my life with illness

fighting mental health and invisable illness

[timelyreminder]

Did you remember to take your medication today?

Stay healthy folks!

If you have an inhaler, remember to use it.

And don’t forget to do any exercises or other activities recommended by your doctor. Those are important too.

Happy scrolling!

Art by nardacci-does-art

[killer-zombie-unicorn1]

Julia loves anything and everything shiny

If you want to see more follow us at killerzombieunicorn

[toadistic]

some neurotypical: Truly, we will never comprehend the dark dangers of the autistic mind…

my dark and dangerous autistic mind: I wish soap tasted as good as it looks.

[killer-zombie-unicorn1]

Health update! New afo

Tommorow i am going to get sized for an afo and hopefully this will help with my instability.

Anyone out there have an afo (ankle foot orthotic) and have any tips for someone who is going to be new to haveing one ?

[killer-zombie-unicorn1]

Iv fluids!!

Ignore the bfs work clothes in the corner but ihave to make a trip to the hospital every 24 hours for iv pain meds,fluids and antibiotics not sure how long this will be for but i think i pushed myself a little to much working out yesterday but oh well its life i am lucky to be getting fluids it is helping my dyautonomia a huge amount but right now they are only giving me half bags .

[dare-i-say-asexual]

i love little kids with very niche interests. Like for awhile I nannied for a family who had a little girl who loved old black and white movies. She adopted a transatlantic accent, constantly wore a long string of plastic pearls, and would often dramatically drape herself over pieces of furniture when told to do something and say “I just can’t do it babe”

[killer-zombie-unicorn1]

Doctors apointments today,

Got family doctor and cardiologist

Wish me luck!!

[babyseraphim]

WHAT TO DO IF YOUR FRIEND OFTEN GOES NONVERBAL

So, as someone who is selectively mute/prone to shutdowns, people don’t often know what to do when I go nonverbal, and it’s not like they can ask, so I’ll give some tips!

Ask them what you should do while they’re nonverbal before they go nonverbal.

Keep in mind that for some people, nonverbal means they simply can’t talk but can still communicate through writing, texting, nodding, etc. But, for some, it means they cannot communicate at all (and this can change based on the type of episode as well). If this happens, just be patient, and be somewhat still. If you talk, try to talk softly.

Some people like to listen to others talk when they’re nonverbal, and some don’t. Talk to you’re friend when they’re verbal so you can find out which is best for them.

If you’re out and about, make sure that you make it obvious that if you have to talk for them (i.e. order food for them, thank the bus driver, tell someone they can’t speak, etc.), that it really isn’t a bother.

DO NOT RIDICULE THEM. Do not make fun of them, do not get visibly frustrated, do not get angry, do not try to force them to talk. This will only make things worse.

Being nonverbal is different for everyone; if you know your friend is known to go nonverbal, ask them what you should do in that situation. For some people it’s not a big deal, but for some people it is. Ironically, you have to communicate with them (while they can, of course) to find out what is best.

[killer-zombie-unicorn1]

Showing my new chair

[killer-zombie-unicorn1]

Still at the hospital getting some meds adjusted. (physical and psychiatric) trying to find a safe affective combination ,but today i feel cute and confident after pushing myself to do my makeup (its something i enjoy doing) remember to always love yourself and your body EVEN if ur body betrays u sometimes lol

[killer-zombie-unicorn1]

Showing off my cute unicorn/pizza/space theme socks in my wheel chair! Love them

Share your cute/favorite socks below

[spoonies4ever]

Spoonie experience #17:

Being jealous of elderly people who have cooler mobility aids than you…

[killer-zombie-unicorn1]

Lolol

[spooniestrongart]

[killer-zombie-unicorn1]

Useing a mobility aid is NOT giving up its being strong

[anaccessiblelife]

Text: I want you to know about… Autistic Shutdown

Autistic shutdown is like an internalized meltdown. While the person is experiencing a lot of emotions, they can’t express them outwardly.

It may look like this:

Zoning out

Exhaustion/falling asleep

Hiding/defensive position

How can allistic (non-autistic) folks help?

Safety first! Help them to a quiet space w minimal simuli

Be sensory sensible! Have a kit tailored to their need (eg ear defenders, stuffie or squishy and blanket)

Eliminate all expectations/demands. They are currently overloaded.

Reduce interaction, giving them time and space (shh..)

Remember:

Autistic shut-down is NOT stubborness, laziness or disrespect

Autistic shut-down IS involuntary, painful, exhausting Please be patient and compassionate.

Info by Kate, Girls Autistic Journey Illustrated by @introvertdoodles

[killer-zombie-unicorn1]

❤❤❤

[killer-zombie-unicorn1]

TMI/TRIGGER WARNING.... Periods and illness

2nd month in a row that i have missed my period. I dont know if its due to low iron (im waiting on an iron infusion as the pills are NOT working at all) or if any of my other health issues could have something to do with it. Can anyone else relate

[killer-zombie-unicorn1]

Ooof