuse, not get mad if people take long time do something. Also more specific, would want everyone know about and respect AAC of all kind. When person is try to understand new way communicate, not should have worry about what other people will think. If will take AAC away, say is toy, or not real communicate.

If could change world, Frog would want make more nice, especially to people who communicate different.

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 15th: Talk about special interests. What is your current special interest? What do you like about it? Do you dislike anything about having special interests? Talk about past special interests.

Frog current have 2 special interest: space and minecraft. For space, is specific distant far away space, and some math and physics that in Frog brain so big relate to that same thing. Frog want go college study stars and physics relate to stars, if get go college. Long long special interest, think for all Frog life.

Minecraft, is very different special interest, but also very long time has be. Frog meet all Frog friend play minecraft (most or all also autistic special interest minecraft). No have as much say about, no is as big special interest, but still important to Frog.

One thing that think interesting about have specific special interest, is both mean Frog have good understand of technology. Mix between know technology because interest in minecraft, and mod, and how work, and that. And because interest in physics, and how computer work. Technology no is special interest, but because of them Frog know lot lot.

For Frog, special interest mean safe. Close to all problem, can help regulate. But also mean, if bad thing happen with special interest, make big big upset problem.

When Frog more young, all want do ever is be astronaut. Did know was big hard, but Frog was ready to do all work did need to make happen. Then, Frog look up and find out because of disability born with, no allowed try***. Not "will be hard". Not allowed try at all. That was big big upset for long time. Space still special interest, but was hard hard like for lot.

Can bring lot lot joy. Is Frog big reason why like life, is whole Frog plan dream for future. But also that mean can bring big big problem sad.

***This was before Frog have more disability happen, autism regress, and other. Was more possible then. Now, even if allowed try no would be possible for Frog. Which also big big sad.

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 14th: Do you have issues with change? From small changes like a disruption to your daily routine, to big changes like a new boss at work for example. How does it affect you? Is there anything that helps with it?

Any change is lot hard for Frog, even if little, or if is good thing Frog want. Is hard, because lot time have change want make in life because would make more easy, but because is change is so so hard. For example, Frog has be struggle to use AAC because need remember can communciate. But also because is change. Use high tech AAC is different from use mouth word, even though mouth word hard and not communicate what want. Is good change, but still hard.

For Frog, most big thing that help with change is to make it not a surprise. If have time prepare in head, and can try and extra regulate before, change can be more easy. Example for school is Frog teacher tell Frog if are go to give surprise test, so Frog no is surprise upset when get to class. Still hard, but not as bad.

Think other thing that help is just people be patient. Know Frog go to take more time remember and be okay with change, and that not is make hard on purpose. Help Frog with little thing, so can put more energy into work with change.

[frog-sorta-speaks]

30 days of autism acceptance, prompts from this post.

April 13th: Have you ever had to (or wanted to) correct someone's misconception about autism? What happened? Talk about it.

Not have correct lot people about autism, because talk communicate so hard. But do have one misconception or wrong idea that has be annoy recent, so still want mention.

Frog hate the idea that autism is not disability. Or that little disability, but not have big effect. That not true. Autism always disability- if not make life more hard, then not is autism! And for so many people, is big disability. Make so many part of life so much more hard.

In same wah, hate word like "neurospicy" or "aspie" or other word try make autism cute. Not is cute. Is disability.

[frog-sorta-speaks]

am wonder. if is worth try and get accommodation to have AAC in school next year.

Frog stuggle. so much to communicate with mouth word. And with new physical disability, have even less energy for mouth word.

But. Frog have 504. Not IEP. And lot Frog accomadate are unofficial too, just Frog ask teacher and they say okay, because also more easy for them.

Think AAC would need IEP. Which mean some meeting, and lot work. So much work. And next year is Frog last year high school. And so think would need do again for college after.

Am wonder. Is worth effort, try and get AAC at school? Solve so many problem, but also make new one.

(if have advice, is welcome give, but no are need to. just am share thoughts)