a life in lupus

once upon a time I was via-loopy

[panulyx]

Too much movement makes your joints hurt and too little movement also makes your joints hurt. This would imply that there's an optimal amount of movement that allows your joints to not hurt. This is a lie.

[melr2025]

[grace-is-tired]

I would literally give anything and everything to wake up from sleep feeling well rested for once

[spooniestrongart]

[gailyinthedark]

my tummy hurts because of the GIANT FUCKING SCAR and the HOLE IN MY ABDOMINAL WALL and I am being SO fucking brave about it fuck

[fromdarzaitoleeza]

{Words by Anaïs Nin, from The Diary Of Anais Nin, Vol. 4 (1944-1947) / Cynthia Cruz }

[fromdarzaitoleeza]

{So We Must Meet Apart by gabrielle bates and jennifer s. cheng}

[spooniestrongart]

[only-some-spoons]

[traumabuddies-deactivated202408]

how old were you when you got your first job (officially with a paycheck and all, not just working for free with your parents for example)?

16 or younger

17

18

19

20

21

22

23

24

25 or older

i've never had a job

Voting ended onSep 16, 2023

if you want add in the tags where you're from and what kind of job it was! i've been thinking about this and i'm very curious

please reblog for a bigger sample size etc etc

[enby-in-the-category-of-arson-d]

“Disabilities are not things to be embarrassed of and being disabled is a part of who I am”

And

“Certain disabilities are so unbearable that it’s normal to wish you weren’t disabled”

Are two separate concepts that can and should coexist

[thoughtcascades]

one thing about me is i don’t remember a fucking thing bro

[only-some-spoons]

If I were to start complaining

About all the ways I hurt

You'd never hear from me

Another happy word

So I smile

So "I'm fine"

I say I'm doing well

But good relates to bad

And my bad is living hell

[only-some-spoons]

You tell me that you love me so

You tell me that you care

But do you really still

When I'm never there?

I cancel plans

But I answer texts

I'm frozen dead and crying

I'm good how are you?

I'm lying

January turns to June

And fall is coming far too soon

But please believe me

I miss me too

[spooniestrongart]

[only-some-spoons]

ack 😫 the prednisone is stuck to my tongue

getitoffgetitoffgetitoff

[only-some-spoons]

[luulapants]

My dad and I once had a disagreement over him using the adage "What doesn't kill you makes you stronger."

I said, "That's just not true. Sometimes what doesn't kill you leaves you brittle and injured or traumatized."

He stopped and thought about that for a while. He came back later, and said, "It's like wood glue."

He pointed to my bookshelf, which he helped me salvage a while ago. He said, "Do you remember how I explained that, once we used the wood glue on them, the shelves would actually be stronger than they were before they broke?"

I did.

"But before we used the wood glue, those shelves were broken. They couldn't hold up shit. If you had put books on them, they would have collapsed. And that wood glue had to set awhile. If we put anything on them too early, they would have collapsed just the same as if we'd never fixed them at all. You've got to give these things time to set."

It sounded like a pretty good metaphor to me, but one thing I did pick up on was that whatever broke those shelves, that's not the thing that made them stronger. That just broke them. It was being fixed that made them stronger. It was the glue.

So my dad and I agreed, what doesn't kill you doesn't actually make you stronger, but healing does. And if you feel like healing hasn't made you stronger than you were before, you're probably not done healing. You've got to give these things time to set.

[cripinpain]

it is punk as fuck to be in such bad pain and to be so fatigued and yet, still be alive. fuck yeah i’m proud of you.

[classycookiexo]

Hopefully this tip can help anyone